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07/22/09 |
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To all our wonderful friends, family, and parents of
MPS Children, We would love to know if you visited our website. Please know we are thankful for you all. We feel blessed by all the angels in our lives, and would love to hear from you!
If you would like to send an e-mail to Paige & Joe : hokiern@m3tc.com
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Email:katilynnsmom@yahoo.com Comments:hi paige and joe i just wanted to stop by and check on you guys i hope all is well.i hope all goes well with the baby as well.take care and i will be back to check in on you two.hugs and kisses kathy and katilynn preston www.caringbridge.org/ky/katilynnsmom
Email:katilynnsmom@yahoo.com Comments:hi paige and joe i just wanted to stop by and check on you guys i hope all is well.i hope all goes well with the baby as well.take care and i will be back to check in on you two.hugs and kisses kathy and katilynn preston www.caringbridge.org/ky/katilynnsmom
Email: Comments: Thinking of you on this anniversary day and wishing you strength, comfort, and healing! Love, April, Jeremy, & Ava
Email: Comments:Thinking of you,thinking of Christopher.Thanking God for the blessing of Katie Paige.It is so nice to see the photos of you.You are both looking well.Take care and much love, Pete and Lori
Email:kamccomb@cavtel.net Comments:I am so happy for you with the upcoming arrival of baby Katie. I loved seeing the picture of you all, and hearing about all of the wonderful things you are doing. Please know that I still think about you often and check for updates frequently. Take care and best wishes! Kim (Atkins)
Email:arhimes@msn.com Comments:First I want to say Thank You for your support. I am so sorry that you had to see Christopher's grave like that. I am glad they were fast to fix it up. I am sooo sorry that you are hurting so badly. I wish I could make that pain just go away but it is a sign of your amazing love for Christopher and that is not going away. I hope time will ease you into a more peacful and happy life. I am sorry that you haven't been able to eat much but I hope soon that will improve and you will be feeling better. It is good that you have a sensible Dr. My girlfriend is in the same boat. She has lost 6lbs so far! She laughs and says she is going the wrong direction. Thank you again. Love, Anne
Email:claubonetti@aol.com Comments: Dear Paige & Joe, This is a beautiful tribute to Christopher's life and to your experience as parents of a child with Hurler's syndrome. It is truly an inspiration to all of us parents of special children and a testament to what a loving family you all are. Thank you for visiting our site and for your prayers for Caterina. Our thoughts and prayers will also be with you. With much appreciation, Claudina B Marcus (www.caringbridge.org/ny/caterinamarcus)
Email:claubonetti@aol.com Comments: Dear Paige & Joe, This is a beautiful tribute to Christopher's life and to your experience as parents of a child with Hurler's syndrome. It is truly an inspiration to all of us parents of special children and a testament to what a loving family you all are. Thank you for visiting our site and for your prayers for Caterina. Our thoughts and prayers will also be with you. With much appreciation, Claudina B Marcus (www.caringbridge.org/ny/caterinamarcus)
Email:KATILYNNSMOM@YAHOO.COM Comments:WISHING YOU A HAPPY EASTER
Email:daisy@vanopstal.com Comments:Dear Joe and Paige, Happy Easter. As Bill and I watched the beautiful alter cross enter our church sanctuary, we were reminded of Christopher again. He is a special boy who I'm sure is also celebrating this special Easter day by sending special prayers down to his beloved parents. Thinking of you, - Daisy
Email:ryanleighcarroll@yahoo.com Comments:We're so excited that you're pregnant again! Congratulations, Ryan and Ben
Email: lrosati@cogeco.ca Comments: Hi, my name is laura rosati. I'm 16 yrs old and in grade 11. I came across your website just now while doing research on Hurler Syndrome for my parenting class. I just wanted to tell the both of you that you have inspired me. After all that you have gone through, you came out on top. You two are ideal parents. Also, Christopher looks so happy in all his pictures. He must have been so lucky to have parents like you, just you two were lucky to have him. I'll be praying for your new baby! Hope everything goes smoothly and I can't wait to see pictures. Love -Laura Rosati Stoney Creek, Ontario
Email:judithsween@aol.com Comments:Dear Paige and Joe, I am so happy to hear that everything is going well with your baby girl. NORMAL IS SUCH A GREAT WORD!!!! Know that you are always in my prayers. Sending love from Chicago..Mighty-Max's Granny Judie
Email: rosatimafia@hotmail.com Comments: Hello, its laura again. I just wanted to leave a comment telling you that the assignment for my parenting class is going ot be in memory of Christopher:).... I'm still very excited for your baby girl:) love laura rosati
Email:arhimes@msn.com Comments:All I had to read was "I have taken the babyfood out..." and I was already crying. You don't have to convince me that that was a HUGE deal. I know how hard that must have been for you. My friend would tell me "little steps" That was a big, hard one. I am glad you found something funny to think about. Love, Anne
Email:vt9@msn.com Comments:Paige and Joe: Just thinking about you on this special day. Take care of each other and that precious baby, Katie. Love, Janet and Jason Hackler
Email: abellhokies@earthlink.net Comments: Happy Birthday to little Christopher- I hope he is enjoying a day filled with messy cake and lots of love in Heaven! I am thinking about you guys today! However you decide, enjoy the celebration of Christopher's life today! Love, Dawn
Email: mary@geislers.org Comments: I just wanted you to know that I was thinking of you on the special day. I know your hearts are hurting. May you always feel Christopher close to you. With love, Mary and Kimberley
Email: Robin.Boger@rbc.com Comments: Thinking of you on Christopher's first birthday in heaven. God bless, love Robin, friend of Angel Reese's.
Email:maureen1360@cox.net Comments:Sending you a hug! Love, Maureen
Email:arhimes@msn.com Comments:I am thinking of you. My heart hurts too much to think of anything else to say. With love, Anne
Email:LMPOST@cox.net Comments:Happy 2nd Birthday in heaven, Christopher! I'm sure you partied with the angels! Love, Lisa Post
Email: cinnylouwho@hotmail.com Comments: Thinking of all of you at this time. I still check your site every day! Please keep letting us know how you are doing. After following your precious son's story, I will never forget him. Cindy Sickelsmith
Email:mmchick@comcast.net www.Mighty-Max.com Comments:Sending our love, Margaret, Mike and Grace
Email:efirds4mps@ctc.net Comments: Thank you for contacting me. I've loved reading about your precious Angel. I'm sorry 4/24 was hard...I can't imagine. I don't think anyone can ever prepare for a child to earn their wings. I hope you continue to "talk" with Christopher. That's one thing I still have with my Lindsey...talking to her and kissing her chubby cheeks. It's a treasure isn't it? Thank you for prayers and know they are returned for you. kle www.caringbridge.org/nc/lindseysmpsjourney
Email:judithsween@aol.com Comments:Dear Paige, Thinking of you this weekend. Please know that you are always in my prayers..Love, Mighty-Max's granny Judie
Email:mmchick@comcast.net Comments:Thinking of you on Mother's Day. Love, Margaret
Email:katilynnsmom@yahoo.com Comments:paige we are so greatful that you share you feelings and your life with us and we are so truly greatful i enjoy reading you updates often even though they bring tears to my eyes.we are so lucky to have special children god thought of us enough to give us special children.we are truly blessed to have they love that a child shows us.hugs and kisses kathy and katilynn preston www.caringbridge.org/ky/katilynnsmom
Dear Paige, I am thinking of you and crying with. I hope peace will come to you. Not the kind you have to work for every day, but the kind that washes over you and stays with you. Love, Anne
Email:LMPOST@cox.net Comments:Thinking of you knowing your hearts ache especially deeper on the anniversary of Christopher becoming an angel. Hard to believe it's one year already. In loving support, Lisa Post
Email: carah@adelphia.net Comments: We are thinking of you all today on Christopher's Angel Day. Love, Cara & Ralph
Email:jjrokenbrod@verizon.net Comments:I was thinking about you today Paige. I hope that Christopher sent you a sign to let you know that he was thinking about you too! I know this was a very difficult day for you and Joe- I hope you all were able to do something to remember Christopher that brought you both some joy. Hopefully I will get to meet you sometime when you are visiting your parents. We met your mom at Ukrops a few weeks ago! Love, Juli (John, Jack, Marly and Hayes) Rokenbrod
Email:mbryant@cox.net Comments:Time may change many things but thoughts of and love for Christopher will ALWAYS fill the hearts of everyone he touched. Don't you just know your precious son has charmed all the angels! Love, Marlene
Email:galatians5@truevine.net Comments:The first anniversary of your precious Christopher was not forgotten. I am grateful that the cries from our hurting souls are heard by a God that understands our hurt. I am grateful that when our whole world collapses, our Lord is faithful and keeps us going when nothing else can. I am grateful that although He doesn't necessarily explain our suffering and grief to our satisfaction, God shares our suffering through our Lord Jesus. We pray our that Lord's compassionate embrace may comfort you, that His precious promises may encourage you and that even in your profound sorrow you may have the peace and the joy that only our Lord can provide.
Email:brett@lnf.com Comments:Just a little note to let you both know that I was thinking about you and your sweet little Christopher this weekend. I hope that knowing he is in God's hands helps you through this tough milestone...I love you...Brettie :)
Email:brett@lnf.com Comments:Just a little note to let you both know that I was thinking about you and your sweet little Christopher this weekend. I hope that knowing he is in God's hands helps you through this tough milestone...I love you...Brettie :)
Email:LMisetic@aol.com Comments:I am a total stranger, but I have followed Christopher's story on your website since you put it online, and just wanted to let you know that I thought of little Christopher over the weekend. May God bless you, and may He continue to bless Christopher.
Email:nicole.mendoza@vastera.com Comments:Paige and Joe, I still think about you often and pray for you. I said an extra prayer on Christopher's Angel Day. Paige, you are an inspiration to mothers who have experienced loss, whether it is the loss of a child or loss of a pregnancy. Please stay strong and take care of yourself, for Christopher and for Baby Katie. Niki (Lare) Mendoza
Email:kamccomb@cavtel.net Comments:Paige, Wanted to just let you know that I still think about you often, especially over the last few months. I have been reading the website often and am still amazed at the eloquent words you write in your updates...you often help me to put life in perspective. I am glad to hear that Katie will be arriving soon (hopefully sooner than later for you!). Please let me know further details about Christopher's Discovery Channel story! Love, Kim
Email:Lmcjcc@comcast.net Comments:A friend of mine sent me a link with your website. What a angel you have. Good luck in the future Im sure he is sending down a wonderfull little girl as nothing short of amazing will do. My thoughts are with your family. Thank you for sharing your story. Lori GA.
Email:daisy@vanopstal.com Comments:Paige and Joe, I bet that Christopher is "High Fiving" all his friends in heaven and smiling down at you and his sister on this glorious day. Congratulations on the birth of Katie. We were so thrilled to hear the news this morning and look forward to visiting with all of you soon. Blessings, Daisy, Bill, Will, Molly Magoo and "Thumper"
Email:balle@ibiquity.com Comments: Hi Paige & Joe, I am a friend of Sandra Mucciacciaro & I met you @ her baby shower. I just wanted you to know that my prayers are w/you & your family & I know that God doesn't give us too much that we can handle. Your daughter is beautiful just like her big brother & I know that she will be home w/you guys before you know it. Your website is SUCH an inspiration & so are you. Stay blessed, Lisa Ballesteros
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Email:jennmarie@bis.midco.net Comments:Paige...Please know without a doubt how many of us are praying for Katie, and praying for your family. I am so sorry that you had to leave the hospital without that beautiful baby girl in your arms. I pray that she will be home SOON! I wish you the best! Love, Jennifer Restemayer www.caringbridge.org/nd/allison
Email:aaronsmom1027@sbcglobal.net Comments:Congratulations on your new precious baby girl!!!!
Email:aaronsmom1027@sbcglobal.net Comments:Congratulations on your new precious baby girl!!!!
Email: Leslie42457@yahoo.com Comments: I just wanted to let you know that I am sending my love and prayers for your family. Christopher was a beautiful baby and I hope that he is watching over his new baby sister and strengthening her little body. Leslie (MPS/ML Forum)
Emai: Angelhaps Comments:CONGRATULATIONS on your precious Katie! She is absolutely beautiful! You have to be very special parents to have been given another "special baby". Please know that we NICU nurses love the babies that we care for as if they were our own, but I do know that it is terribly hard to leave a baby in someone else's care. I pray for Katie's "homecoming" to be SOON! I keep you all in my prayers daily and know that Katie's big brother is looking out for her too. Much love to all of you.
Email:djvpool@frontiernet.net Comments: Hi Paige and Joe, An MPS mom let us on the MPS Forum know of Katie's arrival. Congratulations! I was sorry to read that she is beginning her life with challenges, but she already sounds like such a fighter! Prayers for your strength and the ability to find those many blessings among the challenges as you begin this new chapter in your lives! All the best. God bless your sweet family. Debbie Vanderpool Mom to Jon and Jason (MPS IIIB)
Email:djvpool@frontiernet.net Comments: Hi Paige and Joe, An MPS mom let us on the MPS Forum know of Katie's arrival. Congratulations! I was sorry to read that she is beginning her life with challenges, but she already sounds like such a fighter! Prayers for your strength and the ability to find those many blessings among the challenges as you begin this new chapter in your lives! All the best. God bless your sweet family. Debbie Vanderpool Mom to Jon and Jason (MPS IIIB)
Email:kckirkland@starpower.net Comments: Paige and Joe: Congratulations on the birth of your beautiful little Katie! I will keep you in my thoughts and prayers as you continue on this journey. I think of you often! Love, Kacey Kirkland James
Email: alsmitchell@yahoo.com Comments: Paige, I have followed your story ever since I heard about Christopher on BabyCenter.com last year. I have never signed your guestbook, but check your site periodically to read your beautiful tributes to Christopher. Congratulations on the birth of your beautiful baby girl! I'm sorry that her arrival was somewhat scary for you, but so glad that she will soon be home with her mommy and daddy. Wishing you continued strength and joy, Amy in TN
Email:arhimes@msn.com Comments:Paige and Joe, She is just gorgeous!! I am so sorry that you all are getting off to such a rough start but I know she will be soooo loved and you will get your feet on the ground again soon. It is very hard leaving the hospital without your new baby. Neither one of mine came home with me. But she will be home soon and I know you will be taking such good care of her. Try to keep us posted. I know you will be really busy. Lots of love, Anne
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Email:LMPOST@cox.net Comments:Welcome to the world, Katie! Right now you have no idea how precious you are to your mom and dad! I'm sure that as your big bro was picking out which baby to send down, he just knew his mom and dad would be just perfect for a baby who needs a little extra care! No doubt nothing is going to stand in your way and hold you back from being the most precious gift and spirited little girl your mom and dad could ever hope for! Tell them to keep us posted with new pictures and updates when they can! Lisa Post
Email: selboc@aol.com Comments: MAN.... I cannot believe what I've read. Poor little Katie - poor YOU! I pray you guys all make it through this and I'm glad you have the support of family and friends. Best of luck to you! Shawn Samuelson (www.caringbridge.org/nc/reesecup)
Email: abellhokies@earthlink.net Comments: Hi Paige and Joe! Congratulations on the birth of your precious baby girl, Katie. She was a pretty good size for 36 weeks! I am sure that she has her brother's fighting spirit- I will continue to keep her and your family in my prayers. Best wishes for lots of sleep when she comes home! :) PS- I am due 10/26 and have found out that it is a girl, so we'll have to introduce our little Hokie ZTA legacies sometime soon! :) Much love to you all, Dawn, Craig, and Justin Abell
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Email:unc_fan@bellsouth.net Comments:Just stopped by to check on the website to see if it had been updated since the new arrival. Hope that you three are doing well.
Email: tdstecher28@yahoo.com Comments: Katie is soooo beautiful!!! Congratulations!!!! I'm praying for you all and waiting to hear the good news that Katie has come home with Mom & Dad. :) Love, Tara
Email:amberjaymc@msn.com Comments:We were so happy to see that Katie had entered the world. I am so sorry that you are going through this again, it really seems so unfair.You have been through more than any family should ever go through! I know she will do well, she has an incredible guardian angel by her side, but I was so hoping for normalcy for you all... no family deserves it more than you do! We miss you and would love to see you when Katie is able. We are expecting another girl soon (I'm 34 weeks now, but have always delivered early too). You remain in our prayers and I check your website almost daily! Amber
Email:katposton@hotmail.com Comments: I just wanted to let you know that I will definitely be praying for your family. Katie looks absolutely beautiful and I she is very blessed to have been born into such a wonderful family. I'm sure her brother is in heaven and is proud to see what a fighter she is. I have a niece who was born in Feb this year with almost the same name - Paige Kathryn - beautiful names I think since Kathryn is my name - :). God bless you and I look forward to reading how well Katie is doing at home. Kathy Poston
Email:robin.h.piefer@verizon.net Comments:Congratulations on your beautiful baby girl! I am so sorry to hear that you have more challenges to face with her. I hope she is home in your arms soon! All of you will be in our thoughts and prayers! Robin and Andy Piefer (parents of Logan, MPS II)
Email:cara_h@verizon.net Comments: We are so glad to hear Katie is home with you both! Love, Cara & Ralph
Email: Comments: Paige and Joe, we are thrilled Katie is now home with you. I know Christopher picked a beauty for you, and just knew you would be the perfect mommy and daddy for Katie. No one has more love to give to a baby than you two. We can't wait to see pictures of her and look forward to seeing her in person. Dark hair....blue eyes...dressed in pink.....watch out boys! What more could you want. Love to you. Jean (Haney) and Ike Chappell
Email:crookiemorsi@yahoo.com Comments:I just had to post and tell you how happy I am for the two of you with the birth of Katie, she is a DOLL!!! I have been following Christoper's web page for sometime now, I'm deeply sorry for the loss of your son, I've felt your pain through your updates. My 4 year old grandson has MPS1, he has been getting weekly ERT for 2 yrs. this Sept. www.caringbridge.org/il/cademateo I will be checking back often to check on Katie, and to view pictures posted of her. Christoper has a beautiful web site, thank you for sharing. Love, Chris Morrissey Kewanee, Il.
Email: Comments: Congratulations on your new little girl. I'm sorry to hear about your rough start but very glad to hear about the positive outcome. And, what a lucky kid to have you and Joe for parents. She has every advantage now. LOL. I was reading your journal on the weeks leading up to Katie's birth. I know we've talked about our boys before and how we've learned to cope. I'm glad you were given the eyes to see and the ears to hear from Christopher. That's a very special gift but mom's and dad's have a built in sensory port for their kids. Know what I mean? Damon came to visit me three days after he left. It was very real and you can't convince me otherwise. Congrats again on your new baby. Hope to see Katie when she comes to 'work'. Fran
Email:kamccomb@cavtel.net Comments:Congratulations on your BEAUTIFUL little Katie! Christopher sure picked out a little princess for you all. Sorry to hear about the hurdles that you are having to deal with, my thoughts and prayers have been with you all. Take care and enjoy that sweet little girl of yours! Love, Kim (Atkins) McComb
Email:nicole.mendoza@vastera.com Comments:Congratulations Paige and Joe! I just read your two latest updates on Katie's arrival and on the first 11 days with Katie, and they are so full of emotion (and so am I now). It sounds like things are going well despite Katie's condition. I know that is certainly not what you were hoping for, but you will get through it. I will continue praying for you all!!! Niki (Lare) Mendoza
Email:smbeck@surry.net Comments:Joe and Paige and little Katie, Congradulations!!! I just cried when I read that Katie had arrived and that you were home. I know that Christopher is probably right there holding her hand, giving her her passy if it falls out, comforting her when she cries and also teasing her while she is trying to sleep. Katie is a special little girl to have two parents who will love her like I know you will. Sending special prayers and thoughts for the "four" of ya'll........Stephanie
Email:ryanleighcarroll@yahoo.com Comments:I love reading your updates about your angel child and your earth child! 2 beautiful babies. As always, you remain in my thoughts and prayers, Ryan Carroll
