Email:jbunin122@hotmail.com Comments: He's a cuty, just like his mama! He's a fighter, just like his mama! He's a hokie, just like is mama and papa!
Email: Comments:Paige and Joe and Christopher -- I have just viewed website -- it is wonderful! I pray for all three of you on the way to work each morning. So happy about Aunt Lindsay's engagement and I know your mom is thrilled, too. Keep up the great work -- you can't imagine how many lives you will touch! Love, Martha Ann
Email:cdebrody@cox.net Comments: You guys have done a great job on the website! You are all continually in our thoughts and prayers and we will support you in every way we can!
Email: ljrdesign@yahoo.com Comments: Paige, everyday since we first became friends you have amazed me on how strong you are. I know Christopher will be just as strong and will win this battle! My offers to babysit still stand, anytime you and Joe need it. Congrats to Lindsay on the engagement!:) Love-La
Email: ginafimbel@yahoo.com Comments: Paige, Joe, and Little Christopher, Your website is so inspiring. Thank you so much for sharing your lives with us. We will continue to keep all three of you in our minds and prayers over the next few months. Remember how many people love you and that is is okay to ask for help! We all want to do something, all you need to do is let us know what you need. Please know we are all praying BIG TIME!!! We love you, Gina, John, and our little angel Andrew :o)
Email:mkcolombell@hotmail.com Comments: The website is wonderful. Please give Christopher a kiss for me. We are praying everyday. Like I said earlier, Paige, his picture is right at my nightstand. We are here anytime. That is so wonderful about Lindsey :) :) Talk to you soon. God Bless. Keep Faith.
Email:sjessee@centreville-umc.org Comments: Thank you for allowing us to be a part of your journey. May you continually be strengthened by God and those around you. Know that you are constantly in my thoughts and prayers! Blessings, Samantha Jessee
Email:pmhesse@hotmail.com Comments: the website is great, we are praying for Christopher every day! (Pete, Laura, & Marie Hesse)
Email:amandajbthomas@aol.com Comments:The website is fabulous just like the people who designed it!!! You continue to be in our prayers!!!! Love, Amanda and Craig
Email:grahamwk@unos.org Comments: Hi Christopher, Paige, and Joe. You are all in my prayers. A beautiful little boy, and a gorgeous web site. Your friend, Walter Graham
Email:tmus2000@yahoo.com Comments: Joe, Paige, and Christopher, Rachael, Mackenzie, Makayla, and I will keep all of you in our prayers. We'll be with the entire journey. Stay positive and know that we're always here for you guys. -The Mastals
Email:maryam.baradari@accenture.com Comments:Joe, I pray for you all every day. As I entioned to you already, both my husband and I are registered bone marrow donors. So, I pray for a match for Christpher. Please let us know the information about hi strust fund. You ok with me sending Christopher's website onformation to others in the AGC? Maryam
Email: Comments: You are all in our hearts and prayers. Please let us know if there is anything we can do her in Florida that we can do to help. Love Sammy & John
Email: hookie2001@earthlink.net Comments: He's adorable! I'll keep all of you in my prayers. -- Patty
Email: aryn_m@yahoo.com Comments: Paige and Joe - my thoughts and prayers are with the both of you and little Christopher. Hang in there!!! ZLAM, Aryn
Email: Comments:Paige, Joe and Christopher, Just want you to know that my thoughts and prayers are with you all. If there is anything I can do, just let me know. I too am a registered marrow donor. I hope you get a match soon. Love to you all, Denise Tripp
Email:otpera@verizon.net Comments:Joe, Paige and Christopher, What a great website and a precious baby!! We are thinking about you guys every day and we wish we could be back in Virginia to help you. We will keep in touch and do anything we can to help from afar. You all are in our prayers. Matt, Michelle, and Grace Dates
Email:stevenek@aol.com Comments: Our prayers are with you. Edna & Steve Kogan
Email: Comments:Dear Joe and Paige, We have been reading your website and praying for Christopher since the day he was born. We loved the picture from Mothers' Day because we met him at Sunday School while we were visiting Meredith and Don. I, Jeanne, am so glad I got to hold him at your house, Paige. Your courageous struggle is an inspiration to us. We are praying, our church choir is praying, so know that there are lots of Okie Presbyterians praying for your little son. We hope to see you in December. Much love from Meredith's parents, Jeanne and Gary Tesch, Norman, Oklahoma
Email:FANELLIDUMONT@AOL.COM Comments: DEAR PAIGE & JOE, I WANT YOU BOTH TO KNOW HOW PROUD I AM OF THE TWO OF YOU. AND WITH GOD ON YOUR SIDE YOU CAN'T GO WRONG. KEEP UP THE FIGHT FOR CHRISTOPHER. GIVE HIM A KISS FOR ALL OF US. IF YOU NEED ANYTHING PLEASE CALL. WE LOVE YOU ALL. AUNT ANGELA, UNCLE JOE AND GIRLS.....
Email:caroltim@erols.com Comments:Paige & Joe, What a precious little one. Christopher certainly has our prayers as you both do also. Marnie and Jeff have told us alot about your Christopher and we want you to know we will be praying for all of you - A great website and many many caring and loving people will help you through your journey. God bless. Carol & Tim Dawson
Email:spmccloskey@comcast.net Comments:Paige, Joe and especially Christopher, Thank you for posting this information about Christopher. Linda and I just want you all to know that we are thinking about you daily. Please dont hesitate to ask us for anything! We would love to help in any way. You are in our thoughts and prayers. God bless. Sean Linda Jordan and Megan McCloskey
Email:rdryer@eden.rutgers.edu Comments:Paige, Joe, & Christopher, we are so blessed for having all of you in our lives. Your strength, courage, and loving nature make you truly specially people. We know our "hokie clan" will always rise above the life challenges with which you are faced...please know that you always have our love, support, and prayers. Thank you for sharing all the wonderful pictures and Christopher's progress, it is truly inspiring!
Email:psleeman@erols.com Comments:Joe, Paige, and Christopher, Your website is wonderful and will be a comfort and inspiration to many. As your family travels down this hard road, remember that many have gone before you and would be glad to help and support. Johns Hopkins has the best and the brightest -- they will provide the expertise and you all will provide the heart. Our prayers will lift you up every day. Love, Peggy, Rick, Meg, Jason, and Allie Sleeman
Email:Dear Paige, Joe and Christopher, We love all of you guys. We don't have words to say the thoughts and prayers that are in our hearts. Please know that every single day we offer prayers for your family. As things develop-church fund, etc. we will support your efforts in material ways also. God bless you on this important journey. Love, Ann Graham(Walter's wife, Emilie's Mom) Comments:
Email:marcelo.vacaflor@cox.net Comments:Hi Christopher, Paige and Joe, What a wonderful site, for such a beautiful baby. Please let us know, since we live so close, if there is anything at all we can do for you. We're available 24/7. You are in our prayers and in our hearts. Marcelo and Kara.
Email:laynehokies@mindspring.com Comments: I am thinking and praying for all of you. I know that he will fight his way through this, like you did with yours. I hope to get to meet him soon. All our prayers, Sarah and Jimmy Layne
Email:DLParrish703@aol.com Comments: Christopher is so lucky to have two wonderful parents like you. He picked the right ones. You all are in our hearts and prayers and know that we are here whenever the need arises. Much Love Always, The Parrish Family (Mark, Dedra, Matthew & Molly)
Email:mmchick@comcast.net www.Mighty-Max.com Comments: Best wishes as you begin the transplant process with Christopher. It is very hard and very scary, but the Hurler community is wonderful and supportive. Hurler babies and their families are strong, and your Christopher is strong too (not to mention cute)! -Margaret Ciacciarelli
Email:SIMMONDS@UNOS.ORG Comments: Paige and Joe (and family) - I work at UNOS with your Mom. My thoughts and prayers will be with you and your little one and you battle his illness. Dee Dee Simmons
Email:alicecurran@charter.net Comments: I heard about Christopher this morning in an e mail from a freind and just checked into your web site. Your faith and love and courage justs flows from page to page. I live in Fort Worth, Texas and will surely be praying for all of you and get Christopher into the minds of hearts of people here and into our prayer. God's blessings and healing love are prayed for; for you and for Christopher, and all the brave little angels that are dealing with such difficult illnesses. I will keep tack through your updates, and be assured of prayers and love flowing out to you. Blessings, Alice Curran
Email: joschwa@hotmail.com Comments: Joe, Paige and Christopher... I'm thinking about you all. Just got back in the country, and hope I can help out in some way. I will be in touch. You are in my prayers. ZLAM, Jodie Schwarz
Email:orngbutrfli Comments:hey yall....im really sorry 2 hear bout lil christopher....he is such a cute baby....i wish yall the best....dont give up....yall will be in my prayers....God is by ur side....be strong...bye ps GO HOKIES!!!
Email:burkenc@charter.net Comments: Great website you guys. He's a little cutie. Hang in there. Much love, Edie's Mom (Laura)
Email:mmartire@acorda.com Comments:Dear Paige, Joseph and Christopher, Thanks to Ann I was able to go your wonderful website. My prayers are with each of you every day. I'm so happy to hear that you have a donor. Remember God is always there for you and we're all praying for you guys. Love, Mary
Email:scrubtec@cox.net Comments:Paige/Joe/Christopher, I am so happy to hear of the possible donor. I am keeping my fingers and toes crossed! Hope to see you soon. Beth and the Taylor family
Email:VTKRISTEN@YAHOO.COM Comments: PAIGE AND JOE, I AM VERY MOVED BY YOUR STRENGTH AND COMMITTMENT. I AM PRAYING FOR CHRISTOPHER DOWN HERE IN NORFOLK. GOD BLESS.
Email: meg_cantwell@yahoo.com Comments: Paige and Joe-- Laura gives us updates on you guys and told us about your beautiful Website. Christopher is so lucky to have parents as exceptional as you. He's a strong boy and has been a real trooper so far, and we just know he's going fight this latest battle and then get on with being a sweet and happy baby boy. We're thinking of you very often-- Chris, Megan, Avery, and Liam Cantwell
Email:Dhojnack@eesus.jnj.com Comments:Paige- what a precious little boy! You and your family are in our prayers. Please keep us updated on his progress as the journey begins. God Bless, Danielle, Paul, and Maggie Hojnacki (Ethicon Endo-Surgery)
Email:ForandKerrigan@comcast.net Comments: We've read the "Going to Holland" poem before -- how comforting and true is it?! We are so happy about the donor!! But so sorry (and understanding) about the insurance company! We will check in often and hope that you stay strong and well. Paul and Max Forand and Family
Email:Linda738@aol.com Comments:Dear Joe, Paige & Christopher, You are in our prayers each day. Keep the faith for as we know miracles do happen! Love you guys, Frank, Linda, Frankie & Michael xoxoxoxoxoxoxoxoxox
Email: jwalsh716@cox.net Comments: I was so very touched by Christopher's baptism yesterday. Thank you for sharing this webpage information and the precious pictures with the rest of us. I will be praying for the three of you! Judy Walsh
Email: meg_cantwell@yahoo.com Comments: Dear Paige and Joe--Laura gives us updates all the time and told us about this beautiful Website. We loved reading the story of your strong little fighter. You are an incredible family and it is so good to see that you're surrounded by so many supportive people. Please count us among them. Tell Christopher that Liam is looking for a friend other than his sister and can't wait to meet him. We'll be watching your updates and thinking of you! --Chris, Megan, Avery, and Liam
Email:rdryer@eden.rutgers.edu Comments:Paige, Joe & Christopher, Please remember that we are thinking of you this holiday, and giving thanks for all the wonderful health professionals who are taking good care of the people we love so dearly and for the gift of donor cells which will give Christopher strength!Love Always, Becca & Mike
Email:maureen1360@cox.net Comments:Dear Paige & Joe: We were at Christopher's baptism and are were so glad to learn about his special website through the church bulletin. We'll be buying subs for lunch next week for our 3 kids and praying for your strength and peace (Christopher will be fine; Mom & Dad need the prayers!) Say hi to Miss Maria for us (IFOH/CCC); she took care of our 2 oldest children. Now SHE has powerful prayer! Warmly, Maureen, Wilson, Colleen, John Paul & Christine Cook
Email: Comments: Your website has touched our hearts. Paige and Joe. My husband and I were present for Christopher's baptism and you've been in my prayers every day. I'm so glad the church included your website in the bulletin this past Sunday! I pray for legions of angels to surround your little family, to lift you up with love, and to warm your hearts with hope. Geoff and Beth Wheeler
Email: danahennesey@comcast.net Comments: Christopher is precious and is a strong little guy already! You and your family are in our prayers. God Bless ~ Chris, Dana, & Emma Hennesey
Email:threehappywilsons@yahoo.com Comments:We were lucky enough to be in church the day Christopher Joseph was baptized. Your family sat 2 rows in front of us and we were in awe of your grace and composure. He is just the cutest little guy and I feel a special connection because my son is Christopher too! You are in our prayers and thoughts. Many blessings to you and your family. The Wilsons (Janet, Bob and Chris)
Email:mcgawlj@unos.org Comments: Paige, your mom keeps us up to date about Christopher's progress. She's so proud of all of you and we think the world of her! Your family is in my prayers.
Email: Comments:This is a beautiful website. Gary and I are praying for Baby Christopher every day; our little Presbyterian church is praying for him and you, too. We hope to see you in late December. Meredith keeps us up to date on Christopher. You have a bunch of friends who love you and care for you. God bless, Jeanne Tesch
Email:maureen1360@cox.net Comments:Paige & Joe: What wonderful news about finding a donor! I know this week has been hugely exhausting for all 3 of you; may your sleep be restful once your head hits your pillow at home! Thanks again for sharing Christopher's journey with us, so that we might lift you up in prayer. Peace, Maureen Cook
Email:sgoins@NCSHA.org. Comments: I am praying for you,Christopher, and your family. As parents you must be very special people! God has entrusted you with a very special child. He's so new to the world and already touching many lives; causing people to pray like they never have before. He's causing them to think of someone other than themselves. Christopher is causing people to spend quality time with God. To be used of God at such and early age; I'm sure he will be a powerful man of God. Christopher, thank you for another opportunity of prayer. You are at the heart of God. For your family I pray their strength in the Lord, and that they will be able to see through the eyes of God, hear through the ears of God, and be lead by the spirit of God. God Bless you. Sandi
Email:ginafimbel@yahoo.com Comments: Hey guys, thanks for putting these updates on Christopher's hospital stay on the website. I know how tired you must get of explaining all of this over and over and so it is good that we can come here and read about it. You guys are amazing and so is your little Christopher. What a brave little one he is. I am looking forward to babysitting him on Sat. night!! Love you guys, Gina
Email:u know it Comments: Hey it's Terese! Sorry it took so long 4 me 2 c the sight but i haven't checked my mail in a while. I'm glad the baby is doing ok. Me and Izzy will prey 4 him..(p.s. I don't need headphones :) <- it's a smile)
Email: Comments:Dear Page ,Joe and Christopher! The Website looks good and you put in alot of time to keep us updated about my boyfriend. You and Jeo are quite the couple. Thats why I am so honored to take care of your son (my Boyfriend). We will see you next week at the Child Care Center. Love You Mss. Heidi
Email:linda738@aol.com Comments:Dear Joe, Paige and Christopher, We read the daily updates and you are in our daily thoughts and prayers. You have one strong angel there! xox Aunt Linda & crew
Email:CARINGBRIDGE.ORG/IL/AARONATHY Comments: I am praying for you and your family as you embark on what will be the most pressing journey of your lives. Don't give up hope just remember Aaron and how sometimes the things that seem the worst really won't be that bad. I am here night and day for any questions you might have. Wishing you the best of luck!!!! XOXO, Trisha Athy (Aaron's Mommy)
Email:gremlin274 Comments:Paige, it must be true that god won't give us anything that we can't handle. You and Joe are the strongest willed people I know, and I know that everything will be fine. Christopher is a little fighter just like his momma. Please let us know if there is anything we can do. You are all in our prayers. ZLAM, Nashua, Kevin, Trevor and Sydney Celata
Email: Comments:Joe and Paige, Thank you for taking the time to share Christophers news with all of us on his wonderful website.It is a great way for us to check on all of you and to see how he is doing.You are always in our thoughts.Love, Pete and Lori-Oh,keep putting in new photos!We love seeing the baby grow !He is adorable.Tell dad there should be a Christmas photo!
Email: Comments:We love the Christmas photos!Nick is too cute w/the antlers!And Christopher is beyond words!!!That is a LOT of beautiful hair for such a little guy!Merry Christmas, Love, Pete and Lori
Email:maureen1360@cox.net Comments: Dear Paige & Joe: Every new day must seem like "Survivor Island: The Parent Version", but know that there are many people who've never even met you who are praying for you and sweet Christopher. I want to pass along a verse from one of my favorite hymns, "I Want To Walk As a Child of the Light"...'in Him there is no darkness at all' Wishing you peace and light this Christmas! Maureen Cook
Email:aaronsmom1027@sbcglobal.net Comments:I hope all well for your little guy this past week. I have been praying for him day and night. I will also pray for strength within your family as you st
Email:aaronsmom1027@sbcglobal.net Comments:Sorry about the other entry Aaron hit enter on me when I was not looking. See all of the fun things you STILL have to look forward to. If all goes well and I pray that it does you too will have a healthy sneaky little boy!!!! XOXO-Trisha CARINGBRIDGE.ORG/IL/AARONATHY
Email:samdramsey@msn.com Comments:Thank you for the e-mail, I will add Christopher to my prayer list, you will find the hurler family to be very supportive and loving. Your website is great, Christorpher sounds very similar to Nolan in the begining, we ended up in PICU three times for airway issues and have had a great out come so far. My heart breaks for you and your family as you start the journey, it is long, it is heartbreaking but it is very rewarding, Pray alot and e-mail anytime you need an ear. We are in your corner. Love, The Ramsey's
Email:chmbrman@aol.com Comments:Thank you so much for allowing us to go on this journey with you. I am an Elder at SPC with your Dad, Paige-you must know how proud he is of ALL of you! Please know that our thoughts and prayers are with you and I will check back in to see how things are going. love, Sally Dunn
Email:MyRath88@aol.com Comments: We wish you the best, Mike and Stacy
Date: Wednesday, December 31, 2003
Email:CARINGBRIDGE.ORG/IL/AARONATHY Comments:I hope you all had a Merry Christmas!!! I wish you the best going into transplant. Maybe the new year will bring new life into your family. We liked to call Aaron's transplant day his Re-Birthday!!! We will be celebrating Aaron's re-birthday in less than a month and a half and look forward to helping you celebrate Christophers big day next week. Hugs and Kisses from Illinois!!!!!XOXO, Trisha Athy
Date:
Sunday, January 04, 2004
Email: parnell806@comcast.net Comments: As a member of Salisbury Presbyterian Church, I am involved in Congregational Care and have the privelege of compiling the prayer list for the adult Sunday School classes. I have been praying for Christopher and you both since he was born, and Paige's mom and dad have kept our church family informed of his condition. I've just become aware of this beautiful web-site which will be a blessing to us in Midlothian as we continue to pray. Glad to meet fellow Hokies; my husband and I met there and are graduates of the class of '78. We celebrated the 25th anniversary of our graduation at the Miami game! Talk about Hokie Pride!! God bless your sweet little boy! And his mom and dad, extended family, and friends. I'll keep praying and do consider each hit of this site a prayer! Love in Christ, Liz Ann Parnell
Date: Monday, January 05, 2004
Email: Comments: Thinking of you all and praying that Christopher will maintain strength throughout these days. God bless all the caregivers. Take care of each other. MBeitner, SPC
Date: Monday, January 12, 2004
Email:icmsterry@aol.com Comments:Dear Joe, Paige and Christopher, We are the Phil Saccomanno family of Tampa, FL. Phil and Grandpa Joe Miggliozzi are first cousins, and Joe and Ann are special friends as well as family. We have been following Christopher's story the past few months through Joe and Ann, who directed us to this amazing website you have created. We just wanted you to know that are thoughts and prayers are with you daily, and we applaud your faith and perseverance as parents. You all are an inspiration. God Bless and Keep you. Phil, Terry and Tricia (age13) Saccomanno
Date: Monday, January
12, 2004
Email:jennmarie@bis.midco.net Comments: I just learned of your beautiful son through Aaron Athy's website. I will be watching and praying for him too. My daughter, Allison, was diagnosed with Hurler Syndrome on Jan 8th 2003. She started ERT in May and is doing VERY well! Thank God! We have been very lucky to receive a lot of support from other MPS families and I know you will receive the same support. I wish you the best! Love, Jennifer Restemayer www.caringbridge.org/nd/allison
Date: Tuesday, January 13, 2004
Email:CARINGBRIDGE.ORG/IL/AARONATHY Comments:When Aaron was going into transplant and I was completely terrified my mother would always tell me "sometimes you have to let go and let God". I know how scared you are right now but you will not believe the amount of strength God is going to give you over the next few weeks. I will be praying extra hard for you tonight. Give Christopher lots of Hugs and Kisses from Aaron and myself!!!! XOXO, Trisha Athy (Hurler's Mom)
Date: Tuesday, January 13, 2004
Email: selboc@aol.com Comments: Hi there little Christopher... you are quite the cutey pie. I learned of you from Aaron's website.. another Hurler child I check on regularly. You see, Hurler has been a huge part of my life in the last year and a half as my son, Reese, was diagnosed August 2002 at 6 months of age. ERT was not yet approved so we went straight for CBT at Duke. Reesie Cup's transplant was a success but unfortunately, we lost him to pneumonia T+95, March 10, 2003. It saddens me to no end to learn of yet another sweet child being diagnosed with this horrible disease but I'm glad you have educated yourselves and are preparing to do what is best for Christopher. I'll make sure my ^^REESE^^ is watching over your little one - and you, too! I also kept a journal of our transplant life and you're welcome to visit it at www.caringbridge.org/nc/reesecup. God Bless and keep little Christopher safe in His arms, as well as mom and dad...
Date: Tuesday, January 13,
2004
Email:arhimes@msn.com Comments:Dear Paige and Joe, My heart is with you as Christopher starts his chemo. I remember the night my Andrew started chemo. It was tough. Although I knew nothing would happen right away, I still sat there watching him as if I expected his hair to fall out immediately or something. You are so lucky to be transplanting so early and so close to home. We live in Boonsboro Md (so we are neighbors) and we transplanted at Duke about 2 1/2 years ago. Andrew is doing really well and you can check in on us at www.caringbridge.org/page/andrewh My God bless you with strength and peace of mind. Anne P.S. I also had open heart surgery!!! We'll have to compare notes.
Date: Tuesday, January 13, 2004
Email:mmchick@comcast.net www.Mighty-Max.com Comments: I know how scared you are feeling right now, and I want you to know you have many people pulling for Christopher and for you. He is a beautiful, strong boy. We will check on you often and keep your family in our hearts.
Date: Wednesday,
January 14, 2004
Email:caringbridge.org/page/tommyries Comments:great web page...i'm the father of 2 hurler kid's(Tommy and Kaitlyn)and believe me you are doing the right thing...sounds like you have a strong family and plenty of support...we will be checking on Christopher...praying that everything goes well...we are in Minnesota going thru Kaitlyn's transplant now...she is on day #53 and so far everything is going good...just stay strong because like you said he is in God's hand's now!!!!
Date: Thursday, January 15, 2004
Email: samdramsey@msn.com Comments: We are thinking of you as things get going. The Chemo really is the easy part. We will be praying for a smooth ride. Can't wait to hear about day 0!!!! The day new life begins! Nolan sends a big hug to Christopher! Love, The Ramsey's
Date:
Friday, January 16, 2004
Email:selboc@aol.com / www.caringbridge.org/nc/reesecup Comments: Number ONE - don't get too upset if Christopher loses interest in walking and playing. He's a very sick little boy and he needs as much rest as possible. There were many days when my little Reesie Cup would just lie there looking at the ceiling but that's what he needed. He loved to watch and listen to Baby Einstein videos so they were pretty much playing in the room constantly. Remember, this little guys is going through hell right now... Reading some of your journal so far takes me back to Reese's... the puffy face the day after surgery.. I have a picture on his York site that probably looks very similar to Christopher right now. We just figured it was from the fluids they had to administer during his line surgery. Christopher is young and has plenty of time to bounce back when in the next couple of years. I only ask that you don't try to push him... This advice is just from someone who's been there.. please don't take offense. Christopher holds a very dear place in my heart, as well as all the other Hurler babies I've come to know, love, and even lose... God bless....
Date:
Saturday, January 17, 2004
Email:maureen1360@cox.net Comments: Dear Paige & Joe: With everything you have on your mind and heart, it's incredible that you are able to keep us updated so well via this special website; thank you so much for keeping us posted on sweet Christopher. Your church family is praying for all of you! We look forward to Day 100+ when we can welcome you back on Sunday (you'll have to come to all 3 services!) Warmly, Maureen Cook
Date: Sunday, January 18, 2004
Email:Jagators24@msn.com Comments:Christopher, Stay strong!!!Mom and Dad do the same...I have 3 children..2 have MPS1...Tommy is 5yrs. post BMT and Kaitlyn is 9 months old and we are +56 post BMT...We live in Florida but right now we are in Minnesota till Day 100...Kaitlyn was 7 months old for her BMT and Tommy was 23 months old...If I can help in any way please contact me....My childrens webpage is www.caringbridge.org/page/tommyries Take care and get some rest!!! Susan Ries
Date: Sunday, January 18, 2004
Email: Comments:We have just sent you an Email 1/18/04 and hoping some wallpaper will begin to come in-- With the strength of you two and Gods help, Joseph will come around a winner---May God Bless--- Mema & Papa Meeler
Date: Tuesday, January 20, 2004
Email:CARINGBRIDGE.ORG/IL/AARONATHY Comments:I am sorry to hear that things are off to a rocky start!! Once all of that yucky chemo wears off it should be smooth sailing!!! I am praying for your little angel day and night!!! He is going to do just fine and come out on top!!! Hugs and Kisses from Aaron and his Mommy!!!!!!!!!!
Date: Wednesday, January 21, 2004
Email:www.mighty-max.com Comments:Dear Christopher,Good luck on transplant day.GROW CELLS GROW !!!!!Sending prayers from Chicago...Mighty-Max's Granny... Judie Sweeney
Date: Thursday, January 22, 2004
Email:liz.stulga@att.net Comments:Dear Paige and Joe, I met you last week at your home with something from the church. You all have been in my prayers! You and this web site are amazing! Keep strong-together! Keep faith, I know you will--you both know this is your journey! Good luck today..thinking of you and sending good vibes. God bless you --Elizabeth
Date:
Thursday, January 22, 2004
Email: kris@mpssociety.org Comments: Just wanted you to know I'm praying for Christopher and your family. God Bless! Kris (mom to Kraig, MPS II)
Date: Thursday, January
22, 2004
Email:CARINGBRIDGE.ORG/IL/AARONATHY Christopher must really hate that central line!!!haha!! Well I hope that things take a turn in the right direction and you guys can celebrate a new life today!!!! You should ask the doctors if Christophers blood type is going to change after transplant. Aaron went for blood type A- to O+!!!!! He may be our flesh but he isn't our blood anymore. No matter, we love him even more!!!!! Wishing you a safe and happy transplant!!! XOXO
Date: Thursday,
January 22, 2004
Email: Comments:. .Dear Paige and Joe: It is now 9:50 a.m. on Thursday. I have just finished reading all of your updates and am aware of the transplant scheduled for this afternoon. I just wanted you to know I have never known anybody who has had to endure more than all of you. I feel privileged to know you and want you to know my prayers, my heart and spirit are with you all today. >Preston
Date:
Thursday, January 22, 2004
Email: asunne@hotmail.com Comments: I know that everyone - friends, family, even those who don't know you personally - are out here eagerly awaiting every post, hoping and praying for word that Christopher is on the way to becoming a healthy little man! May you draw even more strength, hope and courage from all of us who care about you! A big hug and lots of happy thoughts, Ange
Date: Thursday,
January 22, 2004
Email:arhimes@msn.com Comments:Dear Paige and Joe, We just got back from our check-up at Duke. I am so sorry that you guys are having such a tough time. I hope they will get all this stuff worked out and that the transplant will go much smoother. Please feel free to write or call us at any time if you need to talk. 301-432-5745. We will keep checking in. Love, Anne
Date: Friday, January 23, 2004
Email:willijs@erols.com Comments:Praise the Lord - the transplant has been done! May the healing begin! Paige and Joe - I marvel at your strength. May this transplant truly be the blessing and miracle you all deserve. Betty Williams Salisbury Presbyterian Church, Midlothian
Date: Friday, January 23, 2004
Email:arhimes@msn.com Comments:Happy Birthday Christopher!!! I am so glad that you were able to get your BMT today. I hope those cells grow real soon and that you feel better. Love, Anne
Date: Friday, January 23, 2004
Email:dslevin@adelphia.net Comments:Way to go Christopher! Grow cells grow! We are praying for engraftment and a quick return of your white blood cells. Keep up the great work and know that you are in our thougths and prayers throughout this process! Dana Slevin (Mighty Max's aunt)
Date: Friday, January 23, 2004
Email: Comments:Hello Paige and Joe, We're so glad to hear that the transplant has been completed! We think about you and pray for you often. Christopher is such a beautiful baby! We wish for you continued success with this treatment and that you can all come home soon. Love, Betsy & Winston Moss
Date:
Friday, January 23, 2004
Email:vtkristen@yahoo.com Comments:Paige, Joe, and Christopher, I am so excited for you all and I am keeping my fingers crossed and my prayers going that everything is going to be all right. Kristen Saunders Norfolk, VA
Date: Friday, January
23, 2004
Email:Beccao@comcast.net Comments:My prayers are with you! I love Christopher's grandparents Lin and Karen... Becca Ott
Date: Friday, January 23, 2004
Email:mmchick@comast.net www.Mighty-Max.com Comments: Happy Birthday Christopher! Grow cells grow!
Date: Saturday, January 24, 2004
CARINGBRIDGE.ORG/IL/AARONATHY GROW CELLS GROW!!!!!!!!!!!!!!! I hope the poor little guy does okay over the next couple of weeks!! We will be praying for you every chance we get!!! XOXO...Trisha and Aaron Athy
Date: Saturday, January 24, 2004
Email: Comments:Paige, Joe and Christopher: Praise God that the transplant was successful. Now we are all praying for the cells to grow with God's healing touch. Grow cells, Grow!!!!!! I pray that Christopher remains healthy during this very critical period when his little body has very little immunity. I just read the various e-mails, and know that the LORD is drawing so many people close to him through Christopher. We will never understand why question, but we know that his Grace is sufficient under all circumstances and his death has bought salvation for all mankind. I pray in the powerful and precious name of JESUS for all of you. Much love....Gai
Date: Sunday, January 25, 2004
Email:www.caringbridge.org/canada/carter Comments:Just wanted to let you know that your family is in our thoughts, especially little Christopher. Bernie and Kristi
Date: Monday, January 26, 2004
Email:rdryer@eden.rutgers.edu Comments: So glad Christopher had a good weekend after the transplant party! We are also praying every second for him and your family. You know I truly believe in the powers of both faith and science...with these in your corner we know Christopher's strength and cells will keep growing. Love you all. Becs
Date: Monday, January 26, 2004
Email:caringbridge.org/il/aaronathy Comments:Worry ends when faith in God begins.
Date: Monday, January 26, 2004
Email: Comments:Hello....I have 3 children and 2 of them have Hurlers..Tommy is 5 yrs. post BMT and Kaitlyn is +65 days post from BMT....Their webpage is www.caringbridge.org/page/tommyries I wish Christopher a full recovery and if their is anything we can do let us know...I have a few good ideas about taking care of the butt while going thru BMT...It breaks down because of the chemo...Right now we are in Minnesota but live in Florida...My email is Jagators24@msn.com My prayers are with ya'll.....Susan Ries
Date:
Thursday, January 29, 2004
CARINGBRIDGE.ORG/IL/AARONATHY I have been praying for you day and night!!! Christopher is at the hardest part of the journey (feeling the effects of chemo). We were aways told that in most cases the children start feeling much better around day +14 and it was true for Aaron. I know how you feel about his hair falling out. We always prided ourselves on having a child with such long beautiful locks. It was a shame to have to shave it off but the good news is that IT GROWS BACK FAST!!!! So if Christopher's hair falls out I encourage you to take some time to rub that bald head against your check as you are rocking him to sleep!!! It's a feeling you'll never feel again!!! I will be checking in on you again and again and again until your angel baby is safe at home!!!! XOXO Trisha Athy
Date: Thursday, January 29, 2004
Email: Comments:dear joseph and paige, have been keeping up with christophers progress on this site. my husband and i are praying daily for christophers recovery.he is a darling little boy. sorry we dont live closer, but this site makes it easy to see how youre all doing. stay strong, with love, elena
Date: Friday, January 30, 2004
Email:arhimes@msn.com Comments:Hang in there baby. These dark days come to all BMTpatients and hopefully they will be gone soon and the sun will come out. Mommy, please don't feel like you are over reacting to the hair. Sometimes something like that, that is close to a mommy's heart , just represents so much and losing it is just the last straw in a very tough week. The day Andrew lost his hair, I sat in his little room and called an old college friend to pour my heart out to. It just seemed the thing to do. We all know what you are going through. Love, Anne
Date: Friday, January 30, 2004
Email: selboc@aol.com Comments: Paige, I, for one, know the pains and struggles having to watch your child suffer thru chemo and transplant. I agree that you have to live hour by hour. The hair falling out really makes it all real... the mouth sores, the fevers, but think of these fevers as a good sign that the new cells are taking over. I continuously check on you guys and am thinking about you. Hang in there little buddy. Let's kick some transplant butt!!! love, Shawn, Taylor, and ^^REESE^^ Coble www.caringbridge.org/nc/reesecup
Date: Friday, January 30, 2004
Email:mchecko@nmdp.org Comments:Dear Christopher, My name is Mike and we've never met, well, at least not in person. Various circumstances have brought you into my life and this email brings me into yours. Isn't technology a blast! When I saw your pictures, I couldn't help but fall in love with you and your smile. You seem so happy, even though you are going through so much. I just wanted you to know that I am praying for you and will introduce you to the kids I teach on Saturday nights at Children's Church. They're a little older than you and are real prayer warriors!! Soon you have about 40 new friends that will be praying and pulling for a speedy recovery!! Wishing you well from Minnesota - it's 20 below outside, but we're warmer on the inside because of you! Love, Mike
Date: Friday, January 30, 2004
Email:ltjpost@cox.net Comments:Dear Parents of beautiful Christopher, I don't know how I've missed your son's site! I'm usually pretty good at keeping up with the sweet Hurler children. Thanks to Aaron's site I found you tonight. Please know that I will be praying very hard for your little boy. My good friend's little girl has Hurlers also and had undergone a BMT in MN a few years back. I know how scary these early transplant days are. Hold on to your faith and know that God is right there with you holding His hands out to comfort you when you feel so stressed and worried. These Hurler children are very strong! You are doing the best thing for your son to ensure a healthier and longer life! He is so beautiful! I know it's hard to watch him go through all this and losing his hair is sad. But, his hair will return and well as his bubbly personality! My prayers are with you and I chant GROW CELLS GROW from Connecticut! Lisa Post
Date: Saturday, January 31, 2004
Email:http://www.verbinnen.net Comments:Hello, as a Hurler family ourselves, we follow Christopher's journey. Hang in there and be strong. I know it is scary, we've been there. But sometimes everything just falls in place. We are now 6 months post transplant, and every day with our daughter is a gift. Be there for Christopher. Love him with all you heart. Hurler kids are amazingly strong, and though at times you ask yourself how much more they can take, they just take it and pull through. We are rooting for young Christopher. Love from Belgium. Alex, Anneleen & Yasmine Verbinnen - De Proost http://www.verbinnen.net
Date: Saturday, January 31, 2004
Email: Comments:Jim & Paige: "Cast your cares on the LORD and he will sustain you"..Pslam55:22 I have been reading Christopher's daily updates daily. I cannot imagine the very difficult and anxiuos times yoy all are going through, especially on Jan. 29th. I have been praying daily that the LORD will grow the cells quickly and that He will remove the infections (kidney) and stabilize the scary situations with Christopher's temperature and blood pressure, etc.,). I have shared Christopher's story with of my Christian friends at work and have asked them to pray for him. May our Lord Jesus be with both of you and especially Christopher and may His Grace carry you during the coming days and weeks. May many come to know Him as their Lord and Saviour through Christopher. With all my love....Gai
Date: Sunday, February 01, 2004
Emailjudithsween@aol.com Comments:We are all praying for Christopher in Chicago.Our Hurler babies are strong and so very special...Love,Mighty-Max's Granny
Date: Monday, February 02,
2004
Email: selboc@aol.com Comments: Paige - I know this is hard but you're doing the right thing in prayer and being there for your precious son. No amount of reading or even talking to someone about transplant life can prepare you. You have to live to understand it... I check on you and your family every day and pray for his speedy recovery with very little setbacks... You've got lots of folks praying for Christopher, too! Hang in there, keep your chin up, hold your child which ever way you can and thank God every day for your baby! We love you.... Shawn, Taylor, Angel ^^REESE^^
Date: Monday, February 02, 2004
Email: amy.williamson@inova.com Comments: My daughter is in the infant room at Fair Oaks. Christopher is such a beautiful little boy!! Heidi told me all about her visit and posted pictures in the room. Please let Heidi know of anything you or your family needs. And keep us updated.
Date: Monday, February
02, 2004
Email:ltjpost@cox.net Comments: I'm continuing to keep Christopher in my prayers. Lisa Post
Date:
Monday, February 02, 2004
Email:owcc42@yahoo.com Comments:Hi! I'm Trisha Athy's dad. Aarons papa. There is more people checking in and praying for you then you think. Love and prayers The Robertsons, Bob, Connie and Aarons' aunt Bobbie
Date: Tuesday, February 03, 2004
Email: Comments:Every time I think of little Christopher I stop and say a prayer. Christopher and his family are in my thoughts quite often each day. I always feel God's presents when I pray for him. Erma Edmiston
Date:
Friday, February 06, 2004
Email:ltjpost@cox.net Comments: Grow Cells Grow!!! Adenovirus...go away!!! Kidneys stay healthy!!!! I think I covered the most important chants for the day!!! Christopher continues in my prayers! Lisa Post
Date: Saturday, February 07, 2004
Email:CARINGBRIDGE.ORG/IL/AARONATHY Comments:I had a feeling Christopher would start feeling better soon. I am sorry to hear about that virus but try not to worry too much Infection Control knows what they are doing. I can't wait to see some more pictures of the new and improved Christopher and his bald head!!! You guys will be truckin' right along now!!! XOXO, Trisha
Date: Saturday, February 07, 2004
Email:judithsween@aol.com Comments:Please know that we are all praying for Christopher here in Chicago...Love Mighty-Max's Granny
Date:
Saturday, February 07, 2004
Email:islandprincess#quiltsoflove.com Comments:Hello Sweetie...I am from Quilts Of Love and I am here to welcom you to our family of loving friends. We are so honored to be making your quilt of love and hope you and your family enjoy it. Warm Hugs, Angel Island Princess
Date: Saturday, February 07, 2004
Email:wellsdvm@earthlink.net Comments:Paigie and Joe, I love Christopher's website and love all three of you even more. I am praying for him and for you in this battle and think of you often. Grace says hello and wishes she could meet Christopher. Frye and I hope to see you in the coming months. Love, Maggie
Date: Saturday, February 07, 2004
Email:Liefhouse@aol.com Comments:WOW!! 637!! What a trooper!! Christopher is quite the little guy!! We will continue to pray for strength and good numbers!! God Bless. Lori and Kevin Greenlief
Date: Sunday, February 08, 2004
Email:sshaiko@cox.net Comments:Joe, Paige and Christopher: We are in awe of the power of our Saviour! All praise to the inspiration given to the medical and support staff. May our Lord Jesus continue to bless you all with strength and courage as you continue progress toward the goal of "NORMAL and HEALTHY." Barb and I are blessed to be a small part of your lives and are proud to share in the heroic efforts of Christopher. He (and you both) are an inspiration to us all. Grace & Peace
Date: Sunday, February 08, 2004
Email:dslevin@adelphia.net Comments:Paige & Joe - It sounds like your family and friends are rocking the heavens with some serious prayers. Congratulations on Christopher's baby steps toward engraftment! Keep looking at the light at the end of the tunnel. You are all awesome! Dana Slevin & family
Date: Monday, February 09, 2004
Email: Comments:Dear Joe and Paige, Pete and I checked up after work yesterday.We are beyond thrilled at Christophers progress!God is answering all of our prayers for our little baby!Joe,it is camera time!We want new photos of the baby.Hey,he has no hair,so he looks like his Uncle Pete!LOL.Maybe soon we will jump in the car and take a ride out.We will throw you two out to dinner so we can visit with the baby.:-) Lori
Date: Monday, February 09, 2004
Email:walkerlj@unos.org Comments: My name is Lauri Walker. I work at Unos with Paige's mom Karen. I just found out about Christopher last week. What an incredible challenge and yet, what a miracle at the same time. My little girl Katie is 3 1/2 years old. Every time I hug her, I thank God for having her in my life. She has been my blessing as well because she has taught me so much about being a mother. Please know your family will be in my prayers.
Date: Monday, February 09, 2004
Email: JCMiao@aol.com Comments:I am a friend of Grandpa Joe's and have been following Christopher's progress with great interest. My prayers are with Christoper, Paige, Joe, his great grandparents, grandparents and growing extended families. My nephew, Darryl, is a JHU grad and currently a resident at Dallas Children's with a specialty in neonatology. I have shared this website with Darryl. I am sure he will be interested in following Christopher's progress as well. Paige, you are making a marvelous contribution by maintaining this website. This will serve as a great learning tool for the physicians as well as to keep all the family and supporters informed. Bravo! Keep those counts going up, Christopher. We are all pulling for you! God bless the entire Migliozzi Family, Judy Miao
Date: Monday, February 09, 2004
Email:corsmovt@aol.com Comments:WOW!!! It was so thrilling to log on today and see those numbers from yesterday!!! I told you that beautiful little man of yours was keeping the Guardian Secretaries on their toes with the bundles of incoming prayers!! Its no wonder his ANC tripled overnight! :) April, Jeremy, & Ava
Date: Monday, February 09, 2004
Email:benchs63@bellsouth.net Comments: God is so good, all the time! The wonderful manifestation of His glorious, healing power has become evident in Christopher. Stay strong in His might and know that the Joy of the Lord is your strength. I can't tell you how happy the news made us. We knew Christopher would rally but our human emotions got in the way. Christopher has a wonderful mission on this earth that the Lord has planned for him and he will grow to complete it. We love you and know that you are constantly in our prayers and thoughts. Group hug to all of you. Love in Him, Aunt Terry and Uncle Bernie and the rest of the clan in Georgia.
Date: Monday, February 09, 2004
Email: Comments:HI Paige, I have been asking at work how things are going with you and Chris,Sabine gave me this webb page. Please know that I think of you often and are praying for Chris every day.Take care. Jane Ledington/Anesthesia Dept. Innova Fairfax.
Date: Tuesday,
February 10, 2004
Email:hallen@iliant.com Comments: Dear Paige and Joe: I look at your website often and pray all the time for the baby. God bless all of you. Paige, you do not know me, but I know Joseph from LeCroy as I worked with Joe's dad. What wonderful, patient parents you both are. Waht a marvelous little fella you have. Helen Allen cabernet817@hotmail.com
Date: Tuesday, February 10, 2004
Email: Comments: Paige, Joe, and Christopher-- We are keeping up with Christopher's progress by reading your journal, and are continuing to keep your family in our thoughts and prayers. Stay strong! Take care, Emily and Tim Jones
Date: Friday, February 13, 2004
Email: Comments:Joe,Paige,Christopher: We praise God for all he is doing. I pray that the doctors will be able to resolve the GI problem soon. May our Lord Jesus continue to give you His GRACE that will carry you day by day. With all our ove...Pat and Gai
Date: Friday, February 13, 2004
Email:benchs63@bellsouth.net Comments:Dear Paige, Joseph and Christopher, This is just another rough patch, and you have been through many. Just as the other crises passed, this too shall pass. Our church and other friends keep Christopher and you in their prayers. You all are in the constant presence of the Lord through prayer. May Jesus wrap you all in His Loving Arms and carry you as you rest in His Love during this crisis. We love you, Uncle Bernie, Aunt Terry and the Georgia clan.
Date: Sunday,
February 15, 2004
Email:hscottrn@verizon.net Comments: Dear Christopher, Mom, and Dad: I'm so sorry to hear that you aren't feeling well. Everyone on the PCRU is constantly asking about you, checking up on your progress. You are all in my prayers. Hope that the ride is soon heading up-hill. Love, Heather
Date: February 27, 2004
Time:
10:56 AM
Email:CARINGBRIDGE.ORG/IL/AARONATHY Comments:We are so HAPPY to hear that those silly old Hurlers cells lost the WAR!!!!!!!!!! Make room for the new and improved Chirstopher!!!! He is going to knock you socks off!!! GROW CELLS GROW!!!
Email:hokiern@m3tc.com Comments:
Email:hokiern@m3tc.com Comments:The fourth graders at Carlton Hills Christian School in Santee, CA are praying for Baby Christopher to get better. Mrs. Ginny Rodriguez gkrodriguez@yahoo.com
Email:beni971@bellsouth.net Comments: Christopher, Paige, Joe...Please know that you are all in our constant prayers. Just a thought...there is generally no vegetation growing on the mountain top, the lush vegetation is in in the valley. May Jesus be your constant companion as you travel the valley. We realize Paige how difficult it is to write the daily updates but they keep all of us posted. We can cheer with you and cry with you, so hang in there your communication with all of us through the daily update page is priceless. Love and hugs to Christopher, Paige and Joe. Aunt Terry, Uncle Bernie and the Georgia clan.
Email:dmcstark@aol.com Comments:Paige I met your Mom at Stein Mart today and she told me all about Christopher, I was not aware that you and Joe were in such a crisis and of course I am over whelmed and even more so after reading the web site. You are all so brave but non as much as Christopher! Paige you are such a strong soul that I know you are the best Mom this little guy could have. We sill keep you all in our prayers. I am going to give the web site to Laurie, we are planning her wedding right now to a great guy from Raleigh she met in college, July 24 will be the big day just a couple months before Lindsays. Again we will pray for his speedy recovery from the transplant and hope the ear infection clears quickly. Diane Stark
Email:www.draee67@aol.com Comments:Our Prayers and thoughts are with you all. My daughter is 17months and we are on day-4 to transplant here at Childrens Memorial in Chicago. Be strong Christopher. Denna www/caringbridge.org/il/niki
Email:sophie@melroseroad.co.uk Comments: Hi, sorry to hear that Christopher has GVHD. We just wanted you to know that our Sophie had GVHD grade 4 of the skin and has now almost fully recovered so there is always hope. She now only has occasional small rashes on her hands and feet which respond well to steroid cream. We hope that Christopher responds well to his new medications. We are checking in on you everyday and you are always in our prayers. Padraic & Tina
Email:chriscln@erols.com Comments:My heart aches for your family and my mind is full of constant prayer for all of you. You have such strength and courage and most of all, faith. Hang on, tomorrow will be a brighter day. The Campbell Family, Chris, Lori, Nicholas, Caitlin, Brody and Kellen (CUMC)
Email:ltjpost@cox.net Comments: It's ok to have a down day or two and feel your prayers are going unheard. Let me assure you that no prayer is unheard. It's just that sometimes our worries and fears stand in the way of experiencing God's supportive answers. He is with you, He is listening, but He also wants you to trust Him. It might be Him speaking through someone else, or a song you hear, or a thought or feeling you have. He has not abandoned you and He has not abandoned Christopher. "Let not your hearts be troubled. Trust in God and Trust in Me." John 14-1 That verse helps me everytime I start thinking I can't handle what is being asked of me. It is also a load off my shoulders to know that I am not alone. He really can handle things for me if I let go and let Him. Christopher will recover from his GVHD. I know you are scared he has it, however, I am always more worried when post-transplant Hurler children don't show any signs of that dreaded rash...usually you find out they haven't engrafted. So it is a double-edged sword. In one respect it's a good sign he has it....what to pray for now is that it doesn't worsen and it doesn't go beyond his skin. He continues to be in my prayers! Hang on for the ride and DO NOT loose your positive outlook!!!! Lisa Post
Email:daisy@vanopstal.com Comments:Paige and Joe, Your entire family is often in our thoughts and prayers. Daisy trys to check your updates at least once a week and was so sorry to hear about Christopher's current GVHD setback. However we truly believe that it will be only a temporary setback as we know what a fighter and a miracle child, he is. We are sending a big healing hug to you all. With God all things are possible. Warmest thoughts, Daisy, Bill, Will and Molly van Opstal
Email: Comments:H I , I check every day to see how Christopher is doing ,so glad things went good today , i know it is not easy when your baby is sick ,i will say a pray for all of you ,my grandson also had hurler;s so take care ,love stella carters grandma.
Email: Comments:H I , I check every day to see how Christopher is doing ,so glad things went good today , i know it is not easy when your baby is sick ,i will say a pray for all of you ,my grandson also had hurler;s so take care ,love stella carters grandma.
Email:selboc@aol.com Comments:
Email:selboc@aol.com Comments: Paige, I feel your pain... wanting so desperately to get back to a 'normal' life. I remember wanting to take ^^REESE^^ home and get out of that blasted hospital room. But, PLEASE, don't rush it. You have no idea how many times I'd wished they would have kept him in that hospital just two more weeks - - maybe then he wouldn't have caught that virus... I don't know. I DO know this... stay until you KNOW he's ok. Watch what you wish for... I remember wishing I could just sleep in my own bed and I got that wish too soon... because I did not have my little ^^REESE^^ to snuggle in that bed with me. I'm not belittling your grief in being trapped in a hospital room.. I'd give anything to be stuck in a 10x10 room as long as my son was still here. Just be patient and let Christopher determine when it's time to be released. It will be a year this March 10 since ^^REESE^^ went to be with the Lord and I hope you NEVER have to live with losing Christopher. He's a special little lad and I pray he does OK.. and YOU TOO! Although I don't sign everytime I visit, I do visit every day! Hang in there and keep your chin up.. Sending hugs from NC... Shawn Coble mother of ^^REESE^^ @ www.caringbridge.org/nc/reesecup
Email:www.caringbridge.org/il/tonythetigre Comments:Hi Paige and Joe, My name is Gina. My son also has Hurler's. I justed wanted to let you know you are in my thoughts. Gina
Email:beni971@bellsouth.net Comments: Dear Paige, Joe and Christopher, I know you've heard this many times before, but it's worth repeating--everything is going to be allright! God never starts something He can't complete. You are conquerors...conquer means "to get the better of in a competion or struggle, to master, prevail over, to crush" Jesus gave us more than a ticket to Heaven! Through Him we are more than conquerors over whatever this world throws our way. Through Him you have overcome, mastered and prevailed over this world. Victory means "final and complete supremacy or superiority in battle or war, success in any contest." You are victorious and the evidence will soon be made manifest in Christopher. May the Prince of Peace grant your family His Peace and Comfort as you continue in His Word. God Bless you all. Love, In Him, Aunt Terry and all.
Email:selboc@aol.com Comments: Just dropping by - as usual - to read about Christopher's latest adventures. I got a kick out of reading about your travels to the light therapy. I remember trying to just get Reese out of his room to the rocking chair out in the hall.. I can't imagine trying to get him to another building! I'm also VERY thrilled to hear about his 100% engraftment! That is such wonderful news. And the crankiness - that could be the female in him now!! LOL that's what we always said when Reese was fussy! I remember some nights when all he did was scream and scream.. and NOTHING could satisfy him.. I guess he was just SO miserable. But that didn't last that long so there is light at the end of this moody tunnel. Thanks for doing such a great job with your updates. Christopher has become a part of my regulare routine... he's the first one I check on in the mornings now - after I check Reese's site. You all are certainly in my thoughts and prayers. Please give Christopher a big Snoopy kiss and hug from North Carolina. God bless....
Email:arhimes@msn.com Comments:I am glad that the GVHD is looking better. I am glad you are down to one pole. We never had two but I remember how sad it made me to sit out in the hall and see another pole being rolled into a child's room. I knew it ment that he was very sick. As to traveling with a pole, that I know about. We had red cars the kids could sit in and be pushed with a handle. It was a real art to get that thing moving along with the pole. It took a little fancy foot work and some hip action. I hope things will be getting easier and I am glad you are keeping your sense of humor. Love, Anne
Email:arhimes@msn.com Comments:I missed your engraftment news on Fri.CONGRATULATION!!!!!!! Yea, Yea, Yea. It sure makes everything else easier to take. I am so happy for you. Love, Anne
Email:beni971@bellsouth.net Comments: Hey precious ones, we are with you in spirit...I realize you have nothing earth shattering to report but that is good news. The counts look very good and I didn't read anything about the skin so it must be better. We're so proud of all of you, you have really been through the mill but you are hanging in there. Know that we continue to lift you up in prayer before the Throne and God will continue to bless you and keep you strong in His might. All our love, Aunt Terry et al.
Email: Comments:Paige and Joe, We think the doctors really gave Christopher some Energizer bunny juice in those I.V. bags!His hair has to grow in a Halo shape,to remind everyone that he REALLY IS an angel!LOL.Glad to see that his skin is clearing and he is doing better.Hang in there, Love,Pete and Lori
Email:padraic@melroseroad.co.uk (Sophie's Dad) Comments: What a wonderful update. I am so happy that the GVHD has improved, it is nasty stuff. Hope you can all get some sleep soon. Padraic (Sophie's Dad)
Email:arhimes@msn.com Comments:I am so glad that things are going better. Watch the potassium levels with the bananas. Maybe he isn't getting enough to do anything but the first thing Andrew did when he got out of the hospital was to eat a 1/2 a banana (we were so excited) and his potassium level went right through the roof. Ahhh. Oh well, they will let you know. It sounds like things are moving in the right direction. Love, Anne
Email:CARINGBRIDGE.ORG/IL/AARONATHY Comments:The blessing just keep flowing in!!!! It's kinda weird to think how happy we are when our child starts making his own blood and plateletts!!! See it is true, we will never take our Hurler babies for granted!! Everything they say and do now will be a miracle in our eyes!!! We are the lucky ones because God choose us to see something very few people will ever see, his MIGHTY POWER!!!! Well, I hope you guys get to bust out of there soon. I WILL KEEP MY FINGERS CROSSED!!! XOXO, Trisha
Email: Comments:Paige and Joe, something good is happening....I can just feel it. Jinx is a good word in my family, my sister, Jinx, was born on the 13th, and just maybe your little guy will be out of there on the 13th.. Love, Denise
Email:beni971 Comments:Dear Paige, Joseph and Christopher, Things are starting to look up. I wish you could get a photo of Christopher wearing his shades. It is so great that you both have a good sense of humor. Sometimes a sense of humor is all we have during times like this. I feel that the worst is over and as each day passes more and more progress will be made. I do hope you can get some rest now that Christopher is beginning to sleep. I have to chuckle about the bananas--everyone loves them why not Christopher. He has good taste. Hope you both get an opportunity to rest some tonight. I prayerfully await the morning report. All our love, Aunt Terry et al
Email: Comments: Just wanted to say that we are thinking about you all the time. I hope that you got the pictures we colored for you for his room. It was so long since I colored a picture but it felt great because I knew that it was going to brighten up his room. I am going to try to make a trip up there soon. Andrew is a hand full right now so it makes it hard. My prayers and thoughts are with you guys. Love Sarah, Jimmy and Andrew Layne
Email: Comments:Good Morning to you all, We figured that you couldn't do an update because you are too busy moving!Whether or not today is discharge day --Christopher is doing very well and we are all excited about the day he actually does go home--to your home in Virginia. From the time frames we read before treatment started, it seems like you are all right on target. Christopher truly is a miracle baby and we know the Lord will see you all through as Christopher's body manifests the healing power of God. Stay strong and know you are always in our hearts and prayers. Love, Aunt Terry et al
Email: Comments:
Email: Comments:Hi All, We're thrilled you are discharged today! I'm sure you both feel very apprehensive about taking your precious Christopher home. Just remember, he's been in God's Hand thus far and you all will continue to be nestled in the bosom of the Lord, so you are simply changing "addresses". Our prayers continue to go forth on your behalf and as a favorite church song goes, "...He didn't lead you out this far to bring you back again..." God is good all the time, and His manifest glory is seen in Christopher's healing. We love you. In Him, Aunt Terry, Uncle Bernie, Anne, Liz and Gary
Email: Comments:So thrilled to hear you are finally out!Christopher must have been amazed to be outside again(even if it is freezing!....)This change of scenery will do you all wonders.Congradulations, Pete and lori
Email:arhimes@msn.com Comments:I am so excited for you!!!! I love hearing how great Christorpher is doing. I can just feel it in your voice. I hope that one day we will be able to meet in person and share our wonderful boys! Love, Anne
Email:maureen1360@cox.net Comments:Dear Paige & Joe: Congratulations on discharge! Praise God, from whom all blessings flow! Fondly, Maureen Cook (CUMC)
Email:tina@melroseroad.co.uk Comments:Congratulations on discharge. It is wonderful news. With the Skin GVHD Sophie started to hate baths and putting any cream on. When it was at it's worse just exposing her skin to the air made her scream. Maybe Christopher skin is still a bit sensitive. Love Tina.
Email: Comments: Hey guys! What an exciting day (and week) this must be for you! Hopefully life is feeling a little "normal" and you're enjoying being together as a family. Just to have some uninterrupted time with each other must be pretty amazing! We're sure thinking about you all the time! Lots of love, Ange & Bubba
Email: Comments: We visited you yesterday with the dogs from Fidos For Freedom, Inc. We just wanted you to know that you all are in our prayers and thoughts; we wish Christopher a life filled with joy, happiness and good health. Take care- Debbie and the collies
Email: Comments:Dear Each of you, It sounds as though you were discharged right on time! Enjoy each other--it must feel great being together out of the hospital setting. Give Christopher a great big hug and kisses from his Great Aunt Terry and Uncle Bernie. Anne, Liz and Gary send hugs and kisses as well. We love you and you will continue to be in our prayers. Love, Aunt Terry
Email:ltisinger@yahoo.com Comments: I'm so very happy for you all, especially Christopher. I'm often afraid to look at the website for fear of bad news. But I'm so glad I took a peek today. The news of Christopher's discharge brought tears to my eyes. Congratulations. Love, Laura (Queen)
Email:ltjpost@cox.net Comments: Congratulations on discharge!!
Email:mmchick@comcast.net www.Mighty-Max.com Comments: So glad to hear the good news.
Email: Comments:Paige,Joe,Christopher: It was so good to hear that Christopher was discharged on Sunday. Praise God. We will continue to pray that the GVHD does not flare up, the skin rash will subside soon and the blood pressure will stabilize. We will also keep the other litle ones in our prayers. May God of all mercy give you all His GRACE. In Jesus name.....Gai
Email: lucalara@lycos.com Comments: Hi Paige and Joe. Upon reading all of this from christopher's website. I really admire you both for all the things you'd gone through. When both of your children has chronic illness that he will indure for life like with me and Rod, as parents you really don't know what to do. You always wish that it would go away and wish they will lead a healthy life. As they grow you try to protect them and feel guilty why you gave it to them. You try to explain to them why they cannot play contact sports, why they have to go to the hematologist/oncologist for IV DDAVP infusion before they have to go to the dentist for filling or tooth extraction. Why they have to wear a bracelet that they have bleeding problem(so just in case they get into an accident they will know). On occassion I hear my oldest why he has this disease. As a mom, it hurts, I always say I wish it would go away, but it can't. What help me a lot is my prayers. I leave it the Lord, I know he hear as and his the one that always give me the strenght to go on everyday when I'm down and thank him when I'm happy. I thank him always for all the graces and blessings he gives us. So Paige and Joe always be strong and when your day is down or happy call him. Our children are more stronger than we know it. They are fighters and they are the ones that always gives us strenght everyday. Everybody in the hospital are praying for you. Stay strong and keep similing. Remember we don't want to have sad wrinkles always smilling wrinkles. God Bless to both of you and Christopher. Leida Calara
Email: Comments: Good Morning to you all, Glad that Christopher is eating and sleeping. The other issues and fears you addressed are now prayer requests. May the God of all Comfort and the Father of all Mercies minister to you all and cause this time to be peaceful. Being out of survival mode is truly a different phase--other issues that seemed insignificant during crises time surface and have to be addressed. The good thing about all of it is that you have survived the crisis and are moving on to the next step. Stay strong in the Lord and the power of His might--He's been with you all thus far and He will not abandon you. He will see you through, especially Christopher. His Hand is on Christopher and He will never let go -- God will meet all the needs you have and give you Peace. We will continue to pray and confess God's truth over Christopher. Love and prayers, Aunt Terry et al.
Email: Comments: PS from Aunt Terry...Grandpa Joe and Grandma Ann sent us e-mail photos of Christopher on Discharge Day--he's still as beautiful as ever. We were glad to see the photos. His smile is bright and he looks wonderful. Love and hugs.
Email: jpmigliozzi@m3tc.com Comments: Welcome to the fixed Guest Book :)
Email:padraic@melroseroad.co.uk Comments:I am so happy that you managed to have a meal out as a family.It's got to be nice to do something "normal" for a change. I hope Christopher's teething doesn't upset him too much. I know how hard it is checking temperatures every hour and hoping that they stay below the "hospital admission" limit. Love Padraic, Tina, Amy and Sophie (MPS 1H)
Email: Comments:Dear Paige and Joe, We just received the card and photos.Thank you so much!Are we biased,or is Christopher just a little pumpkin?!!!!!It was so nice to hear from you.I know it is so hard right now,but try to take your outings more often.Christopher probably needs the change in scenery too.Keep doing what you are doing,and remember how FAR YOU HAVE COME.It was only a few short months ago that you were given such a horrible scare with the news of Christophers illness.Now Christopher has been blessed with a new beginning.In a couple of weeks,he will celebrate his first birthday.How glorious and momentous an occasion!This is truly a miracle!!!With all of our love, Lori and Pete
Email: Comments:The transplant photos are beautiful.Christopher looks wonderful!Thanks for taking the time to share them!! Love, Pete and lori
Email:daisy@vanopstal.com Comments:Dear Paige, Joe and Christopher, We love the new pictures...thanks for sharing them. Christopher is still as handsome as ever. We think of you often. Love, Daisy, Bill, Will and Molly van Opstal
Email:carahaney@aol.com Comments: I love the transplant pictures! What a good looking future Hokie you have there. Love, Cara
Email:jbracco@bellsouth.net Comments:Dear Paige, Joe, & Christopher - All of you are an inspiration and will make it!! We can see in Christopher's eyes that he will soon be running around at home with other little ones his age. We will be praying for you everyday & with each step of the way. Love, John & Susu Bracco (Nursing School classmate of Grandma Ann)
Email:jbracco@bellsouth.net Comments:Dear Paige, Joe, & Christopher - All of you are an inspiration and will make it!! We can see in Christopher's eyes that he will soon be running around at home with other little ones his age. We will be praying for you everyday & with each step of the way. Love, John & Susu Bracco (Nursing School classmate of Grandma Ann)
Email:mmchick@comcast.net ww.Mighty-Max.com Comments: Christopher, so sorry to hear you are back in the hospital. We hope you feel better soon.
Email:arhimes@msn.com Comments:I am so sorry that Christopher is back in the hospital. I hope they get things undercontrol soon and that he is feeling 100% better. I know hospital life is hard. I will hope it doesn't last very long and you will be back on track. Love, Anne
Email: Comments:Thanks so much for posting the transplant photos...Christopher looks wonderful. We are sorry to hear that Christopher had to be re-admitted to the hospital--but 48 hours goes by very quickly compared to the months you were confined there. We continue to thank God for His awesome healing power and for peace and comfort for your family. All our love, Aunt Terry and all.
Email:padraic@melroseroad.co.uk Comments:I am sorry that Christopher has been readmitted. Sophie is 210 days post transplant and was admitted to our local hospital on Monday as she had a high temperature. She is still there so I know how frustrating it can be. I hope that Christopher can go home soon. Love Padraic, Tina, Amy and Sophie (MPS1)
Email:slimpikens1@yahoo.com www.caringbridge.org/il/cademateo Comments:Just stopped in to check on Christopher, have been reading his updates, my first time signing. My son has MPS1, he is 3...Please know that I will keep all of you in my prayers and hope your out of the hospital soon. Love, Nikki & Cade Morrissey
Email:arhimes Comments:You are such a good mommy. I am sure Christopher feels better just knowing you are with him through whatever. I am so glad to hear about the fever being gone. We will keep praying until the tummy problems go away too. I hope you will be out soon and that Christopher will be 100% in a jiffy. Love, Anne
Email: Comments:You don't know me but I've been keeping up on Christophers story for months now. I have 2 little boys myself and I pray and hope that everything will turn out for your family. Christopher seems like such a little warrior. For some reason I felt drawn to your story and have been keeping up on your updates. I wish you all the best of luck in your journey. BB-Ohio
Email:beni971@bellsouth.net Comments: Hi All, Each day things will get better. We were very grateful for the photos, I realize you don't wish to commit Christopher's sick time to photographs but he will never know how far he has come if he doesn't have a measuring point to see where he was. Twenty years from now, Christopher will see how much resiliency the human body and soul has. He will see how much Love he enjoyed from his parents, and family and a host of friends and strangers. Most of all Christopher will see the awesome power of an all powerful, all merciful, all gracious God who loves him beyond all measure. May the Resurrection power of the Lord Jesus Christ be with you all as you continue on this healing journey. With our love, Aunt Terry and all
Email:alicecurran@charter.net Comments: Dear Christopher and sweet Mom and dear Dad, The first thing I do each day here in Fort Worth, Texas is check your sight. You, little Christopher have been a daily presence in my prayer. I follow your mommy's updates religiously, and am pulling for you little one! What a special child of God you are! What a miracle you are! What courageous and beautiful parents God has chosen for you! Your Mom is such an inspiration; she is such an authentic and special lady. I cannot imagine her and your Dad's life this year; they have special blessings from God to have cared for you so courageously and tirelessly. ( I think you all are due a wonderful vacation some years down the road when you are running so fast they will not be able to keep up with you! ) My vision of that day is offered to God in anticipation of its coming to be! Butterflies and birds, sunshine and rainbows and you and Dad and Mom enjoying the day in utter thanksgiving for the lavish love of a God who walks with you as you await that special outing as a family. It seems the whole world has you in prayer Christopher. Imagine all the people you may never meet praying for you and loving you. I know your Uncle Matt and Aunt Michelle, that is how I came learn about you. You are loved little man, and I am praying you can be home when you celebrate your very special first birthday! By the way, love is an awsome thing, We can love each other not even knowing each other..that is because the love of our God is so very big! Please give my love to your Mom and Dad and all your Grandmas and Grandpas and Aunts and Uncles, and all who are close to you.I send my love. and prayers continue..I will keep checking on your progress and healing! Blessings, courage and peace of heart to all, Alice Curran
Email:jdownham@earthlink.net Comments:I've been keeping up with your little Cristopher's story for a couple months now, and it just hit me, do you know about the MPS forum? it is a wonderful place for support and friendship with other parents of MPS Children. It is also a great place for information as there are many children on the forum who have had CBT and BMT and who are on ERT. Stop by sometime- if you havn't already. www.mpsforum.com By the way, Christopher could not be any cuter!!! what a doll. Don't worry about his bald little head- you are right it is his badge of courage and he wears it well! Our prayers are with you. Love, Kim and Ty Downham
Email: Comments:Paige and Joe, I do not know you personally but I am a member of CUMC and I read your web site every day. You both are a true inspiration and very special parents. I pray for the three of you everyday. God bless you all, Margaret Chekan
Email:maureen1360@cox.net Comments: Dear Paige & Joe: In case someone hasn't told you already, Pastor Don mentioned you in his Easter sermon as a living example of strength & love despite sorrow. Your CUMC family continues to hold you close in prayer. Warmly, Maureen Cook
He is SUCH a cutie PIE!:) I hope you get to go home soon! That would be so Wonderful for you! Hugs and Hope, Love and Prayers to you from us! QOL
Email:Paige,Joe&Christopher Comments:I am so sorry to hear that Christopher is back in the hospital. The men's group at Church prayed specifically that our Lord Jesus will heal Christopher's kidney infection. We pray that He will give you faith to continue to trust Him, no matter what. We also pray for wisdom for the doctors and nurses at John Hopkins, who are treating Christopher. Hold on to the promises of God in the Bible. Love...Gai
Email:arhimes@msn.com Comments:I am so sorry to hear that Christopher has run into a new problem. I am glad that is was caught now and hope that will make it much easier to treat. We will be praying for you. Love, Anne
Email:gcimarru@riroe.k12.il.us Comments:Paige and Joe, We were also at the point in our lives when we wanted our son Anthony(hurler baby) to have a life outside the hospital. He has been home now for 3 months. He runs(with a walker)laughs and plays like a normal child with his twin sister. The day will come and it will be everything you ever dreamed of!!! Gina (caringbridge-Tony the Tigre)
Email:jandjstone@verizon.net Comments:Paige, Christopher is a true fighter. I enjoy reading your website on him and it's good to know that he is still fighting. I am sorry that his first birthday will be in the hospital but I am very happy that he can celebrate his first birthday. Christopher, you and your entire family are in my thoughts and prayers. Please know that you have a ton of supporters especially when things get to be tiring and stressful. ZLAM, Jennifer Stone (Blank)
Email:beni971@bellsouth.net Comments: Dear Each of you, The latest reports may not sound good and as you are both aware, the reports change each day, perhaps each hour. Please remember, the God in whom you have placed your trust and Christopher's life NEVER changes, He's the same yesterday, today and forever and His Healing Hands are holding Christopher. Keep your eyes on the Prize, the full manifestation of the Healing that Jesus gained for Christopher on Calvary and secured it by His Mighty Resurrection. Our prayers are with you constantly. May the Peace of the Lord Jesus encompass you all as you pass through this latest rough patch. This too shall pass! In His Love and Mercy, we love you, Aunt Terry and Uncle Bernie.
Email:lauriejo.hesson@nextel.com Comments:I will keep your family in my prayers....my sister just celebrated her fifth bone marrow transplant birthday....there are a lot of trials and tribulations you go through during the recovery, but I truly believe if you keep a positive outlook and you have many prayers coming your way your son will come through...you just have to believe! I donated bone marrow two years ago to a little seven year old girl.....I hope your story encourages more people to become a registered bone marrow donor. People always ask me, "would you do it again?" and I say YES! with no hestitation. May God bless you and your family, and please let me know if there is anything else I can do. Laurie Jo Hesson, Eta Xi, Alpha Lambda pledge class
Email:nicole.mendoza@vastera.com Comments:Paige, It's Niki Lare Mendoza. I just got an email that originated from Shana Kellam. I had no idea your family was going through such a struggle. I am so, so sorry. I've been reading through your site and I am amazed at how you have been handling everything. You are an amazing woman and mother. You, Joe, and Christopher will be in my prayers. Take care of yourself and of that beautiful little boy! And Happy Birthday to Christopher! Niki
Email:tina@melroseroad.co.uk Comments:I am sorry you are back in hospital. It is so hard when the days turn into weeks and the weeks turn into months. Towards the end my other daughter kept asking why our family was broken, I had no anwsers. How do you cope? I do not know, you just do because there is no other option. We are praying for you all. Love Tina,Padraic,Amy + Sophie
Email: Comments:Dear Paige,Joe, and Christopher, I'm so very sorry to hear about another "bump in the road" on Christoper's long journey. I'm praying that everything goes well with the bronchoscopy and that you will be home soon! I know you are disappointed that you won't be celebrating Christopher's 1st birthday at home, but I'm sure there will be many other birthdays and holidays at home. You've come so far - it is just so wonderful to celebrate this milestone no matter where you're located. And just think, Christopher will be able to celebrate two "birthdays" - one on April 24 and his transplant day! All his friends will be jealous! Take care of yourselves - we're praying for you! Betty Williams (Salisbury Presbyterian Church)
Email: Comments:Dear Paige and Joe, Pete and I continue to hold all of you in our hearts and our prayers.Christopher is strong(just like his mom and dad)We have faith that he will pull through all of this.His birthday will still be a special day,even in the hospital.Package is coming.... All of our love, Lori
Email:mmchick@comcast.net www.Mighty-Max.com Comments:Christopher, we hope everything goes well inthe ER today.
Email:daisy@vanopstal.com Comments:Dear Paige, Joe and Christopher, I just wanted to let you know I said a special prayer for all three of you this morning. May you feel my long distance hug too. Love, Daisy
Email:alinkous@kpmg.com Comments:Paige, Joe & Christopher - I want you to know that every day I check this website and every day I pray for you. I am so sorry things are not going well. Christopher has shown he is a fighter and I am confident he will fight through this. You give me such inspiration of strength and courage. Please know there are more people than you realize that are checking this website and praying for you. You are in my thoughts and prayers. Love, Ashley Linkous
Email: Comments:Dear Christopher, Paige and Joe, When cicumstances seem like they are never going to get better -- remember this -- God's promises are not influenced by changing circumstances. Circumstances may change but God's Word is unchanging. Full and complete healing is Christopher's and regardless of what the circumstances say, God's Word says that Christopher is healed by the stripes of Jesus. Stay in the Word and don't let what you see influence your Faith. Circumstances may lie, God's Word is always true. Ask Jesus to give you His Peace and Rest in Him, it is a rest that surpasses all human understanding. We love you and know that you are in our daily thoughts and prayers. Happy First Birthday to Christopher, I know you are not at home where you were hoping to be but God knows where you are and He will bring it to pass. Love, Aunt Terry
Email:mbryant@cox.net Comments: Christopher, Paige, and Joe, you are all in my prayers. The website is amazing....such a labor of love! Stay strong and know that many people are lifting you up in prayer. Give Christopher a 1st Birthday kiss for me. Marlene (Brad's mom)
Email: Comments:Dear Paige and Joe(baby Christopher especially), You have the prayers of so many.We all want the same things for Christopher-to have a good recovery from his surgeries,positive test results,and many happy,fun-filled days spent at home with his family.Lets all continue to focus on that.Sending much love, Pete and Lori
Email:arhimes@msn.com Comments:I am so sorry you are having such a hard time. I hope Christopher will be out the the PICU and up and around in no time. I know this must be very hard on you. We are praying for you all. Love, Anne
Email:mwinter@jhmi.edu Comments:hi guys, it's MH, the peds. OR nurse(surgery date 4/22/04).the website is great!! glad to see that things are looking good and the plan for today is to send christopher to a unit where schedules are more realistic. keep your chin up, you are good eggs!! all the best....MH
Email:realrobin3271@aol.com Comments:Hi Paige & Joe just wanted to sayhiand let you know that we are all praying for christopher. Hope that you are all well. May God bless and watch over all of you always ( This is Linda's sister Robin......Mariah's grandma) Stay strong and keep the faith Love, Robin and Family
Email:tina@melroseroad.co.uk Comments:So glad to hear Christopher is off the vent. Love Tina,Padraic,Amy+Sophie
Email: Comments:Great News on Christopher's Birthday! What a wonderful gift! I believe healing is a series of miracles and step by step the body is made whole. Christopher's miracle is unfolding each day as God defeats the odds on Christopher's behalf. Please stay peaceful and rest in Jesus' arms as you stand strong in the midst of a mighty battle. We are continually praying for you all and thanking God for His grace and mercy. Love, Aunt Terry and all.
Email:arhimes@msn.com Comments:Way to go Christopher. That's our boy. Love, Anne
Email: Comments:HAPPY 1ST BIRTHDAY CHRISTOPHER !!!!!!!!!!!!!! LOVE, Pete,Lori and kids X X X X X X X X X O O O O O O O O O
Email:carahaney@aol.com Comments:HAPPY 1ST BIRTHDAY CHRISTOPHER!!!! Love, Cara Haney and Family
Email:otpera@verizon.net Comments: This has been a tough week for all of you, try and stay strong, we are praying hard every day. Please give Christopher a kiss from us on his first birthday. All our love, Matt, Michelle, and Grace
Email: arb8@hotmail.com Comments: HAPPY 1ST BIRTHDAY CHRISTOPHER!!!!!!!!! LOVE, ANNE (Joe's cousin from GA)
Email:daisy@vanopstal.com Comments:Happy 1st Birthday to Christopher!You are such a trooper and our inspiration. I know that he will soon be teaching Will a few tricks too:)! Give your parents lots of hugs from us too. Love, Daisy, Bill, Will and Molly
Email:dslevin@adelphia.net Comments:Happy Birthday Christopher! Keep fighting ... we are so proud of you! Happy "Birthing" Day to you Paige (and Joe) ... Christopher could not ask for better parents! Keep up the great work!
Email:www.Mighty-Max.com Comments:Happy Birthday Christopher!
Email:tina@melroseroad.co.uk Comments:Glad you could celebrate Christopher's Birthday in a small way. We are all praying for you here in London. Love Tina,Padraic,Amy+Sophie.
Email:CARINGBRIDGE.ORG/IL/AARONATHY Comments:I guess you don't have much of a choice when it comes to coping with things!! You just have to take what you are given and try to make some sense out of it. As long as Christopher has you as his parents he is perfectly content!! As long as he knows you are by his side he will feel safe. HAPPY FIRST BIRTHDAY (Late), Christopher!!!! May many many more Birthdays head your way!!!!!!!!!!!!!!!!!XOXO, Trisha Athy
Email: Comments: Great to hear that Christopher is responding to the meds. He's a tough little fellow and the end result of all of this will be inspiring. Christopher may have had a difficult first year but suffice it to say he's made it this far. Grandma Ann and Granpa Joe told me that Christopher is a fighter, and even though he looked very ill when they saw him on the weekend, they know he will rally. It was great to hear a first hand report! We are all praying and holding on to God's promises for Christopher and you all. Love you, Aunt Terry and All
Email:selboc@aol.com Comments: Happy Belated Birthday little Christopher! I hope you're doing well. I can't seem to get the latest update to show up. For some reason, it's always stuck on Feb 10 or April 20. I'm worried and would love to know how you're doing. Stay strong and catch those kisses from your buddy, ^^REESE^^, in heaven. We are praying for you! Shawn, Taylor, & ^^REESE^^ Coble www.caringbridge.org/nc/reesecup
Email:arhimes@msn.com Comments:Happy Birthday Christopher!!! I am positive the next year will be easier. Try to stay away from the PICU will you. I know the care is great but... I am sure you can find another way to get attention with all the people who love you. Take it easy and get better soon. Love, Anne
Email:jdownham@earthlink.net Comments:Christopher is in our thoughts and prayers. Love, Kim and Ty Downham
Email: djvpool@frontiernet.net Just wanted to let you know your friends on the MPS Forum are keeping you in our thoughts and prayers. With love, Debbie, Rich, Jon and Jason Vanderpool (Jon and Jason have MPS IIIB)
Email:padraic@melroseroad.co.uk Comments:I'm so glad Christopher is out of PICU and I hope everything improves from here. Love Padraic, Tina, Amy and Sophie
Email:wchico@nyc.rr.com Comments: I have been watching this site for updates for the last 2 weeks. Christopher is sucha cutie pie. I pray for him everyday. Please keep the faith.
Email:selboc@aol.com Comments: Still checking in.. still loving you.. and still praying for you. Hang in there! Shawn, Taylor, & ^^REESE^^ Coble www.caringbridge.org/nc/reesecup
Email:taylorkh@unos.org Comments: Keep the faith and stay strong. You are in the prayer of all us at UNOS (United Network for Organ Sharing). Just believe and everything will be alright.
Email:bpryor1@columbus.rr.com Comments:Dear Christopher and Family, I hope that you start feeling better real soon. I know that it is tough but keep fighting. There are a lot of people cheering for you. My nephew, Andrew has MPS II, Hunters. we know what you are going through. We will keep you in our thoughts and prayers.
Email: Comments: It was good to learn that Christopher is finally out of PICU. We continue to pray and lift up all of you in prayer each day. Stay strong and don't let what you see and hear get you down, God is on the job and everything will be allright. Rest in Him and let His retorative Grace be your constant companion. We love you, Aunt Terry and all.
Email: Comments:Joe and Paige, It is only natural to feel down considering all that Christopher is going through.But believe that he will get better,and he will go home!Remember,nature has a way of protecting children ,and all of this will leave Christophers mind.Just the parents get TORTURED forever!!!!!LOL.:-) You have a lot of people to lean on,and each other,and you will recover too.Time and distance will be your healers,as will your faith in God and His ability to heal your little family and to carry you through this rough time.As soon as Christopher is feeling up to it,we want a photo in "the outfit".He is too handsome and I want to bite him up. Love, Lori(and Pete)
Email:judithsween@aol.com Comments:Dear Christopher, Please know that we are praying for you and your family and that we check on you everyday..Love from Chicago...Mighty-Max's Granny
Email:TLSlawson@aol.com Comments: I have been reading Chistopher site since you started. I'm sorry this is my first post! Please know your in my prayers. You have so many people praying for you and we are praying for a miracle! I pray Christopher beats this yucky disease!! Love and Hugs Tami www.caringbridge.com/ca/slawson (MPS1)
Email: Comments:Hi Guys, After your last entry have been so worried for Christopher.Hope he is o.k. Pete&Lori
Email:slimpikens1@yahoo.com www.caringbridge.org/il/cademateo Comments:Keeping you all in my thoughts and prayers! Love, Nikki & Cade Morrissey
Email: Comments:YOU CAN DO THIS...KEEP FIGHTING!..We are praying every day, all our love, The Dates
Email: Comments: Just want you to know that you all are still in my thoughts and prayers. This is an unimaginable struggle for those of us who have been blessed with healthy children, but I can feel your pain through your words. Please don't give up hope, even though you all are emotionally and physically exhausted - "where there is life, there is hope." Thank you for sharing your story - it is a lesson in so many ways for all of us. MBeitner - SPC
Email:judithsween@aol.com Comments:Dear Paige and Joe, We are all praying for your precious little boy...Love from Chicago...Mighty-Max's Granny and family
Email:TLSlawson@aol.com Comments:Please know everyone is praying for chistopher!!!!! I check many times a day and I'm praying his kidneys start working and he beats this yucky disease!!! Hugs, Tami Slawson ( www.caringbridge.com/ca/slawson )
Email: michelle.shirkey@ps.net Comments: Paige, Joe, and Christopher, please know that you are in everyone's thoughts and prayers. Your strength is an inspiration. - Michelle (Frye) Shirkey
Email:labro4will@yahoo.co.uk Comments: We are praying for your little boy and hope there is some better news soon-stay strong Best Wishes and Love Laura Brodie (Mum to Will MPS2)
Email: ezekiel_prorok@hotmail.com Comments:I have been following Christopher's website for months and pray for him daily. I came upon your website by accident, because a friend has a daughter with Hurler's. Don't give up hope! My friend and his wife went through many dark days after the transplant, days when there seemed to be no light at the end of the tunnel. That was three years ago. Today, their daughter is a happy little girl that goes to school like any other child. So don't lose hope! Things will turn for the better!! Praying for you and Christopher, Mike Baresich. New York.
Email: Comments: Don't be dismayed! Please don't focus on what you see, that is a primary source of the enemy. Faith is believing when we cannot see the end result. Christopher is in God's loving care and we are standing with you in Faith that what God said He would do He will do! When you have done all, STAND! That is the most difficult part, we are praying and trusting God that he will give you both the strength and patience you need to stand. Receive the Peace that only the Prince of Peace can offer, the Peace that passes all understanding in Jesus' Mighty Name! Love, Aunt Terry
Email: Comments:Praying for you and checking on you. Pete and Lori
Email:nicole.mendoza@vastera.com Comments:We continue to pray for your family every day! I can't even imagine how hard it must be for you to see Christopher this way, but I am always amazed at how strong you have been. You are an inspiration to moms everywhere, including me. Know that we are all praying for Christopher's recovery. Love, Niki (Lare) Mendoza
Email:steveandjill2@hotmail.com Comments:I don't kow you or your family, came across your web site from a friend of yours. My family is praying for you little guy on a daily basis. Your strenght is an inspiration. Hoping Christophers kidneys start working and that you guys can go home soon. Jill, Steve, Vanessa & Emily
Email:www.Mighty-Max.com Comments: Christopher, we are pulling for you so much. Paige and Joe, you are doing a great job. Keep fighting little guy! You CAN do it. -Margaret Ciacciarelli
Email:jdownham@earthlink.net Comments:Christopher, we are praying for God's healing touch for your kidney's and for your transplant and ERT!!!! God is Good, and He loves you. Love, Kim and Ty Downham
Email:jules522@adelphia.net Comments: I heard about your little boy on Babycenter.com. I am praying for him and your family. Stay strong and don't lose faith.
Email: Comments:
Email:tina@melroseroad.co.uk (www.melroseroad.co.uk) Comments:I so am sorry you are heading back to PICU. We are praying for you all. Love Tina,Padraic,Amy+Sophie
Email: padraic@melroseroad.co.uk Comments: Hi Christopher, we are praying for you. You are always in our thoughts. Padraic, Tina, Amy and Sophie
Email: kris@mpssociety.org ( www.caringbridge.org/il/kraig/ ) Comments: Christopher remains in my thoughts and prayers. Stay strong, Christopher, you have many many people praying for you. God Bless! Kris Klenke
Email:jennmarie@bis.midco.net Comments:I am praying! I have followed Christopher since he started his transplant, and I am so sorry that he is going through all of this. I will say many many extra prayers for you today. Thinking of you, Jennifer Restemayer www.caringbridge.org/nd/allison
Email:buzz.cairns@sympatico.ca Comments:I am so sorry things are taking a turn for the worst please know that you are in our prayers Anne Cairns
Email:selboc@aol.com Comments:I wish I could offer words of encouragement and tell you all will be just fine. I wish I could be there to hug you and tell you I understand what you're going through. Instead, I can only send sign in your guestbook.. a stranger who has been in your shoes... to tell you I love you and little Christopher holds a very dear place in my heart. I will pray for that miracle. I will pray for Christopher's body to heal and recover on this earth. I'll ask God to cover you in His grace, for His grace is sufficient. And I will ask Him to hold Christopher close to His chest and breath a miracle of life into his tiny, frail body. All these I pray in His name. Paige, I know your hurt, your confusion, and your anger. If you ever want to talk to someone who's been there, you can call me anytime. My cell# is 336-624-9822. Hang in there! You're a great mom!!! Sending hugs from W-S, NC and kisses from Heaven... Shawn, Taylor, & ^^REESE^^ Coble
Email:ezekiel_prorok@hotmail.com Comments:I was so sorry to see today's update on Christopher's condition. In my heart, I know God will heal him. I left my office this afternoon to go to St. Patrick's Cathedral in Manhattan so that I could light a few candles and say a few prayers for Christopher's recovery. I am praying for Christopher every hour. Mike Baresich, NY NY
Email:tina@melroseroad.co.uk Comments:I am so sorry things are things have got worse. Please do not give up hope, Sophie had adnenovirus and a fungal infection in her lungs, it was the most horrible and scarriest time of my life but she fought and pulled through. Miracles happen every day. I have seen it happen and I am praying you will to. Love Tina,Padraic,Amy + Sophie p.s. Please e-mail if you need to, I am in London so I will respond a quickly as I can.
Email:amyn_finn@hotmail.com Comments: I just wanted to let you know that I am having everyone in my family and pretty much everyone I talk to pray for your little one. I don't feel like it is his time to go. God Bless you all! Amy Finn Louisville, Ky
Email: kris@mpssociety.org Comments: Praying praying praying! (((HUGS))) Kris Klenke
Email:Beccao@comcast.net Comments:We have been praying for you and Christopher daily., I know that everthing is very critical at this time. Bless all of you ..Becca Ott Salisbury Presbyterian
Email:daisy@vanopstal.com Comments:Paige, Joe and Christopher, Our hearts hurt for you. We pray daily for you and today I made sure to call all of my prayer groups to let them know Christopher's current status so we could all continue praying. We love you guys! If there's anything else we can do to do, please call us at home. Love, Daisy, Bill and Will
Email: Comments: Matthew 7:7-11: "Ask, and it shall be given you; seek, and ye shall find; knock, and it shall be opened unto you: for every one that asketh receiveth; and he that seeketh findeth; and to him that knocketh it shall be opened. Or what man is there of you, who, if his son shall ask him for a loaf, will give him a stone; or if he shall ask for a fish, will give him a serpent? If ye then, being evil, know how to give good gifts unto your children, how much more shall your Father who is in heaven give good things to them that ask him?"
Email:alisonj_knott@yahoo.com Comments: Christopher, I heard of your site on Sophie's, and her parents asked us to pray for you. I am sorry that you are so ill, please keep on fighting hard, you have the love and support of many, many people. Alison & family
Email:vt9@msn.com Comments:So sorry to hear the news. We are all praying for baby Christopher's kidneys to start working again. Keep the faith. All our love, Janet and Jason
Email:arhimes@msn.com Comments:Paige and Joe, I am so sorry that Christopher is so sick. Jeff and I are praying for him right now. He is in the hearts of so many people right now and so are you. Let us know if we can do anything else for you. Love, Anne
Email: Comments:Genesis 9:13 "I set my rainbow in the cloud,and it shall be for a sign of the covenant of life.It shall be,when I bring a cloud over the earth,that the rainbow will be seen in the clouds and I will remember my promise." Christopher Josephs life is very precious.He has created a fellowship amongst people across the country ,many of whom will never meet one another.We continue to pray for a miracle.All of our love and hope, Pete and Lori
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Email:ltjpost@cox.net Comments: Praying for little Christopher! Hurler kids are VERY strong! Keep the faith! Lisa Post
Email:arnoldklk@cox.net Comments:I know you all from CUMC and also am good friends with Pete and Laura Hesse and the Masse's. I've followed your daily updates since you started writing them but have never posted here--I'm not very computer literate and it seemed odd writing to someone I didn't really know. I felt compelled to write today and tell you just how much we (myself, my husband and my daughter Kaelyn) are praying for you. I will admit to a fair amount of anger at God for allowing Christopher to go through so much difficulty and for the two of you to have the gut wrenching experience of having to watch him go through all of this. I admire your courage and I appreciate your sharing the experiences through the daily updates. I have worked in a hospital setting and I understand how desparate you must be to get out of there and back to a normal home setting. I hope your desire to transfer to Fairfax and at least get closer to home will be answered. I am sending you a prayer that when things get overwhelming that you "Lift up your eyes unto the hills". Pick a favorite hill or mountain that you have stood on; close your eyes and imagine yourself there. Feel its beauty and peace and for that brief moment take yourself away from the pain that you are experiencing. It is a way that I have found to help me with the struggles in my own life and I share it with you in hopes that it will bring you some relief. Know that many, many people are praying for you and that you are loved and cared about in many, many ways. Kerry Arnold
Email:judithsween@aol.com Comments:Dear Paige and Joe, Sending all our love and prayers. Remember that Hurler Babies are strong and amazing...Love Mighty-Max's Granny
Email:otpera@verizon.net Comments:Christopher is in our prayers every day. We think about you and the strength that you share and truley believe that the strength of your love will be felt by Christopher as he makes his recovery! We are with you, Matt, Michelle, and Graceanne Dates
Email:chmbrman@aol.com Comments: My heart and prayers go out to all of you. As I do every night I will have a special prayer for Christopher and you tonite. love, Sally Dunn.
Email: Comments:Thinking of you and praying for Christopher. Love, Cara Haney
Email:jen@masonish.com Comments: I have been following Christopher's story for some time now. I can't go through the day without "checking on him". I am deeply saddened by how ill he is now. Please know that my thoughts and prayers are with you and Christopher and your family every day. I will hug my son (14 months) extra tight in honor of your strong, strong boy and family!! God Bless, Jen Mason
Email:jen@masonish.com Comments: I have been following Christopher's story for some time now. I can't go through the day without "checking on him". I am deeply saddened by how ill he is now. Please know that my thoughts and prayers are with you and Christopher and your family every day. I will hug my son (14 months) extra tight in honor of your strong, strong boy and family!! God Bless, Jen Mason
Email:AngelHaps@aol.com Comment: Dearest Paige and Joe, I just found your website yesterday and I am so very sorry to learn of the pain that you are all in. Please know that you are in my thoughts and in my prayers and will continue to be. I used to work in a NICU and can somewhat imagine the anguish you are experiencing with a desperately ill child. Hold fast to God and your friends. They will help you through this. Christopher is named for two strong saints and I'm sure he's a fighter. Know that you are loved. Louise
Email:Sarah.nelson@allina.com Comments: I have been following your site since christopher started his treatments (I am not sure how I found it). I just want you to know that you are in my thoughts and prayers all day everyday. Christopher is a very special little boy and I know that God has a huge plan for him. He is such a little fighter. Thank-you for sharing your story with so many people. He has touched my heart and made me a different person. Take care and I will be praying for all of you Sarah
Email: Comments: We are praying, seriously praying, for strength and healing for all three of you. Love, Jennifer, Greg, and Sarah Faucette
Email:nicole.mendoza@vastera.com Comments:I came in to work this morning and, as always, checked for your daily updates. I am terribly sorry to hear that Christopher's condition has gotten so critical. I continue to pray for your family every day, and ask God to heal little Christopher and his wonderful parents. Know that you are in my thoughts, and I am praying for a miracle for Christopher. Love, Niki (Lare) Mendoza
Email: Comments:still praying.... shawn
Email:arhimes@msn.com Comments:I am so glad Christopher continues to fight hard and that you can feel the support that is coming from so many of us out here. As I was out on the track today walking, I was praying for you and Christopher and I thought I wonder what you would think if you knew someone was exercising and praying for you at the same time and then it filled my heart to know that there are probably 1000's of people this morning praying in equally unusual situations -be that at there desks, making breakfast, driving to work etc. We are all focused on sending you healing and support. Hang in there and know we are all there for you. Love, Anne
Email: Comments: April forwarded you story to some of her Zeta sisters here in Cincinnati. Our prayers are with you in this very very difficult time. ZLAM Amy
Email: hallen@iliant.com Comments: I have been following Christopher's story and again, my heart goes out to the three of you and your families. I will pray for all of you and hope that God will answer our prayers. Helen Allen
Email:mbryant@cox.net Comments:"Faith is not believing God can, it is knowing he will." Keep the faith and believe in the power of the prayer....miracles happen. Love, Marlene (Brad's mom)
Email:jgjewhurst@aol.com Comments: We are praying for you Christopher. You can overcome this set back. Stay strong and we'll keep the prayers coming your way. Gina, Joe, Gianna and Anthony (Tony the Tigre)
Email:dsk2103@yahoo.com Comments:We and our Young Adult group from CUMC are praying for Christopher and your whole family. Christopher's strength is amazing!! I check on him all the time and he is in my thoughts and prayers constantly. God created such an awesome little boy!! He is exactly 2 months older than our daughter and I know what a special gift from God he is. He is such an inspiration for everyone and we are praying hard for him!! Keep fighting, Christopher!!! --Dawn Svendsen
Email:daisy@vanopstal.com Comments:Dear Paige, Joe, and Christopher, Just wanted to let you know that I asked my CUMC mom's group to lift your family up in prayer this morning. Christopher is a fighter and he is truly blessed to have you as his parents. Love, Daisy
Email: Comments: Dearest Each of You...God is with you whether or not you can feel His presence, hear His voice or see His face. He will deliver Christopher completely, He has a plan for Christopher's life, a good plan--He hasn't taken you thusfar to abandon you. Speak the mighty Name of Jesus to the sickness in Christopher's body. That Name is more powerful than any medicine, surgery or treatment man has devised. This is on my daily calendar "Discover what the exalted Name of Jesus can do for you today. It is more than just a word. His Name is a force that can cause every circumstance and every demon standing in your way to bow its knee. Just the Name alone is effective when spoken by a Word-abiding believer. begin to speak that Name with confidence and authority. When the enemy is trying to bring sickness or despair into your household, just point your finger at him and say, 'JESUS'! That's like throwing the whole Word of God in his face at one time." Philippians 2:9-10 We are all praying and confessing God's Word for Christopher--He is healed and made whole in Jesus' Name!. Love, Aunt Terry
Email: jakers@k12.com Comments: Paige and Joe, we just found out what Christopher has been going through. We will be praying harder and stronger than ever. You both take care of yourselves and each other through all of this and know that He is with you.
Email: Comments:Thinking of Christopher constantly.Sending love, P&L
Email: Comments:Again you don't know me , but I've wrote before. I check your site daily if not more than that. I'm so sorry for what you all are going through. I have 2 little boys myself (3 & 18 mths) and I pray for your son every night right along with mine. I hope everything turns out for your family. Brandee~Ohio
Email:gvest1@aol.com Comments:Cara and I (Gregg) have been monitoring Christoher's progress on this site for a while now. Although we have never officially met, we are part of your CUMC family and we will continue to pray for Christopher and you! The Vest
Email:enewkirk@email.com Comments: I just stumbled across Christopher's site looking up MPS. I added you all to my prayers today. Best Regards, Erin Newkirk
Email:smbeck@surry.net Comments:Prayers are going up for you and your baby... I cannot image being in your shoes but I pray for God's grace to be with you and comfort you in this time. God does work miracles and I am praying that if it be His will that a miracle will be sent your way. God bless you!!!!!!!!!!!
Email:mjherwig@comcast.net Comments:Dear Paige, Joe and little Christopher...It is hard to find words of comfort after reading all you have gone through this past year, but I will try. I too am a "stranger" who was forwarded this website and asked to pray and have been for a month or so. So many people are praying for you...that in itself is a miracle...that a little baby could touch the hearts of so many people to beseech our Lord for healing. May your hearts find comfort in knowing the God loves little Christopher even more than you do...as hard to believe as that is. Many from our church are praying for you and we are only 30 minutes from Baltimore if there is anything we can bring you, just ask and we will be there. Christopher is blessed to have you as his Mommy and Daddy. A favorite verse I found myself quoting during our year-long wait to adopt our youngest son was Isaiah 40: 28-31. "The everlasting God, the Lord, the Creator of the ends of the earth, neither faints nor is weary. His understanding is unsearchable. He gives power to the weak, and to those who have no might, He increases their strength. Even the youths shall faint and be weary, and the young men shall utterly fall, but those who wait on the Lord shall renew their strength; They shall mount up with wings like eagles, they shall run and not be weary, they shall walk and not faint." I like to think that Christopher will be like that some day "he shall run and not be weary...walk and not faint"...it is my prayer for him and for all of you. Hugs and blessings to all of you. Michele (Chapelgate Presbyterian Church)
Email: Comments:YOU give US strength, hope and courage. Every night before I say my prayers I go to your web site to check on how you all are doing. You are a constant reminder to me of just how precious life is. There are many of us at SPC who have you in our thoughts and prayers. love, Sally Dunn, Midlothian, VA
Email:staceyjones@boiseoffice.com or marlo29@aol.com Comments:Paige, Joe, and Christpher: Paige, I know your Mom, Karen Rice, from UNOS. I work for Boise Office Solutions and UNOS has been a client for about 10 years. When I heard about your ordeal, my heart sank. I just want you to know that I have been praying every day for Christopher! I have shared your story with all of my friends and family and I have added you to our prayer list. I pray for GOD to provide each of you with strength and to heal Christopher. Trust completely in HIM. Isaiah 40:31---But those who wait ont he LORD will find new strenghth. They will fly high on wings like eagles. They will run and not grow weary. The will walk and not faint. In Love and Prayers, Stacey Jones
Email:Pastor@wellspringmethodist.org Comments:Paige,Joe, and Christopher. I've just come in from sitting outside under the light of a full and beautiful moon, lifting you all up in prayer, that you experience beautiful light in the darkness. Know that you continue to be in Teresa's and my prayers, and that the people of Wellspring UMC are praying for you as well. May the light of Christ be revealed and received during these days. God bless you. Tim Tate
Email:AngelHaps@aol.com Comments:Dear Ones, I am praying that Christopher will soon be on the road to recovery. In the NICU, when the babies pulled their E-T tubes out, we knew that they were ready to be extubated. Hopefully, that is what little Christopher is trying to tell you. He is so adorable. Remember that when things seem the darkest, that is when God and His angels are the closest. Love and Angel Hugs, Louise
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Email: Comments:I check on C.J. everyday, anticipating the next day. Our constant thoughts, prayers, and love for Christopher. Be strong and keep the faith. Love, Chris, Lori, Nicholas, Caitlin, Brody and Kellen Campbell (CUMC).
Email:katilynnsmom@yahoo.com Comments:christopher we are sending lots of hugs and kisses and lots of prayers that u have a fast recovery and that things well get better soon for u so that u can grow up and beat this thing .we love the preston family
Email:katilynnsmom@yahoo.com Comments:my daughter has mps1 hurlers and she is 2 1/2 here is her web page when u get time u can look www.caringbridge.org/ky/katilynnsmom
Email:tina@melroseroad.co.uk Comments:The world is praying for you Christopher. Keep fighting little one Mummy and Daddy need you. Love Tina,Padriac,Amy+Sophie.
Email:france.albert@gdcanada.com Comments:I just got your website address from Allison's website. Christopher is such a cutie. I will pray that he gets better very soon. God Bless.
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Email:france.albert@gdcanada.com Comments:Christopher is such a cutie. I got his website from Allison' website. I will pray that he gets better very soon. God Bless.
Email: Comments:Paige, Joe and Christopher--Thinking of you often. I was sorry to hear you were back in PICU. sending positive thoughts and prayers your way. Love to you all. Mary Mathis
Email: MandaPanda0429@aol.com Comments: I can't say that I understand your pain and what you are going through. Though I cannot offer any financial support I would like to offer my prayers and thoughts for you and your family during this trying time. You are in our prayers!
Email: Comments:Please know that the Osborn family from CUMC has and continues to keep your family and Christopher in our prayers daily. All our love, John & Cindy Osborn, Matthew, Caroline and Caryn.
Email:padraic@melroseroad.co.uk Comments:Wonderful news about the adenovirus, I am so relieved. You are always in our thoughts and prayers. Love from this side of the pond. Padraic,Tina,Amy & Sophie
Email:mamawpj@chartertn.net Comments:I found out about Christopher through Reese's web page. I lifted his name to the Lord. I can't imagine what you are going through, but I wanted to let you know you and your family are in my thoughts and prayers. Love in Christ, Pat
Email:ezekiel_prorok@hotmail.com Comments: Hooray, Christopher! You keep fightin', and we'll keep the prayers coming! Mike Baresich
Email: Comments:Paige and Joe, We are SOOOOOO happy for the good news on Christopher!One little baby step at a time! Love,Pete and Lori
Email: Comments:I heard the vioce of Jesus say,My child,you must not cry,for I in My own wisdom know the reason why.Though years have come and gone since happiness youve known,I will restore the wasted years,you see,youre still My own.Thank you,God,for promises recorded in Your word,that hope,once lost,can be regained by trusting in the Lord. -Shirly Collins P&L
Email:judithsween@aol.com Comments:Dear Christopher,So glad to hear that the tests came back negative.You are an amazing boy.Keep up the fight..Sending prayers from Chicago..Mighty-Max's Granny
Email:Shoe1111550@yahoo.com Comments: Paige and Joe, I am Jennifer's Mom and Alli's Nana. I send you all my strength and prayers! Baby Christopher is just like one of our own and as we connect through the computer wires, we are fused together by our hearts. Extra Blessings as you approach Mother's Day weekend. Be strong and we'll help with all the support we can! Janelle (Alli's Nana)
Email:shoe111550@yahoo.com Comments: Thoughts and prayers are heading your way from North Dakota. Janelle (Alli's Nana and Jennifer's Mom)
Email:Jdownham@earthlink.net Comments:Paige and Joe, My 5 year old daughter and I pray for Christopher every night ( I actually pray for him throughout the day also) tonight, it was very late when I was tucking her in, we said her regular "night time prayer" and then I leaned in to kiss her goodnight and she said "wait, don't you want to pray for Christopher and Cristian?" (we are also praying for a MPS III child, Cristian) Well of course, I'm so sorry I almost forgot, so we prayed for Christopher and Cristian then, finnally she was ready to go to sleep. Your little Christopher is in our thoughts and prayers constantly, I am so glad to hear the virus test was neg! I can't wait to tell Caroline in the morning! Love to all of you, Kim, Ty, and Caroline Downham.
Email: Comments: Dear Precious Ones, We rejoice with you and offer prayers of thanksgiving and songs of praise over the manifestation of God's Healing power in Christopher. God is so good to His children, especially the little ones who are totally dependent on Him. Rest in Him and know that He will continue what He has begun in Christopher. God never starts something that He doesn't complete. May this Mother's Day be especially joyful for you Paige, you received a precious gift that is priceless -- a touch from the Master's Hand. With love and unceasing prayer, Aunt Terry and all the praying church in Atlanta, Georgia.
Email:www.caringbridge/ca/slawson Comments:Happy Mothers Day!!!! Please know your in our thoughs and prayers! Love and Hugs, Tami
Email: Comments:Praise God for His Son our Lord Jesus, who loves us all so much that He gave Himself for us. Christopher is in His hands and His Grace will carry you all through this terrible ordeal. I was gone for 5 days to visit my mother-in-law and missed reading your daily updates. Glad to hear of the negative adenovirus test and his lungs. I continue to pray specifically that the LORD will heal his kidneys soon. I hope to see you guys soon. I'll call Joe's cell phone to let you before I come up. With all my love...In Christ...Gai
Email:judithsween@aol.com Comments:Happy Mother's Day Paige, You are so Blessed to have Christopher,but, most of all Christopher is Blessed to have you as his Mother. Hurler Moms are very special. I know that God will give you the strength to get through this. Remember that there is a whole Community supporting you and Joe. Sending all our love and prayers..Mighty-Max's Granny and family
Email: Comments:Paige and Joe, First we would like to wish PAIGE a very happy Mothers Day!!You are a special mom for sure.Today was James 1ST Communion Day.During Mass,the priest said a special prayer for all mothers,and I was adding intentions for you,Paige.We hope to hear more good news for Christopher this week.Keep us all posted. Love, Pete and Lori(Ashton,Peter,Terese,Olivia,Isabella,James,and Gabriel too!xxoo)
Email: Comments:It's wonderful hearing all the good reports, God's majestic plan in action! Each time we open Christopher's web site we place our hands on his little face and thank God for this precious little child and for the healing power of Almighty God in Christ Jesus. Rest in Jesus and have confidence that all will be well. We love you and continue praying for you, Aunt Terry and all.
Email:daisy@vanopstal.com Comments:Dear Paige, I was so glad to hear that you recieved a clear chest xray result for your Mother's Day present! I will pray an extra special prayer tonight that the trip to the OR for Christopher's new peritoneal dialysis catheter goes smoothly tomorrow. Happy Belated Mother's Day...Christopher is very lucky to have you. Love, Daisy
Email:padraic@melroseroad.co.uk Comments:Hi Christopher, So glad to hear you are off the vent. You are always in our prayers. Love Padraic, Tina, Amy and Sophie
Email:erika_collier@hotmail.com Comments:praying for your strength, faith and a sense of peace through everything. -erika
Email:france.albert@gdcanada.com Comments:Way to go Christopher. I got your website from Allison's. I pray that you heal very quickly. France Albert
Email:katilynnsmom@Yahoo.com Comments:just wanted to stop by and check in on all of u and sending lots of hugs and kisses your way.we are praying every night for christoper that he gets better soon.katilynn takes ert and is doing good with it and we hope christopher get to move closer to home soon.
Email:kristi@zezez.com Comments:I pray for you daily. I have a 4 year old and a one year old (3/16/03) and just wish you all the best and pray that you can enjoy each and every day with Christopher.
Email:AngelHaps@aol.com Comments:Way to go Christopher!!! Your mom and dad must be so proud of you. Hang in there big guy. We're keeping you in our thoughts and prayer. Love and Angel Hugs, Louise
Email:arhimes@msn.com Comments:Way to go Christopher!!! What a good sign that you did so well during surgery and after. I am glad mommy had some support. That waiting is tough. Keep up the good work. Love, Anne
Email:mcgloran@hotmail.com Comments:I have now become a regular reader of Christopher's progress. I continually pray for you all, whether I'm in my car or in my garden or in bed at night. I know from my own experiences how much family members go through when a loved one is ill. You show such courage. You inspire me. May God grant you a steady improvement in Christopher's health. Loran McGlynn, SPC
Email: Comments:Thank you for giving Christopher's updates. He is a tough little guy and will improve remarkably. Our hearts ache for all of you and you are in our thoughts and prayers. Susu and John Bracco (friends of Ann & Joe)
Email:mjherwig@comcast.net Comments:We continue to keep Christopher and your family in our prayers. We are so sorry for all he is going through, but yet so thankful he has the love of such dear parents, family and friends to love and support him. So many people are praying for you all. Thank you for sharing your updates each day and for sharing Christopher, too. It is a privilege to pray for such a precious little boy. I hope today is a good day for you all. Blessings, michele
Email:mcgloran@hotmail.com Comments:Go girl !! It's OK to get mad. You have been through so very, very much. I know about the roller coaster ride of emotions you are going through. I know how sleep can no longer refresh, since sleeping means dreaming. You are all loved and prayed for. I hold you in my arms. Loran, SPC
Email:arhimes@msn.com Comments:I am so sorry that you are having trouble again. It must be so frustrating to see him getting better and then back track due to machine trouble. I hope that things will be worked out and correcting themselves very soon and you will be back on track. Love, Anne
Email:beni971@bellsouth.net Comments: Dear Each of you, Please don't be so hard on yourselves. You really had no choice but to offer Christopher whatever medical science had to offer. There really was no choice. This road is not going to stay the way it is now. Each day brings with it Hope and challenges. Christopher will rally and you all will rejoice once again. We offer prayers of thanksgiving and praise for all the Lord has done thusfar and will continue to do. There is a light at the end of the tunnel. Love you all, Aunt Terry
Email:nicole.mendoza@vastera.com Comments:Sounds like you're having a very difficult day today. I'm so, so sorry! Hang in there and have faith that you're doing what's best for Christopher. I know it's hard to accept the fact that the decisions you are making are inflicting pain on Christopher, but you also know what would happen if you didn't chose the path you're currently taking. I know it seems like a lose-lose situation, but you have to be strong for Christopher. We're all praying that he'll pull through this and live to see happy and pain-free days. Thinking of you all and praying for happier days for all of you! Niki
Email:dsk2103@yahoo.com Comments: We're sorry to hear about the new struggles Christopher is having with his dialysis. We keep him in our prayers constantly and are so inspired by the number of people to whom Christopher has come to mean so much. Hang in there and keep fighting, Christopher!!! Dawn & Andy Svendsen
Email:judithsween@aol.com Comments:Dear Paige and Joe...Sending all our love and prayers to Christopher...Mighty-Max's Granny
Email:katilynnsmom@yahoo.com Comments:stoped by to say that we are still praying for christopher and that we send lots of hugs and kisses his way and that god will wrap his arms around him and just give him the healing that he needs.hugs and kisses from kathy and katilynn. www.caringbridge.org/ky/katilynnsmom
Email:tina@melroseroad.co.uk www.melroseroad.co.uk Comments:We are praying for you all. Love Tina,Padraic,Amy+Sophie
Email: bskokan@cox.net Comments: Dear Christopher, I had no idea how debilitating and painful the disease is that has overtaken your precious body. Please be assured that you will be in my prayers every day and if you don't mind, I will include your Mommy and Daddy. If there is anything I can do to help you, besides my prayers, please tell your Mommy and Daddy and I will do all I can. God Bless You, Bonnie Skokan
Email:ltjpost@cox.net Comments:Praying for your little boy. Lisa Post
Email:AngelHaps@aol.com Comments: I continue to check in everyday and I'm praying that soon you will be giving us nothing but good news about Christopher. What a strong mother you are to be able to be there for your baby and your family. Keep up the good work. God is on your side. Love and Angel Hugs to all. Louise
Email:AngelHaps@aol.com Comments:Paige and Joe, I am so very sorry that Christopher is having such a hard time. You always hate to see your kids sick and wish that it were you instead. How very strong you both are. I appreciate that in this trying time that you still take the time to update. I check several times a day. You are all in my thoughts and prayers. I pray that God in His wisdom will allow Christopher a fast and complete recovery. Until then, may He hold you in the palm of His hand and comfort you. Much love, Louise
Email:judithsween@aol.com Comments:Dear Paige and Joe, Sending up prayers for your precious little boy...Mighty-Max's Granny
Email:tina@melroseroad.co.uk / www.melroserod.co.uk Comments:We are so sorry for this setback, our thoughts and prayers are with you. Love Tina,Padraic,Amy+Sophie
Email: Comments:Paige and Joe, Doing our daily check on Christopher.He never leaves our hearts or our prayers.None of this makes any sense at all.We can only pray that God continues to give Christopher everything he needs.Christopher is strong and courageous.He has been very brave,and amazes us each and every day.With all of our love, Pete and Lori
Email:AngelHaps@aol.com Comments:Why, why, why?! We can't understand why such hardships plague our little ones. Remember that God and His angels are right there with you. Hopefully, by re-intubating Christopher it will allow his lungs to heal from the pnuemonia. My thoughts and prayers are with you. I'll be checking often. Love and Angel Hugs, Louise
Email:beni971@bellsouth.net Comments: Dear Ones, please hang in there and don't give up...the darkest part of the day is right before the dawning of a new one! I was glad to hear from Grandpa Joe, he called us from the hospital today and gave us a live report. Christopher is a strong little boy and we all believe he will rally once again. Stay strong and know that a host of people are praying for Christopher and you both each and every day. We love you, Aunt Terry and all.
Email: Comments: We were happy to learn of the latest good news. Grandma Ann gave us the details by phone today from the hospital and we felt as though we were there. Know that we send hugs, love and prayers to you all. Christopher is a fighter and before you know it he'll be back in shape. We're thrilled that they decided to give him nutrition. Great Grandpa Pat would always say "you can't expect a car to run without gasoline" as he coaxed us to eat breakfast. Well, Christopher can't get his body running again without fuel. Three cheers for medical science. Love you, Aunt Terry
Email:mmchick@comcast.net Comments: Keep fighting Christopher! We think of you and your parents all of the time. Sending our love from Illinois, The Ciacciarelli family
Email:selboc@aol.com Comments: I just wanted you guys to know that I have put a prayer request on Reese's site for you all... I hope that's OK. I'm thinking of you and praying for you all the time... Hang in there! Love, Shawn (mother of Angel Reese, MPS1-H)
Email: Comments: What a fighter! Hang tough little man. We're behind you all the way! "Aunt" Meredith, "Uncle" Don & your pal A.J.in Centreville, VA
Email: Comments:Paige,We hope you get to hold little Christopher very soon.Love to all, Pete and Lori
Email: walkerkl@pwcs.edu Comments: Paige and Joe, I know you don't know me but I too am a member of CUMC and have followed Christopher's progress of late. I can't help but feel that Chris is intended for great things here in this world!! He is such a fighter! :) His daily struggles should inspire each of us. I am sure that his angels are busy watching over him at all times and that God has a greater plan. My prayers continue to be for Chris's recovery to full and complete strength always and for each of you as you struggle through the trial. I pray that each day brings you closer to his health and return home!! karen walker
Email: Comments:We are thinking about you and praying for you everyday!!! We miss you! Hang in there strong boy! We know you can beat this again and come home! Love, The McClains
Email:www.verbinnen.net Comments:Hi Paige, Joe and Christopher. We are following Christopher's fight... All I can say is hang in there. Our Hurler kids are so strong and courageous that it never ceases to amaze me. I know there is not much we can say or do in these darkest of days, but we are thinking of Christopher, and rooting for a speedy recovery. Paige and Joe - hang in there. Christopher needs you guys to be strong for him and look out for him now more than ever. Lots of love from a Belgian Hurler family. Alex, Anneleen and Yasmine Verbinnen http://www.verbinnen.net
Email:jmcdaniel@bbvirginia.com Comments:my prayers are with you. John, a friend of Lin Rice
Email:andy232@yahoo.com Comments:I just wanted to pass on my best wishes for Christopher. My wife and I have been praying for Christopher during the CUMC prayer-a-thon and at the Chapel. He sounds like an amazing fighter, and we hope to see updates that say how well he is and that he is about to go home soon.
Email:dslevin@adelphia.net Comments:Atta boy Christopher! Keep practicing those karate moves! Hoping and praying for extubation tomorrow. Keep up the great work! Love, The Slevin family
Email: www.melroseroad.co.uk Comments: Keep kicking, keep fighting ,we will keep praying. Love Tina,Padraic.Amy+Sophie
Email:arhimes@ msn.com Comments:I am so glad that Christopher is showing his strength and giving you happy hope. I know you must bo so thrilled to see him moving. I will pray that today goes well and that things continue to go that way. Love, Anne
Email:pat_totoofoz@yahoo.com Comments: Hi I am Angel Toto from Quilts of Love and just wanted to drop by and let you know that you are in my thoughts and prayers!
Email:mjheriwg@comcast.net Comments: You keep on kicking and fighting this disease, Christopher and we'll keep on praying!! I know you're a Hokie fan, but you're in "Terps" country for now...and they never give up! Keep on fighting, Christopher!!) Blessings and love to you and your family from ours. The Herwig family
Just stopping by to say hello! That child is absolutely adorable! I am so hoping his lungs heal fast and stay strong! Hugs and Hope, Love and Prayers to you from us! QOL
Email:smbeck@surry.net Comments: Thoughts and prayers are still being sent up for all of you.
Email: Comments:Paige and Joe,We know you WILL be holding Christopher soon!He needs your loving arms as much as he needs the medicines.You two need some Christopher squeezing time.He wont break!He hasnt yet!(Even when Joe dropped him -JUST Kidding!!!)A good report always is uplifting.Thanks for a great day-maker! Love,Pete and Lori
Email:dsk2103@yahoo.com Comments:Yea Christopher!!! It's so great to hear he's alert and strong!! We'll continue to keep him and you in our prayers. --The Svendsen family
Email:katilynnsmom@yahoo.com Comments:horray little buddy ur doing better.cant wait till ur out of the old hospital and running around all over the place.lots of prayers and hugs and kisses love kathy and katilynn
Email:AngelHaps@aol.com Comments:Christopher, you go, boy!!!!!!!!!! I was so glad to read the good news. Keep up the good work. Paige, hang in there! You WILL get to hold Christopher again soon. God, in His wisdom, will make it so. It will be like holding him again for the very first time. What a joy! For right now you will just have to kiss every available spot on him. What a precious baby he is, and more durable than you think. Look at all he's been through. Much love and many prayers. Louise
Email:AngelHaps@aol.com Comments:Christopher, you go, boy!!!!!!!!!! I was so glad to read the good news. Keep up the good work. Paige, hang in there! You WILL get to hold Christopher again soon. God, in His wisdom, will make it so. It will be like holding him again for the very first time. What a joy! For right now you will just have to kiss every available spot on him. What a precious baby he is, and more durable than you think. Look at all he's been through. Much love and many prayers. Louise
Email:AngelHaps@aol.com Comments:Christopher, you go, boy!!!!!!!!!! I was so glad to read the good news. Keep up the good work. Paige, hang in there! You WILL get to hold Christopher again soon. God, in His wisdom, will make it so. It will be like holding him again for the very first time. What a joy! For right now you will just have to kiss every available spot on him. What a precious baby he is, and more durable than you think. Look at all he's been through. Much love and many prayers. Louise
Email:mbryant@cox.net Comments:So thankful prayers are being answered and Christopher is fighting his way back into your arms! Love, Marlene (Brad's mom)
Email: Comments:Dear Each of you, We are praising God and offering prayers of Thanksgiving for what Jesus has done for us. It is especially awesome to see the manifestation of what Jesus won at Calvary in Christopher's body. He will soon be well and off the a great new beginning with his Mom and Dad in Virginia. Christopher is destined for greatness in the Kingdom. Rest in His Blessed Assurance! We love you, Aunt Terry and all.
Email:http://www.geocities.com/calebwaddell Comments:Just found Christopher's link. You will all be in our thoughts and prayers. Our little boy Caleb was put on a respirator and dialysis one week after transplant. He was in ICU for almost 3 weeks, but he did pull through. The Lord is wonderful!
Email:arhimes@msn.com Comments:Take it slow and make sure you are ready Christopher. Home will always be waiting for you. I Know it is a great place to be. I am so HAPPY to hear all of your wonderful news. You are doing great. Love, Anne
Email:www.melroseroad.co.uk Comments:It is lovely to hear all the positive updates, long may it continue. Love Tina,Padraic,Amy and Sophie
Email:laynehokies@mindspring.com Comments:Just wanted you to know that we are thinking about you and praying for you!!! We hope to get up there soon to see you guys. ZLAM Sarah Layne
Email:mjherwig@comcast.net Comments:Thinking of you all and continuing to pray for Christopher's healing that you all may travel home to Fairfax SOON. Blessings to you on this Lord's Day...may you find a few moments today to rest in Him knowing how much God loves you all. Blessings, the Herwig family
Email: Comments:We are glad to see that at least one of your wishes will come true soon.It will be so comforting to be in the hospital with your Fairfax co-workers,Paige.Another network of moral support.Now you can sneek out to see your other ,furry baby,Nick too.MAYBE one night of sleep in your own bed w/Joe(is this really happening??!!)Our thoughts and prayers will be for Christophers continued stability this week.Lets all pray for more good news. Love, Pete and Lori
Email:AngelHaps@aol.com Comments:So glad to hear that you will start moving closer to home soon. Christopher is quite a little fighter and so are mom and dad. Pats on the back to all of you. Love and Angel Hugs, Louise
Email:daisy@vanopstal.com Comments:Paige and Joe, God is so good! So glad to hear the wonderful news of likely transfer to Fairfax Hospital later this week. I can't wait to be able to visit you all soon. I'll continue to keep Christopher in my prayers that transfer goes smoothly. Love, Daisy
Email: Comments: We're so happy that you might get to come home this week! We miss you so much and know how much it will help to be able to sleep in your own bed once in a while and to be closer to your friends and family who want to do more to help take care of you all. Hang in there and know we love you. -Meredith, Don & AJ
Email:otpera.com Comments:Joe, Paige and Christopher, -Matt and I are feeling helpless tonight and not sure what to do. We want you to know that we are always thinking of you and talk about you all every day- hoping that it is going to be a great day. We always look at each other in church when they ask for any special prayer intentions and know that we are praying for the same thing-health and happiness for your family. I don't know if we've ever prayed for something more. I'm sorry we are not physically there with you, but spiritually-WE ARE WITH YOU! All our Love, Matt, Michelle and Gracie
Email:tina@melroseroad.co.uk / www.melroseroad.co.uk Comments: I am so sorry, it must have been an terrible. I wish I had some magical words that would give you some comfort or to be able to do something to help. I hope you can take some comfort in the fact the Hurlers family across the world is praying for you all. Love Tina,Padraic,Amy+Sophie
Email:AngelHaps@aol.com Comments:Dear Paige and Joe, I am so very sorry to hear of Christophers set-back. You all have been through so very much and this just doesn't seem fair. I will be praying even harder for all of you. You do know that the two of you need to take care of yourselves, too, so that you can be strong for little Christopher. Hoping that you get some good news and relief SOON. Much love and Angel Hugs, Louise
Email:selboc@aol.com Comments:I wish I could reach thru these wires and give you a big hug... you certainly could use one. Poor little Christopher.. just LOVES that attention, huh? I know it's rough having been there for so long with the future not looking like you'll be getting out any time soon, but like you said, Christopher is still haning in there, so you hand in there with him... You've got alot of folks praying and we're not going to stop! Christopher has a special place in my heart, as I'm sure many others feel the same way. God bless and hang in there! Shawn, Taylor, & ^^REESE^^ Coble <a href="www.caringbridge.org/nc/reesecup"REESE's page</a>
Email:smbeck@surry.net Comments:Paige and Joe, I can not imagine what you are going through and what you have been through in the past months but through reading your journals, I know the road has not been easy. At a time like this I can only imagine how hard it is to stay strong and to stay focused on moving ahead but remember that God does work miracles and He is right there beside you holding your hand and walking with you each day. We will continue to keep all of you in our prayers. Jeff and Stephanie Beck, Mt Airy NC
Email: Comments:We hope today has been a restful,peaceful,UNEVENTFUL day for the baby(and his mommy and daddy).Christophers courage continues to amaze all of us.Nobody has forgotten you three,even though this hospital stay seems to have been going on forever.As soon as you all get back to Virginia,all of your friends who are with you spiritually will be able to be more of a physical support system.Remember that EVERYONE is rallying for Christopher!!!!!!God has never left Christophers side.He is still holding him close. Love, Pete and Lori & kids
Email:dsk2103@yahoo.com Comments:I'm so glad to hear that you have a date for coming back to Fairfax! I was just reading in the Inspirations section that you feel like there's a whole world going on without you. I know what you mean, but my first reaction was to think about how often so many people think of Christopher every day and how he has become part of our lives. So even though you haven't been out a lot to experience the world, just remember that you and Christopher have made much more of an impact on it than a lot of people can do by being out in it. You're always in our prayers.--Dawn S.
Email:Paige/Joe/Christopher: Comments: I just read your daily update and am so sorry about the incident whenthe stitches gave way and Christopher was bleeding so badly. Paige/Joe, I cannot imagine what you guys are going through. I pray continuously that our Lord Jesus pours out His Grace second-by-second into both of you to hang in there till He heals Christopher. We are praying that things will settle down in the next days and Christopher will be at Fairfax INOVA hospital by June 2. Hope to see you all soon. All my love....Gai
Email:jray@ecmc.org Comments: That baby boy is an angel on earth! Cheers to many, many more leg kicks! HOORAY for CHRISTOPHER!
Email:carolyn@quiltsoflove.com Comments: Just stopping by from your Quilts of Love family to say hi and leave some Hugs and Love..all our love Angel Carolyn
Email:AngelHaps@aol.com Paige, Joe and Christopher, I'm praying that tomorrow will bring you a day of sunshine and happiness. I read Lucy's page and truly loved it. God does send angels when we need them most. Sometimes they are the friends that come and just sit with us. They allow us to talk, cry, rant, rave or just sit quietly without being judgemental. And sometimes they are complete strangers. Thank God for angels. They are all around us and I believe that they help us to make it through the day. Christopher is such a precious baby and I know that he has special angels with him on this trying journey. Angels are all around us just waiting to be asked for their help. HELP! You continue to be in my prayers, daily. Love and Angel Hugs, Louise Comments:
Email:beni971@bellsouth.net Comments: Dear Joe, Paige and Christopher, It is God's will to heal Christopher not partially but totally! Allow Peace to be your umpire when you are making decisions regarding Christopher's treatment and rest in the assurance that you are doing the best you can for him. You will feel better in Fairfax and will benefit greatly from your support system there, so we pray for a smooth transition. It will take some of the pressure off while you are awaiting Christopher's recovery. Prayers continue to go forth from Georgia thanking our Lord Jesus for His Mercy and Healing. Don't give up, Jesus never gives up on us. We love you, Aunt Terry
Email:maureen1360@cox.net Comments:Dear Paige: I loved reading 'Praying Over Nail Polish'; it reminded me of a conversation I had a couple of months ago. A mom in our neighborhood lost her 4 y.o. son to leukemia last September; we ran into each other at the nail salon and traded feelings her Jeffrey and my stillborn twin daughter Erin. God must be sending grief-striken moms to salons:) Yes, angels are everywhere. Believe me, you will be able to redeem your pain one day. The Holy Spirit will show you the way. Your CUMC family looks forward to Christopher's transfer to Fairfax! Fondly, Maureen Cook
EmailAngelHaps@aol.com Comments:Dear Paige and Joe, I can't wait to hear that you have successfully made the trip home. I think that right now the best medicine for all of you would be to get home. There you will be able to experience the physical support of your friends and family. You must be exhausted and I am praying that God will grant all of you peaceful nights and uneventful days. I continue to pray for a full recovery for Christopher, and for God's angels to surround you and guide you. Love and Angel Hugs, Louise
praying for your continued strength, courage and ultimate healing for Christopher. know that there are many that wish much peace in your hearts. - erika collier, tampa fl - erika_collier@hotmail.com
Email: Comments:Christopher is a fighter he feels and knows God's love for him and that God's best for him is to prosper and be healed. Jesus suffered through all sicknesses and disease on the cross and died so that we are healed and Christopher is healed in the name of JESUS and Jesus would have still died on the cross if it were only for Christopher's healing. We are all standing in agreement that in the Name of Jesus Christopher is healed. Love, Anne
Email: Comments:Christopher is a fighter because he feels and knows God's love for him and that God's best for him is to prosper and be in good health. Jesus died on the cross and suffered through of of our sickness and disease just so we could be healed and so Christopher could be healed in the Name of Jesus. We are all standing together that Christopher is healed in the name of JESUS! Love, Anne
Email:Walkupp@aol.com Comments:You are all in my prayers. Peggy Walkup(Hokie Mom)
Email: Comments: Dear Paige and Joe, Christopher knows he is loved by his mom and dad. It's your tender love that gives him the strength to live and keeps him safe within the heart of Christ. The Promise And he who was sitting on the throne said, "Behold, I make all things new! ... these words are trustworthy and true. It is done! I am the Alpha and the Omega, the beginning and the end. To him who thirsts I will give of the fountain of the water of life freely." with endless Love, Peace, and Joy Mary Marguerite
Email:tina@melroseroad.co.uk Comments:I am so very sorry. We are praying hard for a miracle. Love Tina,Padraic,Amy+Sophie
Email:carolepuckett@aol.com Comments:Our prayers are with you today. Carole and Bill
Email:katilynnsmom@yahoo.com Comments:as soon as i saw that he was really sick i stoped what i was doing and said a pray for him.the dotors can do so much but it is really up to god.god will take care of him and make him batter.we are parying for him and all of the family sending lots of prayers ur all ways.hugs and kisses kathy and katilynn
Email: Comments:Dear Joe and Paige, Even though Christopher has been through so many trials and lows,he always manages to go right back up to the peak again.Todays update was especially hard to read.We are praying hard for the three of you today,and for the rest of the family as well.Mostly ,though,we are praying for Christopher to experience Peace and wellness.We love you, Pete and Lori
Email:CARINGBRIDGE.ORG/IL/AARONATHY Comments:Christopher is in God's hands. Jesus once said "In this world you will have trouble. But take heart! I have overcome the world". John 16:33
Email: Comments:We are so very sorry to hear about the turn Christopher has taken. We are praying for him and your family. Lori, Chris, Nick, Caitlin, Brody and Kellen Campbell (CUMC).
Email:judithsween@aol.com Comments:Praying hard for all of you. May God keep you in the palm of His hand as you go through this difficult time.Know that Hurler babies are strong..sending all our love...Mighty-Max's Granny and family
Email:AngelHaps@aol.com Comments:I'm praying that little Christopher will be strong enough to overcome this latest hurdle. I'm also praying for you, mom and dad, at this very very hard time. I pray that God will give you His peace and the strenght to help Christopher fight. I'll be checking often. Hoping for good news SOON! Love and Angel Hugs, Louise
Email:nicole.mendoza@vastera.com Comments:I've been thinking about you all weekend. We are praying for Christopher every day, and hope he can fight his way through this. Take care of yourselves! Love, Niki
Email: Comments: Remeber what Julie said on Monday: It's not over until it's over! And Christopher is still fighting! That white count of 23,000 proves it. You hang on to that and keep the faith. You know to call us for ANY REASON at ANY TIME. We love you all so much~ Meredith, Don and AJ
Email: Comments: Paige and Joe we are among the many familes who pray for Christopher and you. John and Maggie believe as we do that God hears answers the prayers of children and that there is tremendous power in prayers from children for children. Wit that belief they include Christopher in their nightly prayers. Our hearts continue to remain with you through these most difficult times for your family. Patty, Ray, John and Maggie Horoho
Email:Margaret.Chekan@fcps.edu Comments: You are in my thoughts and prayers every day and all day. (CUMC)
Email: Comments:
Email:grandmabeth_2000@yahoo.comComments: Christopher's courageous story was told to me in bible study by Ann Graham. Paige's mother works at UNOS, where Ann's husband also works. I have since learned that Paige went to elementary school with my daughter, Sarah. I want you to know that not only are you in the prayers of family and friends, but also in the prayers of many strangers. We pray for a Miracle. We pray for God's hand to comfort Christopher's mom and dad and also his grandparents. I, too am a grandma and my heart aches for all of you. Just remember that your little one is a fighter. Beth Woodall
Email:grandmabeth_2000@yahoo.comComments: Christopher's courageous story was told to me in bible study by Ann Graham. Paige's mother works at UNOS, where Ann's husband also works. I have since learned that Paige went to elementary school with my daughter, Sarah. I want you to know that not only are you in the prayers of family and friends, but also in the prayers of many strangers. We pray for a Miracle. We pray for God's hand to comfort Christopher's mom and dad and also his grandparents. I, too am a grandma and my heart aches for all of you. Just remember that your little one is a fighter. Beth Woodall
Email: Comments:Paige, I know you have a special song for Christopher,but I always think of you when I listen to "Come What May"from Moulin Rouge. "Theres no mountain too high,no river too wide,sing out this song and Ill be there by your side.Storm clouds may gather,and stars may collide,but I will love you until the end of time.Come what may,come what may,I will love you,until my dying day"I cant type well enough,but every verse of this song is so poignant,and really sounds as though it was written for you and Joe and Christopher.I am going to send you that CD.I hope you will play that song for Christopher from me,because I do think he is listening.... Lori
Email: kcbsbl@aol.com Comments: Know that Trish and I are prayin' for ya. One of these days, Chris will get the chance to meet our Little Michael. They are about 6 months apart. I look forward to them meeting.
Email:tina@melroseroad.co.uk Comments:We are praying. Love Tina,Padraic,Amy+Sophie
Email:ezekiel_prorok@hotmail.com Comments:We are praying for Christopher here in New York. We've lit our candles, said our prayers, and trust that God will heal Christopher's body. Mike Baresich
Email:vtkristen@yahoo.com Comments:Paige & Joe: I am saying many special prayers for you all. I know Christopher is fighting all the way and I know he has many angels on eath and in heaven watching over him. He has many guardian angels and they are keeping watch over him. With all my love and prayers. Kristen Saunders
Email:andy232@yahoo.com Comments:You go, Christopher!!! You can do it!! You are a strong and courageous baby and you're a Hokie so we know you're a fighter and a winner!! You're always in our prayers. --Dawn & Andy
Email:www.melroseroad.co.uk Comments:We are praying. Love Tina, Padraic, Amy+Sophie
Email:ltjpost@cox.net Comments: Don't give up! These Hurler kids are amazing! My prayers continue! Lisa Post
Email:laynehokies@mindspring.com Comments: It was so good to hear your voice on the phone yesterday. I think about you always and pray for a speedy recovery for Christopher. I know he is a fighter and you will fight this together. I hope to get there soon to see you all. My thoughts and prayers are with you. ZLAM Sarah Layne
Email:luckypenguin@freelancebyu.com Comments:Christopher, you and your family and doctors are in my prayers!
Email:smbeck@surry.net Comments:Fight Little Christopher, FIGHT...... There are so many people praying for a miracle..... God has promised that He will never put more on us than we can bear..... Hold on Paige and Joe... He is there with you!!!! We will pray for blessings and miracles even if they do come in small baby steps..... Jeff and Stephanie Beck, Mt Airy, NC
Email:newmanj@erols.com Comments:Hi Paige and Joe, we know you through your Mom at UNOS, my hubby works with her. We have been keeping up with Christopher through your Mom and the website and are praying for him every single day. My son, Drew's, kindergarten class sent some pictures up for Operation Wallpaper (Mrs. Hesse's class at Pearson's Corner Elem.), we hope Christopher and all the other little children there are enjoying them. May God bless you and give you strength! Joel, Lisa, Matt and Drew Newman
Email:selboc@aol.com Comments:Paige.... DO NOT apologize for 'not getting back' to anyone. We leave messages to let YOU know we're thinking about you, praying for you, and hurting with you... not so you can get back to us! So, no more apologies, OK? OK! With that said, I'm just telling you again how much your little Christopher has touched my heart and how I'm praying for a miracle. I want Christopher on this earth, too! I haven't met him yet and I most certainly plan to! You guys have done such a wonderful job keeping us posted and sharing your experiences. At times, I feel I'm reading the journal of my little ^^REESE^^. Your words seem to echo mine at times so I know the pain you bare... Please know that there are SO many of us out here kneeling to God for a healthy baby boy... I've, again, asked for prayers on Reese's site.. hey - the more prayers said, the louder our voices are in Heaven! We love you and continue to check on you! Keep your chin up and keep talking to Christopher... He knows your there!!! Shawn, Taylor, & ^^REESE^^ Coble (www.caringbridge.org/nc/reesecup)
Email: jean.haney@ngc.com Comments: Paige and Joe and baby Christopher, we may not have been able to get to John's Hopkins to tell you personally, but we love you and we send angel blessings and prayers to you every day. This baby came to you for a reason God alone knows. He blesses your lives with him every single minute of every day. Christopher, keep looking God in the eyes and telling him you are not coming to see him personally any time soon....you've got too much to see here on Earth first!!! Love, Jean and Ike Friends who have known your mommy since she was a tiny little girl who needed God's love and his angels too.
Email: Comments: I have followed your story, since it began and have cried for you and prayed for you and your son. He seems to have such a strong will to survive, and you are a very amazing strorng couple to do what you have done during the his illiness. God will reward you with blessings because of your love and perseverance. I don't know you but you are truly among the bravest young parents I have seen. Your website has been passed to many and please know that you have many people praying and watching your family story. I hope for you and Christopher that we have encouraging reports in the days ahead. We will keep praying for all of you.
Email: We continue to pray for all of you. You are all an inspiration to the rest of us. God bless you, you are precious children of God. Love, grace and peace, Ann Graham Comments:
Email:wellsdvm@earthlink.net Comments:Guys, Thinking of you all today and love and miss you so much. I am trying to coordinate a date with Frye to come and see you before we move to Massachusetts...6/29/04. Love, Maggie
Email:jdstack@hotmail.com Comments: Lisa told me about this beautiful Website.I loved reading the story of your strong little fighter. You are an incredible family .. it is so good to see that you're surrounded by so many supportive people. Please count me & my family among them. My prayers & thoughts are with all of yu . HUGS & LUV Gunnershorthair
Email:AngelHaps@aol.com Comments:Dear Paige and Joe, I am sending you all of my love and prayers. Your place now is with Christopher taking care of him and yourselves. We are all anxious to hear any news (GOOD), but we know where your priorities are now. We will continue to ask God's blessings on all of you. Christopher is a fighter and he's giving it all he's got and we have to pray with the same fight. Love and Angel Hugs, Louise
Email: nitanita62@aol.com Comments:My thoughts and prayers are with Christopher and your family. Hang in there and keep the faith. May each day just get better and brighter! Nita
Email:ltullia@netscape.net Comments: Paige, Joe and Christopher, Not a day goes by without someone in the OR asking how you are all doing. You are in our thoughts and prayers. Lonny
Email:www.melroseroad.co.uk Comments:Praying for more improvements. Keep fighting Christopher you are truly amazing. Love Tina,Padraic,Amy+Sophie
Email: abellhokies@earthlink.net Comments: We are thinking of you guys daily and praying for your sweet Christopher and your entire family. You guys continue to overcome daily speedbumps and I just know that Christopher is fighting so hard to get back home. Sending lots of love and MANY prayers, Dawn, Craig, and Justin Abell
Email:jnw_jnn@hotmail.com Comments:My, how blessed you are. Sent here by Reese's site, I am so surprised to see that someone else seems to have had some of the realizations I have. The beauty that can radiate from a moon-faced, bald-headed, jaundiced child is like no other. It can only be appreciated by those who truly look beyond the tubes, electrodes, pumps and monitors--and that's what makes it special. There is no love like that of a child...that is true. But there is so much love to come with a sick child, though we are so scared at first, petrified of the unknown, fearing what the future will bring...we manage to accomplish so much that would never have been possible had we had a healthy child. Had we had a healthy child, would we know the joy that comes with being discharged? Would we be able to appreciate actually reaching a milestone? If we had not had a baby book left with more empty pages than full ones...a baby book whose Medical Records Section is too small, yet the milestones pages seem to never get touched.... Had we not experienced that, how would we ever appreciate something as simple as rolling over? We wouldn't. Life is awkward, Life is strange...and sometimes, Life is not fair, it seems. But yet, somehow, God allows us to open our hearts to the blessings that
Email:jnw_jnn@hotmail.com Comments:My, how blessed you are. Sent here by Reese's site, I am so surprised to see that someone else seems to have had some of the realizations I have. The beauty that can radiate from a moon-faced, bald-headed, jaundiced child is like no other. It can only be appreciated by those who truly look beyond the tubes, electrodes, pumps and monitors--and that's what makes it special. There is no love like that of a child...that is true. But there is so much love to come with a sick child, though we are so scared at first, petrified of the unknown, fearing what the future will bring...we manage to accomplish so much that would never have been possible had we had a healthy child. Had we had a healthy child, would we know the joy that comes with being discharged? Would we be able to appreciate actually reaching a milestone? If we had not had a baby book left with more empty pages than full ones...a baby book whose Medical Records Section is too small, yet the milestones pages seem to never get touched.... Had we not experienced that, how would we ever appreciate something as simple as rolling over? We wouldn't. Life is awkward, Life is strange...and sometimes, Life is not fair, it seems. But yet, somehow, God allows us to open our hearts to the blessings that come with tragedy, the knowledge that comes with fear, and the true amazement that comes with being parents. How blessed we are, indeed, even though it seems to the outside world that we may have been cursed. Our children touch lives each day, how many healthy kids do that? Praying for Christopher, as well as his loving parents. Jennifer Naeger www.caringbridge.org/mo/butterflyty
Email:laynehokies@mindspring.com Comments: I pray for you guys everyday and always look forward to the website hoping there will be good news on there. I am going to be there soon just trying to make plans to get there maybe next weekend. Hoping to hear good news soon. ZLAM Sarah Layne
Email: Our thoughts and prayers are with you and Christopher. As a parent I can not imagine your pain and admire your courage. May God be with you and your child. We will keep praying for him. Comments:
Email: Comments: All of you are remembered daily! MBeitner, SPC
Email:vt9@msn.com Comments:Christopher, Paige,and Joe: "We all need special angels, to gently sow the seeds. That keep us growing stronger, throughout our times of need. They weed away misgivings, and they bring us sunlight too... Here's hoping that your angel, is ALWAYS there with you." You all remain in our hearts and prayers. Love Jason and Janet (Tooley) Hackler
Email:cjsunne@yahoo.com Comments: Christopher, Paige, and Joe. The Michigan contingent is keeping watch with you. One of the Sunne's visits this page every day, and Christopher's friends Matthew and Elizabeth pray for him every night. We are amazed and inspired by your strength and resolve. We agree with my sister, that he's going to grow up to be Hercules. He's already the strongest kid we know. -Love From The Sunne Family (Charlie, Patti, Matthew, and Elizabeth)
Email:carolepuckett@aol.com Comments:I wish there was something we could do. We think of you constantly and prayer for Christopher's health and your strength. Carole and Bill
Email:mbryant@cox.net Comments: May you find comfort and feel the caring love from the prayers of so many being lifted up for your whole family. God's eye is on the sparrow and I know he's closely watching over Christopher! Keep the faith!! Love, Marlene (Brad's mom)
Email:jedthrice3@cox.net Comments:paige, joe and christopher i check everyday and send all my prayers and thoughts to you and sweet boy christopher. please know there are prayers out there for all three of you. you all are my heroes. nancy from femme care
Email:akn@ssb.no Comments: I am praying and hping with all my hart that Christopher will be fine very soon. A big hug from Norway!
Email:dslevin@adelphia.net Comments:No news is good news ... keep fighting Christopher! May your flicker of life and hope quickly turn into a raging fire. You are all incredible! Love, The Slevin Family
Email:tina@melroseroad.co.uk Comments:There are times when nothing new to report is the best news you could hear. I am praying your next update is only good news. Love Tina,Padraic,Amy+Sophie
Email: Comments: Dear Joe and Paige, As disconcerting as many of the medical reports may seem--God's report is a good one! We are focusing on God's Word and His report about Christopher--Healing is a promise from God and was secured for all of us at the cross. Our continual prayer is that divine healing will be manifested in Christiopher. When we have done all, we have to stand, standing is the most difficult part. May the angels of the Lord surround you as you continue to stand and endure. Christopher's name and plight has been brought to the very throne of God and God will honor His Word! We love you. Aunt Terry
Email: tmus2000@yahoo.com Comments: Joe and Paige, Rach, Kenzie and, Kayla are keeping you guys in your thoughts and prayers. You have courage beyond words, not to mention Christopher. Here is an Irish prayer, "May the road rise to meet you. May the wind be always at your back. May the sun shine warm upon your face. And rains fall soft upon your fields. And until we meet again, May God hold you in the hollow of His hand. Amen We are here for you. Love the Mastals
Email:AngelHaps@aol.com Comments:Dear Paige and Joe, What good medicine you all received. You had good friends, Christopher responding and the hope of a better tomorrow. God and His angels are hard at work. You are giving Christopher what he needs most....LOVE. My prayers are with you. Love and Angel Hugs, Louise
Email: trahey10@msn.com Comments: Hi Paige. Hi Joe. I personally know how difficult your situation can be but blessfully you have a warm loving circle of friends and professionals caring for you. My prayers and thoughts are with you. Fran Beamer, r.n.
Email: cinnylouwho@hotmail.com Comments: I found out about your site through BabyCenter's March 2003 bulletin board. What a strong and brave little boy you have, and what a cutie!!! I have twins born 3/22/03 and, as a VA native (I grew up in No. Va, Triangle, near Quantico), I just wanted to let you know that you all are in my thoughts and prayers daily. God Bless all of you!! Cindy Sickelsmith, Ellwood City, PA
Email: Comments:Christoper, keep on fighting. We are not there with you, but you are in our prayers. Your little body has our support & encouragement to heal. God bless. Love, Susu & John Bracco (friends of Grandma Ann)
Email:AngelHaps@aol.com Comments:You have all my love and prayers, prayers, prayers!!!!!!!! Love and Angel Hugs, Louise
Email:mjherwig@comcast.net Comments: Dear Paige and Joe, I am so very sorry that Christoper has had such a difficult last few weeks. My heart aches for you and all I could do was cry today as I read the updates from the past two weeks. I promise to pray more diligently for your little boy who is so strong in spirit and so surrounded by love. I am so thankful your hearts have not turned bitter towards God...it would be so easy for that to happen. I know it would be so hard for me to stop questioning "Why?" and to keep complaining 'It's not fair!" But, you've been blessed by the "angels" God sends your way to help you try and understand that life IS HARD and UNFAIR, but God's love is BIG enough to sustain you through it all, even when you think you can't go a step further. May you find something to celebrate today...a smile from Christopher or a squeeze from his hand, or a wet diaper!...and may you receive the strength you need for this day. Thank you for sharing Christophers' story with us and for allowing us to pray for him and for you. Yours in Christ, Michele Herwig
Email:aaronsmom1027@sbcglobal.net Comments:I am still praying hard for Christopher. I have been keeping everyone on the MPS Forum updated about his condition. Christopher has more than half of the world praying for his healing. He is an amazing little guy and hopefully things will turn around soon!!! XOXO Trisha Athy
Email: Paige and Joe, I just wanted you to know that I think of you every day. All of you are in my thoughts and prayers. Paige, you once wrote to me and said " I think the name Christopher in itself is a very powerful name because it contains the name "Christ". Hold on to that, it is so true. Much love, Denise Comments:
Email:mathis.mt11@cox.net Comments:Paige, Joe and Christopher-- I think of you everyday and hope things get better soon. Sending positive thoughts and prayers from my family to yours. Hang in there. Love, Mary Mathis
Email:smbeck@surry.net Comments: Sending prayers asking for a miracle for little Christopher and sending prayers asking for strength and for God to keep you wrapped in His arms so that you will not feel like you are alone..... Jeff and Stephanie Beck, Mt.Airy, NC
Email: Comments:Joe, Paige and Christopher: Know that we love you and that we stand with you in your time of trial.
Email:salima.z.hemani@accenture.com Comments:Hi Joe, I am not sure if you remember me but I am part of the Accenture Government Center and worked with you a few times when you were here. I came to learn about this website through my sister who currently works for Northrop Grumman. I just want to say that my prayers are with Christopher and your family -- Thanks, Salima Hemani
Email: tsalbert@aol.com Comments: You dear wonderful people. Hi, this is Todd Albert. Paige, I stopped by to see you and Christopher on May 14, while in MD seeing customers. I learned of your situation through your parents and serve as an elder with Lin at SPC in Midlothian. Joe, I was sorry to miss meeting you during the visit. There will be another time. I spoke with Lin today and he updated me on Christopher's status and on you both. I have also spend a good deal of time looking through Christopher's website again. I am praying hard! It is easy to ask the question, "Why Christopher and why our child?" I have pondered this with my own children, before meeting Christopher and regularly since meeting him. Unfortunately there is no answer that we here on earth can provide. We can only deal with what is before us. This is an answer only known to God and Jesus Christ. But let me reflect on what I saw and realized when I met with Christopher and Paige and am sure that I would find with Joe. God is Love. God is Love. How can this be in this situation? When I looked in Paige's eyes, heard her talk about the situation, see and feel the pain at the same time, you can also see the gift of love that God has given to each of us, which you feel so intensely because of the love that you have for your child! It is visible and it is wonderful! Your love and passion is so intense, perhaps magnified by your situation. Look at how many people your love has touched, has pulled together. 20,000+ hits on this website. Goodness knows how many letters, e-mails, phone calls, conversations and prayers!!!! And why? Because of care, concern, because of love. Christopher knows that his mother and father, grandparents, family and friends (and as a pet lover, pets!) are with him. He is blessed! We don't know the future. We can see the sometimes cruel reality of today. It is though a detail and while it is the place to focus attention, it is not the place to dwell. We can and will pray for the best. Thank you, all three of you, for your passion, your fight, your inspiration and most of all, your love. Paige, Joe and Christopher, there are many of us out here for you. We are concerned for you, we pray for you and we love you. Again, thank you for your passion, your inspiration and most of all, your love. We will not give this up and we will not allow you to give up either. That is what love is. Todd
I've been praying so hard for little Christopher, and for you guys too Joe & Paige. I really hope that Christopher can come off that vent, that his lungs heal, and that the roller coaster evens out for you all. Gwen Meehan
Email:tina@melroseroad.co.uk Comments:We are praying for you all. Keep fighting sweet boy. Paige + Joe you are wonderful parents, the strengh you have shown. Love Tina,Padraic,Amy+Sophie
Email:akn@ssb.no Comments:lovely little Christopher...keep on fighting. I hope with all my hart that you will win this fight. I live on the other side of the world, but every day I am thinking about you, and praying that you soon will get well Love krissi
Email:glspring@erols.com Comments:Dear Paige and Joe, We have not met yet but we are praying for your precious little boy to rally. You have all been through so much. You really are wonderful parents to Christopher- Sincerely, Elisabeth Roberts
Email:selboc@aol.com Comments:Paige, Joe, and Christopher... I find myself here 3, 4, sometimes 5 times a day hoping for good news. The sweet photos are also a reason! My heart is so heavy and so sad but I'm not giving up, OK? I really wish I could just give you a hug, or take your pain for a day. But all I can do is pray.. and pray hard... just like so many other people all over the world! God's speed little Christopher!!! Love, Shawn, Taylor, & ^^REESE^^ Coble
Email:nicole.mendoza@vastera.com Comments:I continue to pray for you every day. Christopher is definitely a fighter! Take care of yourselves! Love, Niki
Email:samdramsey@comcast.net Comments:We are bowing at the feet of Jesus on your behalf, I pray he will hold you tight and heal Christopher in a mighty way. All our love to you The Ramsey's
Email:mmchick@comcast.net Comments:We are so sorry for what Christopher is going through. We think of him all of the time and pray for healing. -The Ciacciarelli Family
Email:jobedu@allel.net Comments:I just got in town after being gone a few days and am so saddened by what I read. I knew that Christopher was going to be doing better. I am so sorry for you both and I wish I could do something. I will definately be praying for you all and will continue to check in for updates. (By the way, I am JoBethfrom Georgia and have been keeping up with Christopher for a while now.
Email:djvpool@frontiernet.net Comments:Paige and Joe, My heart just breaks for you both. Please know that there are many who are praying for you. Christopher was such a sweetheart and will be missed! Big hugs from your MPS family. Love, Debbie Vanderpool and family
Email:akn@ssb.no Commen I am so , so sorry, my hart are breaking for you and your sweet little boy. I cant even begin to imagine the pain you must be feeling. Every day I used to read your updates, and I was so sad when I came in to the office today and saw that beautiful Christopher had become an angel. You must be so proud of your little angel, and I am sure he is watching you, feeling proud about you. Lots of love from Norway
Email:jean.haney@ngc.com Comments:Paige, Joe and family, no words could ever be expressed to even try to know what to say to you all. I've known you almost your entire life and know the heartache you've all suffered many times over. God has a very special place in heaven for all babies, right in his arms. Don't ever believe anything else. Don't lose your faith that he has his reasons for the lengths of time he puts his angels in our lives. Just remember, YOU are special to your families and all your friends, just as your precious Christopher is. We all love you and grieve with you. Deepest love to you all. Jean and family.
Email: Comments: I am just sending all my love to your family. May Christopher's spirit inspire many other children and families of Hurler's. Love, Mighty Max's Aunt Peeps (I'm sure he and Max are shining brightly together.)
Email: selboc@aol.com Comments: Paige and Joe... I, too, know all too well the pain of burying your 13-month-old baby boy. I am so so so so sorry you have to go thru this. I wanted and prayed so hard for Christopher to win this battle. But, he couldn't.. his little body took so much and God said it was time. I know, from experience, how those words don't really help much when all you want is to have your child here with you. There's a song by Mercy Me that makes me think of Reese... it's called Homesick.. The song goes like this: You’re in a better place, I’ve heard a thousand times And at least a thousand times I’ve rejoiced for you But the reason why I’m broken, the reason why I cry Is how long must I wait to be with you I close my eyes And I see your face If home is where my heart is Then I’m out of place Lord won’t you give me the strength to make it thru somehow I’ve never been more homesick than now Help me Lord because I don’t understand your ways The reason why I wonder if I’ll ever know But even if You showed me the hurt would be the same Because I’m still here, so far away from home In Christ there are no good-byes In Christ there is no end So I’ll hold onto Jesus with all that I have To see you again. I close my eyes And I see your face If home is where my heart is Then I’m out of place Lord won’t you give me the strength to make it thru somehow I’ve never been more homesick than now I know how homesick you are.. my heart aches for you.. my eyes cry for you... and I love you guys. These next few months are going to be very hard, just don't lose sight of where your son is.. SAFE IN THE ARMS OF GOD!!!! God bless you.. you're in my prayers and my thoughts... Shawn Coble, mother of Angel Reese Daniel Coble
Email:AoifeHavey@hotmail.com Comments:You are always going to be in our thoughts & Prayers.
Email:janetjackson62@msn.com Comments: You are in our hearts and prayers. Because of our love of Jesus Christ, we know one day we will meet your little Angel, Christopher. May you find peace during this time of separation. With Love, Janet
Email:tmus2000@yahoo.com Comments: Joe and Paige, Rach and I are here for you in any way you need. God Bless you and you have our love and prayers. Thomas and Rachael
Email:gtrivette@i-america.net Comments:
Email: tobefit@yahoo.com Comments: Words cannot express how deeply sorry (and sad) I am for your loss of Christopher. While no words can help you with your loss, please know that you and your family are and will continue to be in my prayers. While no one ever knows why we go through what we do - I believe that God has a special place for Christopher in heaven where he is free of hospitals and filled with toys. God bless you and your family.
Email: tobefit@yahoo.com Comments: Words cannot express how deeply sorry (and sad) I am for your loss of Christopher. While no words can help you with your loss, please know that you and your family are and will continue to be in my prayers. While no one ever knows why we go through what we do - I believe that God has a special place for Christopher in heaven where he is free of hospitals and filled with toys. God bless you and your family.
Email: Comments: Dearest Paige, I have never been able to have children and when I saw your little Christopher, I looked at his pictures and adopted him as my cyber-child. When he became very sick, I asked God to please take me home to Heaven instead of Christopher. Why him and not me I asked the Lord. I only know this to be the truth, God has a bigger plan that neither of us can see right now. Rest assured we will know it eventually. Though our eyes be filled with tears and our heart broken, Love never fails to heal us. Love and cyber hugs, Mary
Email:kthomas_2003@yahoo.com Comments: I am so sorry for your loss. You and your family will be in my prayers Kim Thomas Dobson, NC 27030
Email: Comments: We have never met, but I just read of Christopher's passing and wanted to let you know that I am praying for your family today. Leigh Ann Edwards Bowling Green, KY
Email:carol_burgess@kerrgroup.com Comments:I found your site through Reese's site. I am so sorry for the loss of your beautiful angel. I have no words to express the feelings I have. I just want you to know you and your family are in my thoughts and prayers continously. Love, Carol Burgess
Email:katilynnsmom@yahoo.com Comments:we are so sorry for your loss the words that i say wont confort u.but i want you to know that we all are praying for your family and my god hold you close to his heart and just know that god will keep christopher with him always.
Email:fortneca@unos.org Comments:You all are in our thoughts and prayers
Email:CARINGBRIDGE.ORG/IL/AARONATHY Comments:I just wanted to let you know that I am still thinking of your family. Everyone on the MPS Forum is praying that you will find the strength you need to go on in this world without your precious son. Once things have calmed a little please stop ny the forum. There are parents on the forum that have lost their children to MPS too. I understand how something like this can make you question your faith. I question my faith all of the time and Aaron is still alive. We have to try to believe that God has this great plan for each and everyone of us. Christopher has touched the life of sooo many people who have never even met him before. Maybe Christopher's mission was to help me know how lucky I am to still have Aaron on days when I am really down. Who knows?? All I know for sure is that Christopher was a strong little boy who faught till the end!! Heaven is lucky to have him. XOXO Trisha Athy
Email: Comments:I'm so, so sorry for you loss. I heard about Christopher from Reeses web site. I will say a prayer for your family. What a beautiful little boy. prayers~ Jennifer Parenti Orford, NH
Email:LMisetic@aol.com Comments:Dear Paige and Joe, please accept my deepest condolences. I never met you or your son Christopher in person, yet you all have changed my life and the lives of hundreds if not thousands of others who have followed Christopher's journey on this website. Christopher Joseph Migliozzi, and his wonderful parents, taught all of us about love, about perserverance, about sacrifice. Everyone who has come upon this site has looked into their own lives to realize that life is not measured by the number of days you are on this planet, or the number of possessions you accumulate, the amount of money you make or the fame you achieve. Christopher Joseph Migliozzi taught me (and many others) that life is measured by the love you share with those around you and the number of hearts and lives that you change by that love. Please know that Christopher's love, and the unconditional love bestowed upon him by his parents, has truly changed my life. I can safely say that, by this measure of life, Christopher has accomplished more in his thirteen+ months of life than I have in more than thirty four years. He is now enjoying his heavenly reward. God bless you, you are in my prayers. Luke Misetic
Email: william.savage@verizon.net Comments: Christopher was a brave boy. The composure, energy, and support for each other that you always demonstrated was astounding. You are a remarkable family. Warmest regards, Will Savage, MD (pediatrics resident, JHH)
Email:unc_fan@bellsouth.net Comments:I have come from Reese's site, just to say how sorry I am to hear about Christopher, I have only followed Christopher's site for the past 3 months. I know Reese will take Christopher by the hand and tell him how to send you messages like Reese sends his mom and all her friends messages by sending ladybugs to us every once in a while. You are both in my prayers.
I'm guessing that God just needed another angel. My heart is breaking for both of you, I simply can't imagine the pain you are feeling. You continue to be very much in my thoughts and prayers. Gwen Meehan
Email:mercury208@hotmail.com Comments:Hello Paige and Joseph, I have been following Christopher's website for the past half a year. I never wrote because I wasn't sure if you would know who I am. I am Christine, Joe's father's cousin's (Elena) daughter (you may remember my sister Erica). I have shed so many tears over Christopher's story, and shared him with so many others. Your hope and faith are unbelievable. You both have helped me put my life in better perspective. As a mother I found it difficult to look beyond sleepless nights, teething and a broken arm. Your display of constant hope and courage is rare and has gauranteed you a place among the angels. Thank you for sharing your heart-wrenching, life-changing experience with us all. I find it amazing how one tiny life has changed the lives of hundreds around him! Love Cousin Christine
Email:cjsunne@yahoo.com Comments:Paige and Joe, we were heartbroken to hear about Christopher. We hope that you can find some comfort in the knowledge that you now have your own personal angel in heaven. He will always be there to lift you up, and watch over you. We will continue to pray for your family every day. Love from the Sunne Family.
Email:NannaJulia@aol.com Comments:I do know how you feel. We lost our precious Reese, March 10th, 2003 under almost the same circumstance.He was also 13 months old. Had Hurlers and died from complications from pnemonia. It is a pain that will drown you at times and make you wonder how you will ever survive. But, you will. No, you will never "get over" losing your sweet Christopher, but you do get use to living without them. It does take time. Everyone who has ever lost a child will tell you that and you must believe. We have been there. We have walked thru the fire and come out the other side. Hold onto each other and let the ones who love you help in any way they can.God bless you and keep you til you see your angel again. Love, Julia Hill, ^^Reese^^ and Taylor's Nanna.
Email: Comments: I am remembering your family in my thoughts and prayers. I found out about you from Reese's web page. My heart breaks for you even though I don't know you I feel like I do. Love in Christ, Pat
Email:mike@cateseng.com Comments:I am so sorry for your loss and could not even imagine the burden on your hearts. Through all of this keep your eyes on God because he knows the pain you're feeling, for he had to witness the death of his own son on the cross. God will be there with you in your darkest valley to comfort you and he knows the right time to lift you up on the wings of eagles and fulfill His plan for your lives which Christopher was a part of. As you are trying to understand why, I pray that God gives you a peace that passes all understanding. When peace, like a river, attendeth my way, When sorrows like sea billows roll-- Whatever my lot, Thou hast taught me to say, It is well with my soul.
Email:ltjpost@cox.net Comments:My thoughts and prayers are with you as you lay your baby to rest. I was so deeply saddened to learn of Christopher's passing. Every single Hurler baby lost is one too many. God Bless. Lisa Post
Email:mjherwig@comcast.net Comments:Dear Paige and Joe, Please accept my heartfelt condolences on the passing of Christopher Joseph. His little life touched the hearts of thousands of strangers across the country and united us in hope and prayer. He was the most loved little boy on the planet I believe...and he had the two most committed and loving parents loving him, willing him to live. I think he fought as long as he did for the two of you because he loved you so much. I believe with all my heart that Christopher is in the arms of Jesus and that he is healthy and strong, walking and laughing and that he has no memory of tubes or hospitals or stitches. He feels no pain...only love. I cannot for a minute begin to imagine the pain you are feeling and how you must just ache to your very core for your little boy. I pray that you feel even more strongly the arms of your Heavenly Father embracing you and holding you up in the days, weeks and months to come. You were given a most difficult cross to bear this past year and you remained faithful to Christopher and the Lord. I am so sorry Christopher died, I too was praying for a miracle for your family. Thank you for sharing your journey, painful as it was, with all of us who came to know and love your little boy through this website. We will continue to pray for you and your family as you try to heal and go on. You do have the hope that you WILL see and hold your little boy again one day in heaven. What a blessed reunion that will be. But it is the days between now and then that will be the hardest. I will pray that God will give you strength for each day and the knowledge of his love for you even in the midst of your grief. I am so very sorry for your loss. You were given a little piece of heaven to love these 13 months, and you blessed him in immeasurable ways. With sympathy and love, Michele Herwig
Email:cbrescia@rsis.com Comments: Dear Paige and Joe, Thank you so much for sharing the story of your angel and of his will to fight. He is blessed to have shared his life with so many people who cared so much for him, and I know those who knew him have been truly touched by an angel. I think you three epitomize Commitment and Courage, Hope, Resolve, Inspiration, Strength, Tenacity and Tirelessness, Optimism, Promise and Perseverence, Heart and Honor, Endurance, and Resilience, and that to me is CHRISTOPHER. May we all have a little CHRISTOPHER in our lives. Sending you prayers, soft tissues, warm embraces and comfort during these trying times, Bob and Caroline (Carr) Brescia P.S. and Paige, it isn’t the handshake that matters. That just got your foot in the door, it's what happens on the inside that counts and lasts.
Email: Comments:I am very sorry for your loss
Email:laynehokies@mindspring.com Comments: My heart goes out to the two of you!!! I can't imagine the pain parents feel when you lose a child. I almost cry every time I hear Andrew cry. I will be there on Thursday to give my regards to you and your family. We love you!!! The Layne's, Sarah Jimmy and Andrew
Email:www.caringbridge.org/canada/isobel Comments: My heart goes out to you! I have followed your story but I don't think that I have ever signed your guestbook. My hurler baby became an angel on April 10, 2003. Her name was Bella and I miss her dearly. I am happy for her because I know she is free to be a little girl now and not a patient in a hospital. I know Bella met Christopher as soon as he got to Heaven. I wish I had the answers that we all want. It is not fair that our children were born with such a heartless disease. But the one thing I have learned about every hurler child that I meet is that they are all full of heart- they are amazing. I know Christopher was amazing and my heart goes out to you and all your family. Please accept our condolences. We will pray for you and I will continue to check in and see how you are.
Email: tousleym@aol.com Web site: Grief Healing, at http://www.griefhealing.com Comments: My heart broke into pieces as I read of the life and death of your precious little angel Christopher. I'm sure your hearts are broken, too, and I hope it helps to know that you are not alone in your pain. Please know that I am thinking of you and sending my heartfelt sympathy. In sorrow and with love, Marty Tousley, a Bereavement Counselor in Phoenix, Arizona
Email:bballlkw@aol.com Comments:I would like to send you my prayers and let you know that I have a 15 month old daughter. Your courage and strength is amazing and I know that Christopher will never be forgotten. I heard about his story from one of your family friends. I was touched by the website and know that your support and dedication to Christopher will remain with him in heaven. I can't imagine what it is like to lose a child, but I believe that Christopher is resting peacefully knowing his parents loved him more than anything in the world. Sincerely, Lindsey K. Withers
Email: Robin.Boger@rbc.com Comments: I am so sorry for the loss of your precious Christopher. I am good friends with Shawn Coble, Angel Reese's mommy and you all have been in our prayers for some time. How we had hoped for Christopher to receive his healing here on earth. Now our prayers will be for you as learn to live without your precious baby. May God bless you and keep you and bring you peace during this most difficult time. God bless.
Email:heimbach1941@aol.com Comments: My name is Donna Heimbach, mother of Tom Heimbach. Please accept my heart-felt sympathy for your profound loss. Your website is very moving and poignant. Our lives have been touched by tragedy like yours. Our oldest son, Paul Philip went to heaven on July 20, 1969 after battleing with a brain tumor. He was a wonderful little boy and we miss him very much. Thank you for sharing this most personal story of Christopher Joseph. My heart breaks for you today, but I believe you will be stronger as a result of this. Look for the good and continue to reach out to others. God Bless YOU and Your Family. Warm regards, Donna
Email:jclarke@nhgs.tec.va.us Comments:I am very sorry for the loss of your beautiful son, Christopher. MPS takes too many of our precious children. We also live in Virginia. My daughter Mackenzie has Sanfilippo Syndrome. My thoughts will be with you during these difficult days. Jennifer Clarke (Mom to Mackenzie-MPS III)
Email: eric@dennisandsackett.com Comments: I just found out about your son today, the day of his funeral service. I really don't know any words to express my sorrow at your loss. Please know that we are praying for your family. I found out about Christopher from Anne Himes. Our son is Matthew who was transplanted for Hurler's last year. www.caringbridge.org/md/matthewsackett/
Email:smbeck@surry.net Comments: As I sit at my desk working, I looked at the clock and thought about the fact that you and your family are at Christophers Memorial service. I said a prayer asking for strength for you to get through this day and the days to come. I read all of your journal entries last night and I was filled with so many emotions. I admire you for keeping your faith through the past 13 months and I am sure in the days to come that you will question your faith many times. The "why's" will all be normal. I pray that one day you will be able to hold little Christopher in your arms again and until that day I pray that God will give you the strength to hold onto to his memories and use those memories to get through the "bad" days. Shawn Coble has a wonderful picture of you and Christopher on Angel Reece's website. I can not imagine what you are feeling but I can say that I know how hard it is to lose a child. I lost my baby on Nov 1, 2000 and there is not a day that goes by that I don't feel the pain. I find comfort in thinking that my baby is in God's arms and they are rocking. I imagine alot of other little angels around Gods feet waiting for their turn to rock. I look forward to the day when I can hold my baby and I wish the same for you and Joe. Find comfort in each other and hold onto the love that first brought you together. Your lives are forever changed but God has given you a special love that has endured through the past 13 months and I pray that you will walk in His love together. Stephanie Beck, Mt. Airy, NC
Email:amyrrr@aol.com Comments: I don't know your family, but I am a friend of Juli Rokenbrod. I will pray for your family today and hold my little one's closer in his memory. God bless you!
Email: mitchem@wwdb.org Comments: Dear Paige and Joe, We're so sorry for your loss. We lost our little princess in October, so we know how you must be feeling. I'd like to be able to tell you that after 7 months it gets a lot easier, but I can't. I CAN tell you that if you hold on tight to God, He can get you through anything! Try not to worry about 'understanding' and just keep believing that you WILL see your baby again! If you are ever interested in a couple of books that really helped us a lot, please let me know. I wasn't able to read anything for the first couple of months...nothing made any sense. But eventually I began to read again and there were a couple of books that were very comforting to me. We heard about Christopher through both Nolan Ramsey's site and through Reese Coble's site. Again, we are so sorry for your loss, and we will keep your family in our prayers. Proverbs 3: 5,6 Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him and he will make your paths straight. Love in Christ, Marian and Mike Mitchem www.caringbridge.org/nc/princessmadison
Email:ckellogg4@cox.net Comments:A friend of mine on pregnancy.org (Gwen) told us all of your sad story. I just want you to know that I have been deeply touched by Christopher 's(and your) strength and faith. To read the stories of praying over nail polish...we all foreget sometimes how fragile life is, but that God is always there with us and gives us the strength to keep going. I want you to know how truly and deeply sorry I am for your loss. And that there are at least two churches in Wichita, KS fervently praying for your family. I can only imagine what you must feel right now (my son died the same day he was born). My many hugs to you and may God truly give you a sense of calm until His return. Rachael Kellogg
Email:klanderkat@yahoo.com Comments:Oh how your story has touched my heart. I went through a very good friend losing a son, at 18 months, to cancer all through his little body. You are right, there is nothing worse. I pray that you will continue to feel the love of the Lord through the people who surround you. God has blessed you all with so much love and support. May Christopher live forever in many many hearts! I heard about your story from a co-worker of Joe's, Abe Usher. He and his wife are praying for you. May you be blessed.
Email:laynehokies@mindspring.com Comments: I thought the service was wonderful and you and Joe did such a good job making it so personal for Christopher. I am here for you if you need anything and after things settle down we will all have to ge together on better terms. We missed you so much and felt for you yesterday!!! We are all so glad we came and got to support you. Talk to you soon. Sarah Layne
Email:mary@geislers.org Comments:I just wanted to let you know that you are in my prayers. I cried when I heard Christopher became an angel. I live in Manassas and was going to come on Thursday but my daughter was at home. Please let me know if we can do anything for you. With much love, Mary mom to Kimmie www.caringbridge.org/va/kimberley
Email: rocon99@aol.com Comments: I am so sorry for the loss of your beautiful little Christopher. While he is out of pain and happy in Heaven, I know your pain is just beginning. Please know what we are thinking of you often and praying for you. The Oconnor family
Email: Comments:Dear Paige and Joe, After mentioning your site to my best friend, she immediatly contacted me to tell me how touching it was and to send her prayers your way. It occured to me looking at the guest list that Christopher's story, his stregnth, and your love is much like that movie---Pay it Forward. Never have I met you, and my friend has only heard of you through me, and yet person by person his story is being shared. I saw people who had a note in your guest book from the Richmond Times dispatch from all over and I think that says a lot. He may not be with us here any longer, but his spirit is definatly living on and without a doubt teaching people each in their own way. Though I know you're probably furious with God right now, and I realize you will never stop misisng him, I do hope that you are able to find comfort in all those who have been touched by you and your family.
Email: carlos@macit.com.br Comments: Hi - My name is Carlos, and I'm from Rio de Janeiro, Brazil. I received the sad news through my friends Heather and Abe. I would like to extend my thoughts and prayers for all of you at this difficult time. And I cannot leave without expressing my true feeling that God is so wonderful that He will work wonders in both your lives in the years to come - always remembering your angel is waiting for you in such a wonderful place - a place so glorious where Christopher is now that we cannot begin to imagine from here.
Email:crazyladyll2002 Comments:Paige and Joe I am truly sorry for your loss - Christopher was a special little boy. I work in the PICU and unfortunately see the death of a child far to often. I honestly believe in my heart that God has a special place for children such as Christopher and he brings them to his home to be his angels to watch over all us. God Bless you and your family. Christopher will be missed.
Email:kamccomb@cavtel.net Comments:Paige and Joe, I am so truly sorry for your loss. Please know that you and your families are in our thoughts and prayers. Paige, it has been along time since college, but I can still see you and hear your sweet, always positive voice. I am so sorry you have had to go through this. All my love, Kim (Atkins), John, Connor and Reilly McComb
Email: Comments: Paige and Joe, You and Joe have been an inspiration to us all with the sharing of the beauty and sorrow of Christopher's short life. We know that there is another small angel in Heaven. Our prayer is that God's comfort will be with you in the coming days as you remember your son, Christopher. Friday night, there was a beautiful Monarch butterfly fllying around in our backyard. We remarked about the beauty of the butterfly. Dan and Becky Huffman Friends from Salisbury Presbyterian Church
Email: ledwards@lifeskills.com Comments: We have never met, but I wanted you to know that I am checking your page daily and I grieve your loss with you. My thoughts and prayers are with you. Leigh Ann Edwards
Email:4FOSTERS@COX.NET Comments:Although you do not know me, you went to VA TECH with my cousin Kristen Saunders. She had always kept me informed about Christopher. He really is an angel . How wonderful your website is. You have such strength to have kept up with the site and written all that you have. Its just beautiful. Everytime I see a butterfly I will think about your beautiful angel . You are an inspiration to all of us!!!! Adrienne Foster
Email:tina@melroseroad.co.uk / www.melroseroad.co.uk Comments:Just wanted you to know, you are in out thoughts and prays. Love Tina,Padraic,Amy+Sophie
Email:vpihokie@hotmail.com Comments:Paige, Becca forwarded your website to me the other day and I just wanted to let you and Joe know how deeply my family's heart goes out to the both of you. Christopher's story has touched the both of us and it is such a tragedy when a baby has to leave this life. God has a very special and cute Angel with him. Our prayers, Scott and Nora Comer
Email:beni971@bellsouth.net Comments:Dear Paige and Joe, Yes, dear ones, you are always a Mom and Dad. When our parents pass away are we not still their child? Do we not remain a daughter and a son of our parents, be they alive or in heaven? Christopher's life defined your roles as parents forever into eternity. These days, as you have shared, are indescribable, however they will pass. The pain will never cease, as I am told, but it will become tolerable and you will be able to go about the daily business of living. The "whys" are overwhelmingly and beg for answers, only God Himself can supply an answer that will suffice. Perhaps a confirmation or vision of Christopher's peaceful, contented life with His Heavenly Father may help. The Lord gives each of us what we need, and delivers it in the manner in which it is the most acceptable. Be assured that He will not leave you nor forsake during this dark hour of your lives. "Lean not unto your own understanding..." are the only words I can give during this time. We love you and you are in our continued prayers. Peace be with you, in the Name of the Prince of Peace, Jesus. Love, Aunt Terry and all.
Email: tmus2000@yahoo.com Comments:Joe and Paige, This log is one of the most touching journal's. You have been and will continue to be in our thoughts and prayers. I will give you guys a call in a couple of days. Peace be with you. Love, Thomas and the ladies (aka 3M Mom, Mackenzie, and Makayla) :-)
Email: Comments:Our hearts are crying with yours. Your beautiful little angel, Christopher, is among other angels & butterflies. He will be remembered fondly & lovingly. Susu & John Bracco (Nursing school friend of Ann's)
Email: Comments:Hi Paige and Joe - I don't have e-mail anymore (I am using Bobby's work email to send this). Please give us a call sometime if you feel like it. I'd love to yak! Love you both - Martha Skurla (Sally's mom) 301/299-7972
Email:AngelHaps@aol.com Comments:Dearest Paige and Joe, I am so very sorry for the insensitive comments that people make. I always say a silent prayer that I don't offend anyone with my comments. I cannot even imagine for an instant the pain that you must be in. I lost my parents 7mos. apart and thought I was going to die, too. I cannot fathom losing a precious child. I continue to pray that God will help you to find comfort and peace. Realistically, I know that that will take time. I admire you for continueing to journal and allow us to be with you on this painful journey. I, too, believe that our loved ones send butterflies. I have two in my backyard, now, and I know who they are and I talk with them daily. Cry, yell, scream, sleep, throw something. Do whatever you have to to get through this, and know that we are all out here praying for you. Your precious Christopher will ALWAYS be with you. Love and Angel Hugs, Louise
Email:laynehokies@mindspring.com Comments:Oh Paige, how I cry almost everytime I read this journal now. I hope that people will get better knowing what to say. I hope that you and Joe can celebrate that you have a great marriage and the love you have as a family will live on forever. I hope that I can get up there soon so maybe we can go to lunch and catch up on things. I will try to give you a call sometime soon. We love you guys. Sarah, Jimmy and Andrew Layne
Email: selboc@aol.com Comments: just checking in... keep journaling, it'll help more than you think! Love, Shawn
Email: Comments: I'm proud of you, Paige. You definately have the strength of your son! Stay strong and may the butterflies multiply day by day within your life. Keep a smile on your face and love in your heart ~ All will soon be better. It just takes some time ~ Mary
Email:hockeykid@telus.net Comments: Hello my name is Jenna and I came across Christopehrs website. I am very sorry for your loss, and I will keep you in my thoughts and prayers. I know that Christopher is a very special angel, and that he is looking down at you, and smiling. I was born with a rare bone disease, and here are my sites: http://www.caringbridge.org/canada/jenna
Email:jennmarie@bis.midco.net Comments:Paige and Joe~ I have been following Christopher's journey since before he started transplant. I'm sorry I have not signed. I came across a butterfly memorial poem and wanted to share it with you. Butterfly Memorial- Release of Butterflies “A butterfly lights beside us like a sunbeam. And for a brief moment its glory and beauty belongs to the world. But then it flies once again, and though we wish it could have stayed, we feel so lucky to have seen it.” As you release this butterfly in honor of me, Know that I’m with you and will always be. Hold a hand, say a prayer, Close your eyes and see me there. Although you may feel a bit torn apart, Please know that I’ll forever be in your heart. Now fly away butterfly as high as you can go, I’m right there with you more than you know. Where I have gone I am not so small. My soul is as wide as the world is tall. I have gone to answer The call, the call Of the one who takes care of us all. Whenever you look, You will find me there- In the heart of a rose, In the heart of a prayer. On butterflies' wings, On wings of my own, To you, I'm gone But I'm never alone- I'm over the moon. I ... Am.... HOME !!! My daughter, Allison also has hurlers. Christopher will always hold a place in my heart. Please know that our prayers are with you.
Email:jobedu@alltel.net Comments:To Paige and Joe! I just wanted to let you know that I am still praying for you. Thank you so much for updating the site. We have never met but I feel like I know Christopher and his family just the same. I will keep checking on you all and praying for God's strength to lift you.
Email:ltjpost@cox.net Comments:Continuing to keep you in my thoughts and prayers during this difficult time. Lisa Post
Psalms 116:15 Precious in the sight of the Lord is the death of His saints... Love, Shawn
Email: Comments: When my youngest son was born in 1996, I heard this song on a tape for babies and the words were very sweet. Today, as I read the Butterfly poem I am reminded of this song and thought I would share the words, as I remember them. I will insert Christophers name where appropriate. Butterflys go up and down Fluttering above the ground Butterflys can sore up high Someday, Christopher, you will fly. Close your little eyes Sleep until you dream Someday you will know that you can do anything. Crickets chirp the whole night through Singing songs for me and you Crickets chirp, with wing to wing Someday, Christopher, you will sing. Sunbeams come from up above. Showering us all with love. Sunbeams come from way up high. Someday, Christopher, you will shine. Christopher, Close your little eyes Sleep until you dream Today, you know that you can do anything. There is nothing anyone can say, no words to ease your sorrow and the depth of loss you both feel. I dont know that time will ever lesson the sense the pain, perhaps it will only soften the edges of it. I am so sorry. When I read you are still trying to figure out where he is, that you are not certain that he is ok because you cant physically touch him, it breaks my heart. I was looking at the picture of you and Christopher where you are asleep in his crib with him and holding him. I spent many, many nights in that very same position with my son. And I understand that need you have to be able to touch him and see him to know he is ok. Being on the outside looking in I feel he is in the arms of God and that gives me, a total stranger to you, comfort. I hope that will be what comforts you at some point though I know nothing and noone can offer you any respite from your grief. Godspeed to you both
Email:tina@melroseroad.co.uk / www.melroseroad.co.uk Comments:A Perfect poem. Love Tina,Padraic,Amy+Sophie
Email: Comments:I just wanted you to know that I think of Christopher every day. Today I saw butterflies on so many things around my house, little scraps of wrapping paper, a paper plate, a notecard hanging on my refrigerator, so many places. Every time I see a butterfly, I think of Christopher. Thank you for sharing the story of his love of butterflies with us; it really gives a sense of comfort to see one and know that Christopher is sending messages down to us every day. Thank you also for keeping in touch through this website with all the friends you may never know. Christopher will always be with you and he continues to touch so many people's lives. I know that I have been truly blessed for having known him without every having met. I will continue to keep him and you in my prayers.
Email: cinnylouwho@hotmail.com Comments: I, too, am a total stranger to you, but I continue to think of Christopher every day. Like he entrusted Mary with his son, so he entrusted his special Angel, Christopher, to you both. What trust he had in you. He knew you would love him and cherish him as much as he does. I find myself drawn to the website daily. Honestly, it is the first site I look at each day. The pain you are feeling is so great. My heart breaks as I read the updates and look at his beautiful face. Thank you for sharing him with us. I will be sending a contribution for the memorial fund. It isn't a lot, but I know that it will be used in Christopher's name, and that gives me great joy. God Bless both of you. Cindy, Rob, Jake and Katie Sickelsmith Ellwood City, PA
Email: Ferrere_Home@msn.com Comments: Paige, I am a ZTA alumnae with the Western Fairfax group, of which Nicole Mendoza is a member. She said she knew you well at school. My husband worked with Nicole at Vastera and that is how I first came to know Nicole. I wanted to express my deepest sadness to you and Joe. My husband and I don't have children so I can't begin to understand the depth of your loss and pain. The innocence of the young and the small that seem so helpless gets to the deepest part of my heart. I have lost many people near and dear to my heart. The only way I can begin to cope is to know they are with my Lord and Savior. I believe in the beautiful and peaceful place that heaven is described for us and, I believe I will see those people again one day. Matthew 19:14 reads, "Jesus said, 'Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these'. Please know that God is taking great care of little Christopher. I hope the two of you are holding each other through these difficult days. I will say a prayer for you and Joe. In Christ's love, Pam Ferrere
Email: Comments:Dear Paige and Joe, your website is a daily inspiration for me. Little Christopher is so lucky to have been given the two of you as his parents. The love that the 3 of you share, warms my heart. I think of Christopher everyday and say hello to him when they butterflies visit me in my garden. Seeing the butterflies and thinking of Christopher makes me smile. Thank you for sharing his story with us all!
Email: Comments: Hi Paige this is Bob Olsen Lindsay Olsens Dad, remember me from ballet? We are so sorry to hear about Christopher, our hearts and prayers go out to you and your family. I saw your dad on Saturday, and he explained everything. Just a quick note My Lindsay had a girl on her birthday Sept 14 and named her Paige. Give a call if you get to Richmond Bob Olsen r.e.olsen@att.net
Email:laynehokies@mindspring.com Comments:I think the Christopher wall is a great idea. I can't wait to see it. I have tried to call a couple times but no one is at home. I will keep trying. I hope that we can get together soon. My thoughts and prayers are with you. The Layne's, Sarah Jimmy and Andrew
Email:nojoicfox@hotmail.com Comments: Thinking of you and praying that you find peace that Christopher is O.K. I can't imagine what you're going through. My heart breaks for you. You are the BEST parents any child could ask for and Christopher KNEW each day of his precious life how much you loved him. He still knows. God Bless You!!! Audrey Fox
Email:Trahey10@msn.com Comments: Hi Paige, Hi Joe. These are difficult days filled with heartache. I am glad to know you have such a wide support network and that they are taking care of you. I wish I had a poem or some advice for you but I can only say that in the months and years ahead, your grief will change. It will always be there but it will change. Paige, I hope you feel well enough to come back to work. We miss you and need you on the swing shift! Fran
Email:DOMONICKENT@MSN Comments:I don't know if you will remember me from Salisbury Pres., but am Gillian Couling (now Baker). I am so sorry to here what happened. I started reading your web site and choked back my tears, being a mother of a 4 year old and a 8 month old I just can't imagine the pain. But as I kept reading I found myself feeling better because of the strength you show in your writting! I do really want to say though I am sorry for the pain you have endured. I know how much you fall in love with a child I can't imagine an illness taking them away.
Email: Comments:Hello Paige and Joe. Wanted to let you know that your family and Christopher have not left my thoughts. I am back now, and back at work. Butterflies followed me through Alaska. He is magical. Thinking of you. Always, Katie Dover
Email:davysmama@comcast.net Comments: Bless your hearts. You don't know me, but I just wanted to let you know that we were just commenting today about how many butterflies have been around this summer. I'll give my sweet baby David an extra snuggle tonight and think of your precious son. Amy Sterling Hts, MI
Email:tina@melroseroad,co.uk Comments:Thinking of you today. Love Tina,Padraic,Amy+Sophie
Email:smbeck@surry.net Comments:Just checking in to see how you guys are doing. When I read your outlook on the rain and Christopher playing in the sprinklers I had to laugh because right after Reece Coble became an Angel, Jeff and I went by the cemetary and Reece's flowers had fallen over. I tried to set them up and everytime I did they would fall right back over. I emailed Shawn and told her about it and I told her that I felt like Reece was there and that he was playing a game with me and that he was probably kicking them over and just giggling at my effort to make those flowers stand up. Whenever it rains, I am now going to think of all the little children in Heaven and hope that they are having a good time playing in the sprinklers, running and jumping, free from IV's, tubes, pain and all of the burdens here on Earth. I pray for you and Joe every day and I pray that God will give you strength and that you will feel His presence with you everyday. Jeff and Stephanie Beck, Mt Airy, NC
Email:jgarrard04@comcast.net Comments:Hi. I really don't even know where to beging. Iknow that you are going through something that I can only imagine. Your little angel is looking down watching over all of us. My son has hurler syndrome too. I just wanted to let you know that I'm thinking of you guys. you are in my prayers, Jennifer & Nathan http://home.comcast.net/~jgarrard04/wsb/index.html
Email:laynehokies@mindspring.com Comments:Paige and Joe, It was so good to read that you are taking the steps to go back to work. It will be very hard at first but all the support you will get from you co-workers will be great!!!! I know removing his things from daycare must have broken your heart, I really feel for you. I hope you can make it through the first few days at work ok. I will try to give you a call soon to check up. Miss ya!!! Love the Layne's Sarah, Jimmy and Andrew
Paige.. thanks for the note. I hope reading my journal can help in some way.. atleast in letting you know what you are feeling is completely normal - and that you're not alone in your struggles. I look forward to meeting you one day very soon! We have alot to offer each other with our special bonds! Love, Shawn Coble, mother of ^^REESE^^
Email:Jagators24@msn.com Comments:I too have been to the Carnival by the Sea 2 times....I pray for your family....www.caringbridge.org/page/tommyies
Email:Jagators24@msn.com Comments:I wanted to write more but don't know what happened...I have followed Christopher's story ..I have 2 children with MPS 1...Kaitlyn and Chrisopher are the same age. Tommy is 7 and my daughter Kirstin who was Tommy's donor is 9...I still hold tight everyday to the rollor coaster..Even though my children are doing okay right now I have learned to hold tight and live every second of everyday like their is no tommorrow...We were told Kaitlyn was unaffected with Hurlers..When she was 13 days old they called to tell us they made a mistake. Kaitlyn had her CBT on 11-22-03...I just wanted to let you know that your family is in our prayers and I know the other Hurler babies are right with him running free!!!!... I know 17 of them right now....www.caringbridge.org/page/tommyries
Email: Comments: I have been following Christopher's journey for some time now, and I must tell you how beautiful and heartbreaking "Carnival by the Sea" is. You and your family and friends continue to be in my thoughts and prayers.
Email:nojoicfox@hotmail.com Comments: The sea of life is one of the most poignant things I have ever read. I am so sorry the carnival has ended. I'm sure in time you'll be able to smell the cotton candy, hear the laughter and realize that it's invisible, but very much still here. I continue to keep you close in my thoughts and prayers. When the waves crash, know that many people, even those you've never met, are sending God's strength to paddle you through. Audrey Fox
Email: Comments:I just had to sign your guest book today to let you know that my family will be praying for your family. I just found Christopher's site today while I was searching on ebay. I have a 13 month old boy and can only imagine what you have been going through and the still, many difficult times ahead of you mourning the loss of your son. What a precious gift God intrusted in you both. Your daily updates have touched my heart. It is difficult for me to put in words what I would like to say but know that there are many people that you may not know who will see your site and be praying for your family. God bless. C. Clay - La.
Email:shannonc@wf.net Comments:I came across these website from an auction on ebay...It has truly touched my heart...or breaks it. I just cried while reading your story and I'm still crying. My heart and prayers go out to you during this sad sad time of your life. I couldn't image anything harder to overcome than to lose a child. I have 2 and I just want to go and hug them. You are a great writer and have a real talent..I dont know if that's what you do for a living but just reading this really makes me think about my own life and family. It also made me feel like I was there with you. Seeing the butterflies and watching the dog. If that makes any sense?? I'm not a touchy or crying type of person but this has really gotten to me. I'm so sorry that this has happen to your baby and your family...now I'm crying again..well it's late and I couldn't help but write..You and your family will stay in my prayers..God Bless you
Email:kamccomb@cavtel.net Comments:Hi Paige, I check in on a daily basis to read your daily updates. They are so touching, and make me even more thankful for my two boys. Unfortunately, when life gets busy we all need reality checks to make us stop and be thankful for what we have. Reading your updates help remind me to do that. Thank you for sharing your journals with us. I wish I could reach through the computer and give you a big hug. Please know that I think about you daily. I didn't know Christopher, but I do know what a sweet person you are, so I can only imagine how sweet he was! Love, Kim (Atkins) McComb
Email:Robin.Boger@rbc.com Comments: Thinking of you all and praying for comfort on Christopher's one month anniversary in heaven. Carnival by the Sea is truly heartbreaking but at the same time, a beautiful tribute to your precious baby. You will get to see Christopher again one day, just like Shawn will get to see Reese, healthy, unaffected by Hurlers but still breathtaking beautiful as they were here on earth. God bless.
Email: Comments: I thought of you today in church and how Christopher has been in Heaven for one month. While Don was speaking I was thinking of Christopher playing with the other angels, free of pain and all the tribulation in this world that Don spoke of. You are always in our thoughts and Christopher continues to be part of our lives. I read what you wrote about the Carnival by the Sea often and it makes me cry every time because it's so beautiful. Thank you so much for that and for continuing this journal. I look forward to each new entry, memory, and insight; it helps keep me grounded. I just wanted to let you know that you'll continue to be in my prayers.
Email: Comments:
Email:LMPOST@cox.net Comments:"On Eagle's Wings" is one of my most favorite songs from church. I can NEVER listen to it without welling up! It is such an affirmation of God's love for us during the darkest hours. It is very appropriate that Christopher would incorporate that song into your lives through someone else. God Bless! Love, Lisa Post
Email: Comments:What a darling little boy who should br running, playing and shouting NO at every request. My daughter would be nine this year and I try and imagine all of the things she would be doing but it's really hard. I'm so sorry you lost your little boy after such a battle. May God bless you and give you peace. http://www.caringbridge.com/wa/arielmarinkovich/ holly
Email: Comments:What a darling little boy who should br running, playing and shouting NO at every request. My daughter would be nine this year and I try and imagine all of the things she would be doing but it's really hard. I'm so sorry you lost your little boy after such a battle. May God bless you and give you peace. http://www.caringbridge.com/wa/arielmarinkovich/ holly
Email:fordlodge@sbcglobal.net Comments:I came across your site through another childs. I cried reading your story. I will keep you & yopur family in our thoughts and prayers. Christopher's pictures just made me smile. He is a beautiful angel watching over you. love & Prayers......Jeannie Ford
Email: Comments: Dear Paige and Joe, I came across your website through a lady that was having an auction on Ebay to help defray your medical bills. I immediatetly went to this sight. What a little angel you now have in heaven. Although we have never met, please accept my heartfelt condolences on your loss. May God give you strength and faith to help you throw your difficult days. God Bless you always. Hugs and Love from Wisconsin, The DiBenedetto Family
Email:pat_totoofoz@yahoo.com Comments: Prayers of Love are sent your way, May the Blessed Lord stay with you and comfort you as each day passes. I am sorry to read about Christophers passing, my prayers are with you all. Love Angel Toto Quits of Love
Email:jean@quiltsoflove.com Comments: We are so saddened to read of Christopher's passing. Such a beautiful Angel he is now watching over you. Please know that we are all praying for your family. Hugs, Jean at Quilts of Love
Email:islandprincess@quiltsoflove.com Comments:I am so very sorry to hear of sweet Christopher's passing. May the memories you hold comfort you on the very dark cold days and be a shining ray to warm you. You have been blessed with beautiful signs from Christopher. The butterfly and eagle were your precious son letting you know he is fine and watching out for you. I also have had signs from loved ones. I have my own butterfly experiences and others I have talked to have also. My grandmother passed away in Dec and on the day of her funeral a beautiful Crane landed in our back yard where non have ever come before. It stood there so majestically and let us admire it for a very long time. Upon it's taking flight to leave, it dipped it's graceful head as if to say good bye. God Bless you all, Island Princess
Email: Comments: SO VERY SORRY TO HEAR OF YOUR LOSS..YOU ARE IN MY THOUGHTS HEART AND PRAYERS AT THIS MOST DIFFCULT AND STRESSFUL TIME FOR YOUR FAMILY SENDING LOTS OF ANGEL (HUGS) BLESSINGS ANGEL CHRIS QUILTS OF LOVE
Email: kalynn@comcast.net Comments: There Is A Special Angel There is a special Angel in Heaven that is a part of me. It is not where I wanted him but where God wanted him to be. He was here but just a moment like a night time shooting star. And though he is in Heaven he isn't very far. He touched the heart of many like only an Angel can do. I would've held him every minute if the end I only knew. So I send this special message to the Heaven up above. Please take care of my Angel and send him all my love. Author Unknown
Email:nicole.mendoza@vastera.com Comments: Hi Paige and Joe! I wanted to let you know you are in my thoughts and prayers every day. After reading your Christopher's Caterpillars page last week I gave blood in Christopher's memory. I used to give blood all the time, but hadn't since I got pregnant with my daughter, who is now 21 months old. Reading Christopher's Caterpillars reminded me why I was so dedicated to donating in the past. The two of you, and of course Christopher, have touched so many lives! Take care of yourselves and of each other! Niki (Lare) Mendoza
Email: brett@longandfoster.com Comments: Just a hello to let you know I am thinking of you as usual. Part of my daily schedule is checking the Daily Updates to see how my Paigey and Joe are doing. Hope to see you soon in your "old/new world"...I am blessed to be part of it! Stay strong...
Email:shannonc@wf.net Comments:Just letting you know that your in my prayers. I check back every once in awhile to see how you and your family are doing. Just wanted you to know that on our way to Port Aransas for vacation, I saw butterflies..and guess who I thought of...Christopher You have touched lots of hearts of people you know and even ones like me that you dont know. Lots of HUGS and even a bear hug :) I hope that made you smile. shannon
Email:smbeck@surry.net Comments: Just stopping by to check on you. I still visit the site everyday and I still remember you in my prayers. I know what you mean about people thinking that since you are back to work that you are "moving on and feeling so much better"... this is such a joke. You have to go back to work but what people forget is that once they start getting on with their lives you are still having to face each new day with a huge void and that as each day goes on the reality of losing Christopher sinks in even deeper. I know that people think that it gets easier but it doesnt, if anything it gets harder because at first you can try and tell yourself that you are in the middle of a nightmare and that you are going to wake up and all of this is going to be a bad dream but the truth is that after you wake up and the first days are gone with the visitation and the funeral and everyone gets back to their life your is starting over and those are the hardest days. My heart breaks for the two of you and I pray that God will comfort you in some way whether it be with butterflies or eagles. God has a reason for everything that He does but the hardest thing is accepting some of His reasons.
Email:arhimes@msn.com Comments:Dear Paige and Joe, I just wanted to let you know that I am checking in on you. I hope your pain will ease soon, little by litte, and you will find more and more moments of joy in you days. Love, Anne
Email:tlxavier@cox.net Comments:Thinking of your precious Christopher today...my thoughts and prayers are with you.
Email:otpera@verizon.net Comments: Dear Joe and Paige, We're sorry we keep missing calls to each other. We thought it was too late to call tonight by the time we got home. We think about you all the time and pray to little Christopher-hoping that he is full of happiness and joy where he is. We cannot imagine what you are going through and we are amazed everyday how strong you have been. I have a feeling you have been helping people all over the world by sharing your experience. You two are special angels to those people who are going through difficult times such as this. I hope God is answering some of your prayers and giving peace, at least a little every day. We will always be here for you and we send our love to you. Matt and Michelle
Email:jessicalw@earthlink.net Comments: I'm terribly sorry for your loss. Just to let you know, I have linked your site to mine at www.mpsforum.com on the “Links” page. I hope this was okay and thank you for sharing your site with other MPS parents! Our MPS Angels are not forgotten. Love, Jessica (Mom to Kaity~Hurler Syndrome age 13)
Email:llebouef1998@yahoo.com Comments:I was very touched by the carnival story. We just attended the same carnival. My son Cameron earned his wings 7/7/04. He had Maroteaux -lamy syndrome. Christopher was a beautiful little boy. Our web page is camerons-world.com Lisa Lebouef
Email: Comments: Just wanted you to know that I am still thinking of you and praying for you. Every time I see a butterlfly I think of your darling Christopher.
Email: Comments:I just wanted to let you know that I will NEVER forget Christopher or your inspirational story of love and courage. I think about him every day, when I see butterflies, angels, clouds, wherever there is beauty. Now that the days are going by since he went to live and play with other little angels, it might seem like he will be forgotten down here on Earth. But I know he has forever changed so many people's lives that it's impossible for him to leave our hearts. I feel priviledged just to have been touched by him, even though we never met.
Email: abellhokies@earthlink.net Comments: Sending hugs from Maryland and hoping that today brings you many happy signs from little Christopher. I think of you guys so often! Lots of love, Dawn
Email: cinnylouwho@hotmail.com Comments: Thinking of you all on Christopher's 2 month angel day. God Bless.
Email: Comments: Christopher is not at all forgotten. Everytime I see a butterfly (and that seems to be a lot lately), I say "Hi Christopher!". K Arnold
Email:mbryant@cox.net Comments:Remembering Christopher and praying for you....especially today. Love, Marlene
Email:kman92@ctitech.com Comments:I read your journal entries often, I came upon your site through Reesecup's. You are so strong and your words are so comforting. I hope I never have to experience what you have, but if for some unforseen reason I do, I pray I can be as strong and wise as you are in dealing with this sad set of circumstances.
Email:tlxavier@cox.net Comments:Paige, I'm sorry I missed Christophers's Angel day yesterday, but I know I thought of him...my thoughts and prayers are with you and your family. Teri
Email:laynehokies@mindspring.com Comments: Sorry we keep playing phone tag. I will hopefully be able to talk to you soon and see how you are doing. We will plan to come to the blood drive to support you guys. I will talk to you soon. Sarah, Jimmy and Andrew Layne
Email:LMPOST@cox.net Comments:Thinking of you and keeping you in my prayers. Hard to believe it's been 2 months. It must be so hard to be missing your baby so much. God Bless. Lisa Post
Email:mjherwig@comcast.net Comments: Dear Paige and Joe, I continue to pray that God gives you the strength you need to get through each day...and that in time the days won't seem so long and empty. After reading your post on Christopher's 2 month Angel Day, I remembered a book I read a long time ago by Dale Evans called "Angel Unaware". It was about her daughter who died as an infant, but it is written from the baby's perspective as if she knew she had a brief time on earth but yet an important purpose to fill. I will try to find the book for you, it's been out of print awhile. May you feel God's love in a special way today. Michele
Email: cinnylouwho@hotmail.com Comments: Just checking in to see how you all are doing. I still check the site daily. I just love looking at the beautiful little face of his. God Bless you both!
Email:asunne@hotmail.com Comments:Just wanted to say hi! I think about Christopher all the time. We just got back from the beach and there was one little yellow butterfly on the beach everyday! It made me think of Christopher and how he was there making sandcastles and hanging out... Love, Ange
Email: Comments: Just wondering how you two are doing...I miss seeing your postings but completley understand why there has been a break. I think of you and yours often as well as Christopher and hope you are well.
Email: Comments: Just wondering how you two are doing...I miss seeing your postings but completley understand why there has been a break. I think of you and yours often as well as Christopher and hope you are well.
Email:smbeck@surry.net Comments: Paige and Joe, I check the site daily but dont always sign the guestbook. Every time I see a butterfly, I think of your little Christopher. I know that he has a new little friend in Heaven today and I am sure they have been into all sorts of mischief today. Christopher is probably helping little Jordan learn all about Heaven and all the cool things there are to do, like riding on clouds, playing hide and seek with the other angels and the coolest, being able to watch over their mommies and daddies from Heaven. I am still praying for you guys 'cause I am sure that there are days that seem impossible to endure. Only time can allow you to learn how to live with Christopher in your hearts. Many thoughts being sent your way!! Stephanie Beck, Mt Airy, NC
Email:Aaronsmom1027@sbcglobal.net Comments:I was just thinking of your little angel today. I am still praying for your family. Love Always!!! Trisha Athy
Email: duchamjm@mps.k12.mi.us Comments: Paige and Joe: What a beautiful web site, and what a beautiful baby boy. I am so sorry for your loss, and I feel your pain. Our son, Eddie, will be 18 in 11/04 and is 15 years post bmt for Hurler's. We were were on the roller coaster ride in the hospital for almost six months during our bmt, too. I sent you an email and hope to hear back. All our love, Jean, Al, and Eddie Ducham from Midland, MI
Email: Comments:Dear Joe and Paige, Just checking in on you two on the night before baby Christopher's four month anniversary in heaven.I hope that tomorrow is a day filled with some happy memories of your little man.Just know everyone is still praying for you and remembering Christopher's joy. Pete and Lori
Email:katilynnsmom@yahoo.com Comments:paige and joe we cant thank you enough for the updates even through your grief you still help others that are going through the samething.we were told last september that our baby katilynn has hurlers syndrome and our world was turned up side down.katilynn started taking the enzmye replacement treatment that october and is doing so much better.she had a port put in last friday and i was so scared that she wouldnt make it being put to sleep be she did and is doing great.there are familys out there in the world that dont know how lucky they are to have health children and just throw them down.when there are people and familys out there doing everything in there power to keep there children alive.i dont understand and i guess i never will.but i cant thank you enough when you update your page and let us know how you and joe are doing.i am so sorry for your loss of your beautiful baby boyi dont know what your going through but i know god is with you and joe.we send all are prayers to you and joe and i hope many many butterflies come your way.kathy and katilynn preston www.caringbridge.org/ky/katilynnsmom
Email:kamccomb@cavtel.net Comments:Paige, I just wanted to write and let you know I am still thinking of you and your family. I wish I knew the right words to say, but I don't. I just want you to know you are in our prayers. Big hugs! Kim (Atkins) McComb
Dear Paige and Joe My husband and I know Joe's parents through Northern Westchester Hospital. Ann and John worked together and I have had the privlege of speaking to Joe's mom on the telephone. We are so sorry for the loss of your beautiful baby boy. We sincerely hope God will carry you and give you strenght through these times. Peace be with you, Giovanni & Josehine Angelino Mt. Kisco, NY
Email:arhimes@msn.com Comments:Dear Paige and Joe, I am glad you got a new puppy. I know it will help a little. I am so sorry that things are so hard for you. I hope all those loving friends still surround you and show you the good in life. I think of you often. Love, Anne
Email:teri22677@hotmail.com Comments: I have never signed your guestbook before but something compelled me to do it today. I have followed Christopher's Journey for a long time now ( I found your link thru Babycenter). I just wanted to say that I am thinking of you and your little man today. I check your site often for updates, I pray you find the strength you need to get by each day without your beautiful Christopher. Just know that he touched many lives in his short time here on earth. I cherish each day with my son because of wonderful people like you and Christopher. God Bless You Teri Nelson Sharon, TN
Email: Comments:Paige, A special "Angels and Butterflies"tree for Christopher sounds like a perfect idea.Always thinking of you and praying for you to have peace and to experiece joy, Lori
Hi Paige - this is Shawn.. Just wanted to drop by and wish you and Joe a Happy Thanksgiving. Tho sometimes we struggle to be thankful for anything after losing our children, we have to remember to be thankful that we were special enough to have them in the first place. God bless you and keep you safe!! Our angels are watching over us!! LOVE YOU!!!
katilynnsmom@yahoo.com our prayers and thoughts are with your family this hoilday season may god bless you and keep you.with love hugsa nd prayers kathy and katilyn
Email:aliciarw@aol.com Comments: Dear Paige and Joe, it was such an honor to share Christopher with you. He is such a beautiful guy. I was so moved by your Carnival by the Sea story and all of Christopher's smiles. Thinking of you - Alicia (Mom to Brody Christopher 6/5/04)
Email:mary@geislers.org Comments: Paige & Joe I want you to know that I think of you often. I wish we could meet one day. I think of Christopher often when we play Kimmie's Hokey Elmo. I saw he loved his as much as she loves hers. I found this poem and wanted to share it with you. I can somehow just somehow hear him saying this: Christmas in Heaven I see the countless CHRISTMAS TREES around the world below with tiny lights like HEAVEN’S STARS reflecting on the snow. The sight is so SPECTACULAR please wipe away that tear for I am spending CHRISTMAS WITH JESUS CHRIST this year. I hear the many CHRISTMAS SONGS that people hold so dear but the SOUND OF MUSIC can't compare with the CHRISTMAS CHOIR up here. I have no words to tell you of the JOY their voices bring for it is beyond description to HEAR THE ANGELS SING. I know HOW MUCH YOU MISS ME, I see the pain inside your heart for I am spending CHRISTMAS WITH JESUS CHRIST this year. I can't tell you of the SPLENDOR or the PEACE here in this place Can you just imagine CHRISTMAS WITH OUR SAVIOR face to face I'll ask him to LIFT YOUR SPIRIT as I tell him of your love so then PRAY FOR ONE ANOTHER as you lift your eyes above. Please let your HEARTS BE JOYFUL and let your SPIRIT SING for I am spending CHRISTMAS IN HEAVEN and I’m walking WITH THE KING I keep you in my prayers always. With much love, Mary and Kimmie the little butterfly www.caringbridge.org/va/kimberley
Email: Comments:Thinking of you today and praying for your strength on the six month anniversary of Christopher becoming an angel. I thought the Christmas poem a visitor left was just beautiful, we wish you joy, pride, and warm hearts (though I understand they'll be heavy hearts too) every time you look at your Angels and Butterflies tree. May the new year bring you more peace and comfort, and continued signs from your baby boy above. With love, April, Jeremy, and Ava Corsmo
Email:mbryant@cox.net Comments:Hi Paige & Joe! Just wanted you to know our thoughts and prayers are with you on this special angel day. Love, Marlene
Email:kamccomb@cavtel.net Comments:I have continued to pray for you all during the holidays. I check for updates pretty regularly and was concerned, however, I know this time of year must be especially hard! I wish for you to have peace in the new year...you both deserve it. With love, Kim (Atkins)
Email: Comments:Dear Paige and Joe, So glad to read your update.Love to you both, Pete and Lori
Email:alicecurran@charter.net Comments: Thank you for sharing your love, your lives and your grief journey with us all. Christopher continues, through you, to give new life to many. Blessings and may peace be within you. Alice Curran
Email: teresea.vandevoren@theccv.org Comments: Paige and Joe, Thanks for the update. I still check it everyday, but I understand the gaps between updates. I know you both have a lot going on. I pray that you find peace in the new year. I look at Christopher's picture on my desk and have peace in knowing that he is with Jesus. Please know that you, through Christopher, have made a difference in many people's lives. We are all still praying for you and wishing you comfort and happiness. Love in Christ, Teresea Vande Voren
Email:arhimes@msn.com Comments:I hope you have a wonderful time in Fl. We hope that maybe we can go next year. I know there are alot of folks waiting to meet you with big hugs. Those crazy forum ladies and geared up and ready to go!! I hope you will continue to be strong and that Christmas joy will find you. Love, Anne
Email:LMPOST@cox.net Comments:Just a little note to let you know I was thinking about you and your little angel Christopher. I'm sure it is hard to face these holidays without your baby boy and I will keep you in my prayers that you feel him and sense him around you more and more as each day passes. God Bless. Lisa Post
Email:michelle.shirkey@ps.net Comments:Paige and Joe - I am thinking of you both and Christopher as always, especially during this holiday season. Paige - thank you again for visiting us in the hospital when Aiden was born. It really meant a lot to see you. What a nice surprise! Love, Michelle (Frye) Shirkey
Email:aaronsmom1027@sbcglobal.net Comments:It was so nice to finally be able to meet with you guys. I hope you had a nice trip home from Florida. Merry Christmas!!!
Email:tina@melroseroad.co.uk Comments:Wishing you a peaceful Christmas and New Year.Love Tina,Padraic,Amy+Sophie
Email:tlslawson@aol.com Comments: Wishing you a Merry Christmas and Happy New Year!!!! Love and Hugs, Tami Slawson ( www.caringbridge.com/ca/slawson
Email:marghig@aol.com Comments: It is Christmas Eve and we all are thinking about both of you. You have been through so much at this young age but your courage, grace, and faith are remarkable. You help so many other people with your work, kindness, genuine love, website and updates."Bucket of Love" misses Christopher and we keep his picture with Michael's class picture. We loved his last year CHristmas pictures on the website. May God continue to give you strength to live on! "Bucket of Love" and his family.
Email:marghig@aol.com Comments: It is Christmas Eve and we all are thinking about both of you. You have been through so much at this young age but your courage, grace, and faith are remarkable. You help so many other people with your work, kindness, genuine love, website and updates."Bucket of Love" misses Christopher and we keep his picture with Michael's class picture. We loved his last year CHristmas pictures on the website. May God continue to give you strength to live on! "Bucket of Love" and his family.
Email: kklenke@madisontelco.com Comments:Hi Paige and Joe! I just wanted to stop by and say hello. It was such a pleasure to meet the both of you last week at the MPS conference, I just wish we would have had a little more time to talk. It was very generous of you to donate the use of the big screen TV for the child care room, all of the kids really enjoyed that. Much Love, Kris & Kraiggy
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Email:wordinedge@aol.com Comments: Paige, It was such pleasure meeting you at the MPS conference a few weeks ago! (we spoke about anitihistimines :-). I truly hope that your holiday went well and that you had many angel moments from Christopher. He seems like such a sweet little man! Jesse and I are doing well. Our holiday went well. Everyone is happy and not sick hooray! That's always good on a holiday! Give me a shout back when you can. I'd like to talk to you more about Dr. Kahler. I miss him so much here in Baltimore. Patty and Jesse http://www.caringbridge.org/md/myjesse
Email:katilynnsmom@yahoo.com Comments:dear paige and joe hope you have a great new year with hope with a new year a new start good luck in the new year love kathy and katilynn preston.www.caringbridge.org/ky/katilynnsmom
Email: tdstecher28@yahoo.com Comments: Hi Paige & Joe! Just wondering how you are doing and how the conference went. I still think of you & pray for you every day. I just know in my heart God has many blessings in store for you, especially since Christopher is up there watching over you too! Love, Tara
Email: jessicalw@earthlink.net Comments: Thinking and praying for your family! It was wonderful meeting you and Joe at Disney. Huge Hugs, Jessica Wellman
Email:smbeck@surry.net Comments:Joe and Paige, I check the site daily looking for an update. Just wanted you to know that I think about you often and I hope that you are doing ok. I am sure that the holidays were tough but I prayed that you would have strength and extra comfort during those days. I hope that the two of you have a good new year and that this year is filled with many blessings. Stephanie Beck, Mt Airy, NC
Email: teresea.vandevoren@theccv.org Comments:Paige & Joe, Just thinking about you on Christopher's Angel Day Anniversary. I'm praying that you are healthy and content. Big Hugs, Teresea Vande Voren
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Email: Comments:Thinking of you and Christopher today. Love and prayers, Pete and Lori
Email:maureen1360@cox.net Comments:Dear Paige & Joe: I think of you often, and especially on the 11th. I hope that you will find peace in the new year. Fondly, Maureen Cook
Email: Mstang982b@aol.com Comments: Paige & Joe, We are thinking about you today!! I've been checking the website daily to see if there are any updates. I know the days are hard and school is back in season, but please know we think of you guys often!! I hope Christopher had fun playing in the sprinkler’s in Heaven this evening. Let's try to do Rio Grande next week!! Mike, Stacy and Michael
Email: edcclub71@bww.com Comments: Paige, I'm Laura Pfaff's Dad and Daniel's GranDad. I met you briefly as he was finishing his biopsy. Laura sent me the web site information. I just want to let you know that you have been a terrific help for Mike and Laura as they go down the path of doctors, hospitals, tests, and treatments. All of us, like your family is constantly praying and asking the big question: "why is all this happening and how is this glorifying or going to glorify God?" I read many of your notes on the site, and you touched my heart. As we go through this as grandparents, I think we are getting a tiny glimpse of what you have already endured. This is hard stuff. Thanks for being available for Laura, and thanks for being a Mom of such a great Angel.
Email:alicecurran@charter.net Comments: Love and prayers. Thank you for your reflections and for letting us into your journey. You give us all a new glimpse of God by sharing your story.
Email:katilynnsmom@yahoo.com Comments:dear paige i sit here in tears and read your update and i never got to meet you or christopher and i feel like i have known your family forever. my family fights this awful diease every day.there are days that katilynn has very good days and there are days that she scarys us to death.i dont what the future will bring for us and its scary because i am afraid that one day i will lose her and i just dont know what i would do.i come here often and look for your updates and hope to find you and joe well even through the hard stuff.i do look forward to reading them i hope as time goes on it will easy your pain and keep your mind full of happy memorys of christopher.it take special familys for special children so fell special that god picked me to be katilynns mom as well as you do with christopher.i hope that you continue with the updates so that we know how you and joe are doing.thank you so much kathy and katilynn
Email:mary@geislers.org Comments: I wanted you to know that you are both in my prayers. I can't and wont say I know how you feel over the past few months. I do know how it feels to care for a sick child and the only thing you can do is pray and some days that doesn't even seem to work. Please know that even though we have never met you are always in my thoughts and prayers. Christopher was blessed to have you as parents. You will never be forgotten!!!! With much love, Mary and Kimmie www.caringbridge.org/va/kimberley
Email:arhimes@msn.com Comments:You have painted the perfect picture of what it is like to be on a road that we wish we didn't have to travel. You brought me to tears and I so wish we could give you back that other path. It seems so close. I wish you didn't have to be where you are. Love, Anne
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Email:joshandlukesmom@yahoo.com Comments:Hi Paige and Joe, Although we have never met, I feel like I know you so well just by reading your web page on a regular basis. I am good friends with Kelly and Dave McPherson who told me about Christopher last summer. I just want you to know that I pray for you all everyday- for support, for Christopher's "signs" you frequently write about, and for the strength to go on. I just felt the need to let you know that you have a friend in Missouri who thinks about you and prays for you everyday. (My husband graduated from Tech, so we are also huge Hokie fans!) Best of luck in your new nursing endeavors. It's an amazing profession that does not get enough praise at all. Wishing you my best, Megan Bradley
Email:Angelbabe4ever88@aol.com Comments: We just found out that my lil cousin Hunter has Hurlers syndrome and i was just looking at the pictures and he kinda looks like him.. I'am kind of happy you guys put these pictures on here and this information.so that people that are new to this knows what to go through. you are welcome to email me back you want. Thanks You, Rebecca Rogers
Email:arhimes@msn.com Comments:Paige and Joe, I am thinking of you today. I hope joy will find you agian this year. Love, Anne
Email:AngelHaps@aol.com Comments:Please know that I continue to keep you in my prayers daily. I am amazed at your strength and determination. I know that Christopher is proud of you. Thank you for continuing to keep us informed and share your story with us. It is a wonderful memorial for Christopher. May God send you many butterflies. Love and Prayers, Louise
Email:sabiemc@aol.com Comments:CONGRATULATIONS!!!!!!!!!!!! I met you at the MPS conference. I am best friends of the Bennett's! What wonderful news for the most wonderful and caring parents!
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Email:LMPOST@cox.net Comments:I am so happy for you! What wonderful news! Your sweet son did a great job persuading the good Lord to send his sister to you at this time in your lives! Love, Lisa Post
Email:arhimes@msn.com Comments:I am so thrilled for you. What a wonderful thing to happen. I am so glad you new baby doesn't have Hurlers!!! I know it must have been so hard waiting to find out. I am so glad that this time the news is good!! Love, Anne
I'm so thrilled for you guys!!! I look forward to hearing all about the pregnancy and seeing glowing pictures of Paige on the website. Congratulations! Gwen
Email:gvest1@aol.com Comments:I know we've never officially met, but we are part of your CUMC Family and have always been thinking/praying for you! We are so thrilled, and Praise God for the blessings of Christopher and Katie!!! Gregg & Cara Vest
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Email: ljrdesign@yahoo.com Comments: Girl, you gave me the best news ever this weekend. I have to say, in person was best, but it was twice as nice when I heard it again on the home machine! I am so happy for you and Joe. Christopher really knew what you needed by sending a girl. I can't wait to start spoiling her, your little ZTA legacy...hee hee. Love you woman! - La
Email: michelle.shirkey@ps.net Comments: Paige & Joe, I am sooo happy for you! Another Zeta lady! She is going to have the best parents and big brother looking down on her! -- Michelle Frye Shirkey
Email:katilynnsmom@yahoo.com Comments:paige and joe congrats on the new baby.i am so happy to hear the news and ilove the name katie.cant wait to see pics of her when she is born.thats great that she doest have hurlers or anything.well i will check back in on you all soon.hugs and kiss kathy and katilynn www.caringbridge.org/ky/katilynnsmom
Email:laynehokies@mindspring.com Comments: Yeah!!! I am so HAPPY for you guys!!! Another ZTA too. I know you can't wait to put her in her first ZTA t-shirt to go out in or a hokie shirt for the game. I wish you the best and I hope to come see you guys soon. Sarah
Email: cinnylouwho@hotmail.com Comments: After following Christopher's story for a few months before he became an Angel, I feel like I know you all personally. All we have in common is Northern VA (I grew up in Prince William County, Triangle). Congratulations on Baby Katie. As the mom of a Katie myself, I know she will forever bring you both lots of joy and love. God Bless you!!! Cindy, Rob, Jake and Katie Sickelsmith Ellwood City, PA
Email:sallydunn804@msn.com Comments:We are so happy for you both. Shall be checking in on you as the months fly by. All our love, Sally Dunn, SPC, Midlothian, VA
Email:smbeck@surry.net Comments:Paige and Joe, I am so happy for you guys. Little Katie is going to be one lucky little girl with parents that will love her to death and her own personal angel to look out for her constantly. Take care of yourselves.. Stephanie Beck
Email: Comments: CONGRATULATIONS Paige & Joe!!! What wonderful, wonderful news!! Overwhelming joy fills my heart right now as I envision you both running around in the yard with Baby Katie chasing after butterflies (because big brothers do so enjoy teasing their little sisters!!)! Best wishes for the months ahead! Love, April, Jeremy, & Ava
Email: Comments:So Happy for you!!!!!!!!!!! Love, Pete and Lori
Email:shauna_reiger@yahoo.ca Comments: My heart goes out to your family. I myself could not imagine losing my son right now. My son, Hunter, is currently in Winnipeg Children's hospital getting his bone marrow transplant for his Hurler's Syndrome. He will be celebrating his first b-day on Feb.15/05. We are currently on day+6. I am so glad to have found your website, it makes me feel not so alone in this struggle. I wish your family all the best in the future and will definitly be reading your updates. Thanks, Shauna Reiger.
Email: mary@geislers.org Comments: I am so very,very happy for you. Katie is going to be so very lucky to have you as her mom and dad, and to have someone extra special to watch over her as she grows up. Just think of all the butterfly kisses she will get. With lots of love and prayers, Mary and Kimmie G. www.caringbridge.org/va/kimberley
Email:AngelHaps@aol.com Comments:CONGRATULATIONS! I had chills and tears and so many other emotions when I read about Katie. I am thrilled for all of you. I'm sure Christopher is delighted that mom and dad are happy again. Please allow us to follow along on the journey while we all wait to see pics of baby Katie, the little sister of Angel Christopher. Much love and many good wishes, Louise
Email:maureen1360@cox.net Comments:Welcome Katie! I am so happy for both of you! Now when I see the cross at church I will think of Christopher AND Katie. Fondly, Maureen
Email: abellhokies@earthlink.net Comments: Oh, Paige, I am so happy for you and Joe! I teared up as I read your pregnancy message, and immediately called Craig in to read your news. You guys were due some good news this year! Congratulations! Enjoy every minute of your little sweet baby girl growing inside you...but I know I don't have to tell you that! What a lucky little girl- can't wait to see her in ZTA letters! :) So much love, Dawn and Craig
Email:mbryant@cox.net Comments: So very thankful and excited for the two of you, the grandparents, and the many others who love and care so much.....what wonderful news! Love, Marlene
Email:jdownham@earthlink.net http://www3.caringbridge.org/tx/tywalker/ Comments:Paige, Joe, and Christopher, I cannot begin to tell you how wonderful it was to read your news of baby Katie. My heart is bursting with excitement and my tears are filled with joy. I will always think about your family, and hold you up in prayer. God bless you. Kim and Ty
Email: ericakusterer@hotmail.com Comments: I am so happy for you regarding your pregnancy! I truly believe that Christopher sent you her, and how fitting that it be a little girl! I wish you and your husband all the best, you both are such wonderful people. I pray that Katie will have all of the wonderful qualities that Christopher graced you with during his short time here. Richmond, VA
Email:joschwa@hotmail.com Comments:Dear Joe and Paige, congrats on the good news. I can't wait to hear more about baby Katie. You continue to be in my thoughts and prayers. Love, (ZLAM), Jodie Schwarz Goldberg
Email:france.albert@gdcanada.com Comments:CONGRATS! This is exciting news. It is wonderful that you'll have a little one to share your love with and that she'll have Christopher, her big brother, to look over her and guide her. Congratulations once more and God Bless both of you and Katie and angel Christopher.